IBS or Crohn's?

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Mississippi_girl
New Member


Date Joined Aug 2007
Total Posts : 14
   Posted 8/15/2007 8:53 PM (GMT -6)   
I am new to this board, and have some questions as to whether I may be experiencing Crohn's rather than the IBS I have been diagnosed with.  My primary symptom is of course diarrhea; it comes on within an hour of eating, and is "violent" (accompanied by extremely painful cramps and forceful gas) and urgent (cannot be held - have had one accident and lots of near misses.)  I was put on glycopyrrolate by an FNP to help w/ the diarrhea; this helps somewhat, as far as frequency, but now, I am experiencing a kind of constipation; it's as if the same chaos is going on inside, it just can't get out.  The cramps (usually mid-abdomen to lower right side) and bowel sounds begin, and it becomes an all-day process to move first the harder stool, then progressivly looser until completely water.  Occasionally, I have an extreme cramp, I call it a "stitch" in my left side, under my ribcage; it hurts to the point of making it hard to breathe and move.  After an hour or two of this pain, a bowel sound that is so loud it is audible to people who aren't even standing next to me occurs, followed by the urgent diarrhea.  Another really worrisome symptom that has started in the last few months and has occurred about six times is that during these awful painful episodes of sitting there, crying in pain and waiting for it all to pass, I get an immediate urge to throw up.  No nausea, just all of a sudden, I have to throw up.  It is usually yellow and burns coming up.  Also, I have seen bright specks of blood on the tissue from small splits, which also burn like fire when the liquid stool hits them.  I feel out of control, trapped by my symptoms, and really frightened.  PS, my oldest brother had ulcerative colitis and had a complete colostomy at age 22. (I am 42 now; had symptoms for about 18 months; treated for IBS for about 6 months.)  Any help or advice is appreciated.  I am scheduled to see a gastro- later this month, but am so frightened that this may be Crohn's, I would like some information.  Thank you for this site and your help.

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 8/15/2007 8:57 PM (GMT -6)   
Have they ruled out crohn's? What type of tests have you gotten done? Colonoscopy? Small bowel follow through?
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's. Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow through, diagnosed with Crohn's (22 years old 165lbs). Starting HUMIRA 9/10/2007.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17910
   Posted 8/15/2007 10:58 PM (GMT -6)   
With IBS there is NO BLOOD, except with the exception of having a hemheroid which can bleed...there is also no inflammation with IBS...with IBD there can be blood and there is inflammation...

the symptoms of IBD and IBS can be almost exact with frequency, pain, loss of normal control (having accidents and urgency)...until you get scoped and all the other tests, blood, stool, there's really no way anyone can confirm for you whether it's IBS or IBD (or both) that you're experiancing right now...

do you mean you have fissures...tiny papercut like sores on your anus which bleed...typically fissures are associated with IBD, but having constant D can cause that so I guess it could be happening as a result of IBS as well.

Let us know what your tests confirm.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/16/2007 4:12 AM (GMT -6)   
Hi, I would recommend getting a colonoscopy. That way they can see if its Crohn's or IBS.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


KitKatBaker
Veteran Member


Date Joined Feb 2005
Total Posts : 1146
   Posted 8/16/2007 4:27 AM (GMT -6)   
Hi Mississippi_Girl, and welcome to Healingwell.
If you haven't had a colonoscopy yet, you certainly need to have one.  Have you tried keeping a food diary at all?  Keeping track of your symptoms and the foods that you have eaten?  Have you made any adjustments to your diet after being diagnosed with IBS?
 
Personally, food doesn't make much difference for me, but many people feel better when they stay away from certain foods.  I would look at that first, while you are waiting for your GI appointment. 
 
  
Katina
Co-Moderator Crohn's Disease Forum
Co-Moderator Ulcerative Colitis Forum
 
Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil
 
Help support Healingwell!!!
 


Mississippi_girl
New Member


Date Joined Aug 2007
Total Posts : 14
   Posted 8/16/2007 8:37 AM (GMT -6)   
Thank you all for your helpful input - to answer some of your questions:  no, I haven't had a colonoscopy yet; I'm guessing the GI will order one after I see him - I did have an EGD (upper scope) around the same time I started having symptoms, because I was having right side pain (they eventually diagnosed it as my gallbladder and I had it removed Dec. 05) anyway, they same I had some gastric erosions from that "end", but I haven't had the colon done yet.  I am guessing that these are fissures that I have - they do not bleed a lot, just on wiping, but they sting like fire when that bile hits them!  I have not kept at actual food diary yet, but have tried to make mental note of times/foods/etc. and so far have not figured out anything that seems to trigger more than other - just kind of everything.  So again, I appreciate all your input, and will hope for more insight after I see the Dr. - any other thoughts you have are welcome.  Thanks again.

Mississippi_girl
New Member


Date Joined Aug 2007
Total Posts : 14
   Posted 8/16/2007 10:48 AM (GMT -6)   
Also a couple of other questions: What about the spontaneous vomiting? Is this indicative of a blockage of some sort, of maybe just caused from the intense pain? And have any of you been prescribed glycopyrrolate? It basically "dries up" everything, including your saliva - I just don't know how safe it is to keep using it, and if it's really helping that much. Thanks again.

killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 8/18/2007 3:58 PM (GMT -6)   
The others are much more knowledgeable with their replies than I am but I did hear something from my GI yesterday about IBS that I thought was interesting.

She said many people with Crohn's also have IBS. And that when they're in CD remission they often have IBS symptoms which can make them think they are in a flare. So a GI has to ascertain which is acting up.

Just thought I'd pass that along as I thought it was interesting and semi-relevant.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Currently taking Entocort 6 mg/day (tapering down), Asacol, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17910
   Posted 8/18/2007 4:31 PM (GMT -6)   
You can also have a CD flare along with IBS symptoms, although some strongly disagree with that I know it's possible.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/18/2007 6:14 PM (GMT -6)   
I would reccomend a colonoscopy and maybe a promethius blood test. A small bowel follow through is sometimes helpful in Dx as is a CT scan or even better now is a CT enterography (same idea drink a lot of barium ...this one is clear though not white...you have to drink 2.5 bottles of it and they give you 15 min between each bottle then you drink water in the room with the tech) I hope you get some answers soon. The only time I had blood in my stool was when I was initially sick when they were trying to figure out what was wrong with me. Luckily it took only a cpl weeks (I went in the hospital 2 days before Christmas so not many people were on as far as specialties in the childrens part of the hospital then). At that point I was having bloddy and mucus filled D every 20 minutes and there was no controling it. I started a flare last yr (one with D not C which is my norm) and no blood was present it got to the point that my GI thought I had a virus since I had D. After my CTE in january he didnt want to change my Tx and the following month my ileum perforated so I had emergency Sx...long story there...)

I hope you get some answers soon, the sooner the better I think
Stef
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 

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