Those in the UK who are on infliximab (remicade)

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Date Joined Oct 2006
Total Posts : 64
   Posted 8/16/2007 5:52 AM (GMT -6)   
Grateful for any advice.  Funding has been put forward to my PCT for Remicade infusions but my hospital warned that the borough I live is notoriously bad at a) making the decision, can be 6 weeks to 6 months and b) tend to decline.
We are 6 weeks in so may still have some time to wait confused
Has anyone been in this situation or I am now experiencing the post code lottery that we hear so much about within the NHS?
Thanks for your time
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