New Battle to Fight

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CheerDad
Veteran Member


Date Joined Apr 2004
Total Posts : 2284
   Posted 8/16/2007 1:27 PM (GMT -7)   
Had a CT scan of my bowels and while they showed that my CD is inactive, a nodule was found on the lower left lobe of my lungs. Now the testing to find out what it is and if I need to be concerned.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.

 
Randy

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 42 years.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/16/2007 1:38 PM (GMT -7)   
Randy sure hope everything turns out ok. You know someone else recently said they found something similar on their CT scan. Sorry can't remember who, but I know it was very recently. Will definetly keep you in my prayers.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3310
   Posted 8/16/2007 2:08 PM (GMT -7)   
Thoughts and prayers are with you my friend...
Jon,  Co-moderator for Crohn's Disease and Depression forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/16/2007 3:49 PM (GMT -7)   
Hi Cheer Hope things work out for you hang in there.Best wishes lol gail

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 8/16/2007 4:49 PM (GMT -7)   
I'll keep you in my prayers, Randy. Sorry you are going through a rough time.
Ginger
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/16/2007 6:27 PM (GMT -7)   
I'll be sending you positive thoughts and keeping you in my prayers.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 8/16/2007 6:32 PM (GMT -7)   
(((((((((((Randy)))))))))))))

Prayer said for you.
God bless, sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/16/2007 7:36 PM (GMT -7)   
Hi Randy. I had a similar thing this winter. Mine is on the top of my left lung. I do my follow up 6 month CT this month. I've been told that as long as there are no changes between my CTs there is nothing to worry about. No change between the first two for me, crossing my fingers on this next one. I hope your's turns out as well. Just remember that your CD was actually good for catching this thing early.
Currently in remission!


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 8/16/2007 7:58 PM (GMT -7)   
Oh Randy I sure hate to hear that you are having to go through this.Please keep us informed as to what you find out.Please know that I have you in my prayers and thoughs.
Curley
.........
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 8/16/2007 8:15 PM (GMT -7)   
nanners, that was me the other randy... Randy, i have th same thing now since may. nothing in march or april then in may about a dozen on the right lung and a few on the left. 6 weeks later a recheck showed no change, had a bronchoscopy, (never again) and no bad news from that. do my recheck in early oct. try not to worry. i just made myself sick .... randynoguts
randynoguts 



     http://www.geocities.com/randynogutsweb/


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/17/2007 7:00 AM (GMT -7)   
I knew there was someone who had the same thing. What a coincidence you are both Randys!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/17/2007 7:38 AM (GMT -7)   
Hey CheerDad...sorry you have another thing to deal with!  I am hoping things go easy for you.  If it helps, I review medical conditions for future risk as my occupation.  This is one condition that does not make me concerned when I see it.  If for nothing else, I hope that Randy's words to you can help ease your mind.  You don't need the stress.  Take care and keep your focus positive.

Dx'd '90 (emergency rupture), symptoms ignored long before that, stable with Pentasa, '03 fistulas and bad flagyl reactions, only on B12 and vitamin supplements now
I'm riding on the escalator of life....


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 8/17/2007 8:33 AM (GMT -7)   
They found one on my lung during a CT scan also and have just been watching it. I get a new scan every 6 months, it's been going on for almost 2 years, and no changes thankfully.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/17/2007 4:18 PM (GMT -7)   
Wow this is sounding more common than I thought.

Judyk89- how long do they plan to mintor you? I do my 6 month soon but I really don't like the idea of lots more CTs (although I like the reassurance that nothing has changed). I get enough radiation with the CD. I will have to ask about this at my next appointment.
Currently in remission!


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/17/2007 4:31 PM (GMT -7)   
randy Im praying for you!! keep ur head up...and think positive

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!


Nana CC
Regular Member


Date Joined May 2007
Total Posts : 121
   Posted 8/17/2007 7:31 PM (GMT -7)   

Hi Randy,

I'll keep you in my thoughts and prayers. I have also just posted recently that when I had a CT of abdomen several spots showed up on the RLL. Freaked me out!! Went and had a specific chest CT doc called and stated it was infection or even allergies but nothing to be concerned about. I'll be hoping the same for you. After reading this post it does seem a lot more common than I would have thought. Wishing you the best, keep us posted.

Charlotte


Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 8/17/2007 11:25 PM (GMT -7)   
For all of you with new concerns and worries....spots on your lungs etc. you are on my prayer list. Prayer said for you right now!

Love Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/19/2007 8:35 AM (GMT -7)   
Randy,
Could it be a bleb? Unless they rupture & cause a collapse ( mine did back in '82) its not cause for concern. I just read a book on doctors & how they think. Interestingly, there was a statement that CT scans can turn a lot of stuff up that looks abnormal, but is usually mild. Hope so.

Take care,\
Matthew

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 8/19/2007 9:29 AM (GMT -7)   
inflamed said...
Wow this is sounding more common than I thought.

Judyk89- how long do they plan to mintor you? I do my 6 month soon but I really don't like the idea of lots more CTs (although I like the reassurance that nothing has changed). I get enough radiation with the CD. I will have to ask about this at my next appointment.

I'm not sure now that I'm post surgery, and my crohn's isn't active.  Up until now it was all part of my CD workups anyway.  I'll have to talk to my GP and see how she wants to proceed. 
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


CheerDad
Veteran Member


Date Joined Apr 2004
Total Posts : 2284
   Posted 8/19/2007 8:23 PM (GMT -7)   

Had a CT Scan of my lungs friday. Will know more this week but I have a scope on Wednesday.

 


We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.

 
Randy

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 42 years.

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