How much stress can one family take in such a short time

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Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 8/17/2007 7:28 PM (GMT -6)   
Hello everyone,
Most of you know my issues I have had this year with CD.  I have had CD for 20 yrs and my ileum perforated in February, I had emergency surgery, they resected, removed my appendix and a fistula that no one was aware of...not even me.  Did well for a few days then went downhill again more CTs revealed toxic megacolon...(I have had 17 CT scans just from Feb 11 07 alone).  Had more emergency surgery and got a temp ileostomy.  Stupid resident let feces get in my incision (twice) and after me asking she said it would be fine and wouldnt need any incision infection and introduced for 4 and a half months to a wound vac.  Readmitted 2 times after ostomy Sx due to abdominal abscesses, wouldnt go away totally had reversal surgery in June, removed abscess, removed more lg and small intestine, removal of mult adhesions, scraping of infected abdominal wall, and reversal.  Localized infection from suture growing in and removing itself by way of popping like a zit. 
The day my infection appeared (the recent one) my nana went to the hospital by way of ambulance. 2 weeks before she went in for not feeling well they Dx TIAs (mini strokes).  A few days later she fell (she has severe osteoporosis and already had compression fractures) and caused another compression fracture., My nana had stopped eating and the keytones were noticed on her breath.  This was what sent her via ambulance.  They found she had the TIAs which we knew, also she was now having seizures, then a UTI.  Ate very little while in and also got Dx with Alzheimer's Disease (middle stage she had been forgetting things for a while but was to scared to find out more about it so she let it go...after her Dx and successful treatment for breast cancer every Dr appt scared her.  It took her over 1 year to get annual bloodwork done due to her apprehension; she had a nervous breakdown not long after her mom died in the late 80s caused by hypocondria.  She has been in a nursing home for 15 days now.  She has gone off adivan and paxil (very rapidly at the hospital those which she had been on large doses and for a while) They gave her different meds for anxiety that is better for those with AD.  Both in the hospital and at the NH no one was brushing my nana's teeth, she has some left on the bottom dentures got cleaned just not her natural teeth.  She was complaining of her mouth hurting, my mom  has sinced changed professions but she use to be a dental assist. My mother at this time noticed oral thrush and brought it to the NH nurses attention.  This also progressed into a vaginal yeast infection too, she was on cipro for the UTI.  Yesterday they placed her on diflucan now in additioin to oral nystatin swish and swallow.  It was painful for her to eat and was drinking very small amounts of ensure...I think she may eat 4 times a week.  She fell last night out of the chair she was in no one knows if she was standing or slipped out of the chair (regular chair she has been walking with a walker and PT have been working with her) she had a fever last night of 101.4.  Thos morning she still had a temp of 101.3 and her O2 level was 90% so they put her on oxygen.  They did bloodwork a chest xray and urine C & S and found that she has pneumonia in both lungs.
My papa's oldest brother (my papa is going to be 80 this year, his wife is my nana married 58 yrs he cries daily and holds her pillow at night) is back in the hospital unable to swallow, breath, talk etc they found a Dx and are able to treat it with steroids.  They had to do a trach the other day but with recent treatment he is improving slightly.
Our cousin (my nana and papas nephew) passed away 2 months ago from pancreatic cancer he was 52.
Also new today...nanas pneummonia was Dx today...My great uncle Francis (my papa's brother in law) didnt feel well chest hurt sat down in a chair and died today. 
My papa is one of 8 children his youngest sibling passed in early 1996 (he was in his 40s) then his oldest sister passed in late 1996.
I just dont know much more stress this family can handle.  My dad doesnt have that much stress at this time as far as his side of the family goes.  His dad passed away in july 2001, 3 weeks later his mom passed.  He has 3 siblings one older brother 1 younger, and a younger sister.  His older brother had a heart attack 2 months after their mom passed (luckily he is still around) then March of 2002 (my dad was 49 at this point) he had a heart attack again luckily he is also still around.
I just hope next wednesday when I stop my Fentanyl patch I wont go through severe withdrawals I have been decreasing the dose and am now down to the lowest dose available transdermally.  I will still have more patches at home if I need them and I rather stop when I know I can contact my Dr and actually hear back from my Dr as opposed to an associate who doesnt know my case as he does.  I am about ready to pull my hair out I am so stressed.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Aug 2007
Total Posts : 350
   Posted 8/17/2007 7:37 PM (GMT -6)   
My prayers are with you and your family. I hope your nana gets better and so do you.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's. Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow through, diagnosed with Crohn's (22 years old 165lbs). Starting HUMIRA 9/10/2007.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 8/17/2007 7:45 PM (GMT -6)   

I am so sorry that your family is going through so much stress.  You have my prayers of support. Gentle hugs to you and I hope your discontinuation of the patch continues to be successful.


Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter


Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/17/2007 8:39 PM (GMT -6)   
Hi Steph Hope things improve soon certainly sounds like things have been pretty stressful for you lately my family been threw a rough year too and it sure is hard sometimes when it is people who are close to us .My thoughts are with you. Glad to hear your almost off the meds for pain. I was actually feeling like cleaning today so I started washing the kitchen down been over a yaer now and sure looking better. Just put that in there to kind of talk about how things are going here. Did have some argument with my one and only teen which gets me down a little. Usually I do cleaning when I get too down. Are you able now to do most your housework? hope in time you get some relief from all the things that are going on . lol gail

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 8/17/2007 11:17 PM (GMT -6)   
My thoughts and prayers are with you and your family as well. Hope your nana gets better soon.
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 8/18/2007 1:22 AM (GMT -6)   
Dear One,
I will keep you in my prayers. This is sooooo much for one family to endure. There will be better days ahead but I know they're impossible to imagine right now.! Try not to push yourself. Rest, rest and rest. your mind , body and soul are going through severe stress right now. I am praying for you. When you close your eyes, picture your friends in this forum, closing their eyes and praying.
I remember a time in my life when things were really , really bad. we were in a shelter for battered women, my children were both incest really didn't seem worth living. Every now and again, I would pray for peace.I knew things would not resolve themselves over night....but I desperately needed some respite from all this worrying and crying etc. I would ask God to please hit me on the head with a little baseball bat, so I would be in "ga-ga" land for a few days.....
miraculously enough, there would come this incredible peace over me like a wave. It would only last a few days, just long enough for me to regain my strength. ...I will pray for a little 'head bash' for you sweetie. I hope you don't find this offensive. I've always relied on humour to get me through things as well. I will pray that you receive some peace in your live.....a few days of no worrying, just resting!

Love and prayers...tired old Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Oct 2006
Total Posts : 1991
   Posted 8/18/2007 11:46 AM (GMT -6)   
I'm so sorry to hear that you and your family are going through such a troubling time. I'm ashamed to complain about my piddly problems when I know others like you are having a much harder time. I'll be praying for you. -Joy
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

Debra Ann
Regular Member

Date Joined Nov 2005
Total Posts : 188
   Posted 8/18/2007 7:08 PM (GMT -6)   
My prayers are with you and your family.

Veteran Member

Date Joined Jul 2003
Total Posts : 1205
   Posted 8/18/2007 7:53 PM (GMT -6)   
Dear Lord how sad. My heart hurts for you all.
God bless you,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 8/18/2007 8:28 PM (GMT -6)   
So sorry your family has had so much to deal with. I hope things get better soon for everyone.


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also taking Multivitamins, B Vitamis, Biotin, and Extra Folic Acid. (might add more when I do more research)

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