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brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 8/17/2007 11:43 PM (GMT -7)   
So I had my second colonoscopy today (my first was in March of this year). My doctor found ulcers this time, as well as what was there before, and said it was pretty red and inflamed. He's having me stop the Entocort and stay on the Pentasa... but I have to start using Prednisone. Then I need to talk with him about using Humira or Remicade. I don't really know much about those two medications, and I have searched on here a little bit about it. But if you guys could give me any personal experiences that would be great. I don't know if it matters too what age you are when you start using all this stuff, since I'm only 23.

I've officially finished my first week of law school.. well we really only had two days of class this week. It was interesting since I was doing my prep last night for the colonoscopy and trying to read for my Civil Procedure class at the same time. I'm just lucky I didn't have to run out of class to the bathroom at all.. and I even did ok when called on (they do the dang socratic method.. I just knew it would be today I was called on).

I'm still pretty gassy after the procedure (and have the weird rumbly tummy stuff going on...), and as gross as it sounds.. I'm not sure if all the prep solution is out yet. Been having little spurts.. I guess it's not unexpected since I had to drink one of the full gallons. It took me three hours! I don't remember it taking that long last time.

So that's about it for now. Start the prednisone tomorrow and set up an appointment with my doctor. He wants me to get bloodwork done next week and still thinks I might need to get the actual capsule endoscopy done. He's worried that if I'm getting these ulcers in what he can see from the colonoscopy, that it might be the same or worse where the patency capsule is getting stuck. So that might be my fun plan for winter break.

Thank you again for all your help. Without this forum I don't know if I would have called my doctor's office again last weekend. Now I really have the ball rolling and am trying to get this all figured out. Again, if you could give me any advice or anything you know about Prednisone, Humira, and Remicade.. I would really really appreciate it.

Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 8/18/2007 12:03 AM (GMT -7)   
Prednisone could really help in the short-term kicking you into remission. But then, eventually, you have to taper off of it. Usually other medications have to be exhausted before they will put you on Remicade or Humira. So when you taper off the Pred they'll probably to try to keep you in remission with Pentasa. But it all depends on the severity of your condition. If Pentasa doesn't work, or other meds, they may eventually put you on Remicade.

Congratulations on your first week of law. The Pred might make you kind of anxious, mood swings, etc. but it hasn't given me too many problems.

brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 8/18/2007 12:13 AM (GMT -7)   
I think he wants me on something besides Pentasa since I've tried doing the Entocort for a while, and then attempted to taper off it and just do Pentasa and I really flared. So he basically said that the Pred was for just the short term (like 2 months) because he was saying he doesn't like the drug. But that I really need to do something about this. So I'm guessing that's why he wants me to go to those.

How long have you been on Pred? Those side effects don't sound so fun.. especially for someone like me who's going to be anxious, moody, etc. from law school to begin with! :) But it's got to be better than this pain. Oh and he's letting me stay on the anti-spasm medication too, if needed (the pill bottle says clidinium but I think it goes by something else too). Thanks for your response!

Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 8/18/2007 12:42 AM (GMT -7)   
I've been on Pred for a few weeks now but I did it for about 3 months back in 2003. You should get used to the side-effects after a couple of weeks maybe. The extra energy might even help you to stay up and study. You'll also get real hungry. After a couple of months your face could become puffy and you might have acne. But you might feel so good in your intestines you won't care. But I don't know about the ulcers. I've never had any experience with those. If Pentasa didn't work, they might be open to putting you on Remicade. I don't know. I'm kind of tripping right now and need to go to sleep.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/18/2007 2:30 AM (GMT -7)   
Hi, Well for me I have been on Remicade for 2 years and in remission. I think its a wonder drug.
You can go to Remicade's web-site and read about it. www.remicade.com You can read about the drug.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/18/2007 5:04 AM (GMT -7)   
Hi Brit so glad you made it to your first classes that's a big wow...The pred. should bring you around and help the pain it works fast on me. A lot of people seem to have good results with Rem.I am on it and my fistula healed I am having to get mine upped but that is sort of normal for that drug. I will say that I don't have much pain anymore and am fuinally washing walls after almost a year and a half so consider it a good thing .I find with the pred. I smoke more not a good thing but is great on the inners. Best Wishes sent to you and am happy you managed to get to the Dr. lol gail

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/18/2007 6:10 AM (GMT -7)   
Great job Brit! Now you can breath a little easier in the class you were called on. Typically Profs call on everyone in the class once before they start calling on them again.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/18/2007 7:27 AM (GMT -7)   
Hey Brit, pred was almost a good thing for me in law school. It made me never want to sleep so I had more time than a lot of other 1Ls. I would be up at 3 am and actually felt like reading cases! Fitzy is right too, most profs keep track of who they call on so you should be safe for a while.

Hope the pred works for you and you don't have to stay on it to long.
Currently in remission!


brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 8/18/2007 7:07 PM (GMT -7)   
Thanks for all your responses! I will definitely check out the Remicade website. Is anyone here on Humira? Have any of you had the option to pick between the two, and if so, why did you pick the one you did? I'm hoping that I only get the "positive" side effect of Pred with the never wanting to sleep... as of now I feel like I could sleep forever and still not have enough energy. That was a major concern of mine for law school.

For all of you that have used, or are on, Pred.. how much do you take? I have to take two 10mg pills twice a day. Is that a normal amount? And have any of you had ulcers? I'm trying to figure out if the ulcers are caused by the CD or are caused by medication. Does anyone have any experience with this?

Well I'm back to reading for class... such a fun Saturday night. I figure I didn't do much work in the past 24 hours because of the colonoscopy so that time had to fall under my "fun free time." Thanks again you guys. Hope you're all doing well.
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