upping remicade doseage?

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daniellenikole
Regular Member


Date Joined Jul 2006
Total Posts : 77
   Posted 8/18/2007 9:13 AM (GMT -7)   
Right now I am on the standard 5mg/kg..started this about 5 infusions ago and now I am having problems all over again...my doctor has reccomended going to the max dose of 10mg/kg every 4-6weeks...did any of you that have done this see any great improvements??..also those of you on remicade then was put on an immunosurpessant(sorry sp) in combination..did that help at all??..tia
 


Danielle
25 years old..Just had my second baby(a son)born Feb. 26th..using 75mgs of Imuran...He is perfect in everyway: ).Been on the BIGGEST Crohns "rollercoaster"..been down to 88lbs (5'7) about 2yrs ago..very sick..Been on Pred, Pentasa, Entocort, Cortifoam enemas, Imuran, and flagyl and cipro for anal fistula. Currently only taking Remicade..and it has been my miracle* drug!
 
*  So far..and I do have my bad days: )
 

Post Edited (daniellenikole) : 8/18/2007 10:56:58 AM (GMT-6)


UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 8/18/2007 10:03 AM (GMT -7)   
Danielle,

Mine was doubled after a few infusions. It worked better after that.
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 8/18/2007 1:02 PM (GMT -7)   
I was doubled after nearly a year, and I had a delayed reaction. I'm sure you'll be fine, but watch for all the normal stuff, like rashes, fever, etc. I'm also on azathioprine (Imuran), and I'm not sure if it really helped out, but I was mainly on it to try and help stop a reaction from happening.
Crohn's Disease for a year and counting
Imuran: 150mg
Remicade: Every 6 weeks 10mg/kg, next infusion: July 26th
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/18/2007 4:04 PM (GMT -7)   
Hi Danielle I have been on Imuran since starting Rem. actually I am wondering what your symnptoms are .It is hard to say what helps with taking the two meds and pred. I read your first absc. story and was greatful it wasn't my rear but forgive me I did get a chuckle out of your description. Also was wondering at how many infusions people get the Rem. upped I had 4.lol gail

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/18/2007 4:15 PM (GMT -7)   
Mine was increased 2 years after I began and it lasted longer for me
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/18/2007 4:57 PM (GMT -7)   
Hi mine was increased this year and it helped me alot.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/19/2007 2:57 AM (GMT -7)   
I have had several increases over the past year and a half.  I am now at the max dose of 10mg/kg every 4 weeks.  I didn't really notice much of a difference or improvement in my symptoms; however, I just had a Colo a few days ago and the GI said there was an amazing improvement from my last Colo.  Still symptomatic, but healing inside, if that makes any sense.... Good luck to you!  Julie

Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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