Fissure gone! But still kind of hurt. What's up?

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snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/20/2007 7:30 AM (GMT -7)   
After several weeks I gave in to my doctors demands and let him examine my rectum. I was so terrified that I actually made myself a drink beforehand!! But, anyway, I checked out great! No sign of the fissure or others. Just for the sake of Catch 22 I did find out I was possibly allergic to the wipes I'm using and had a small rash.
 
However good the news, I still have some discomfort. I told my GI I would not actually call it pain, just a warm feeling sometimes after going to the bathroom and I feel like my sphicter takes awhile to go back to the resting stage. He doesn't think it's narrowing since everything comes out fine, but it really is annoying sometimes (like today). Let's just say I'm very aware that I had a large BM this morning.
 
Any idea what could be goinmg on and what I can do about it?
 
Thanks!
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 8/20/2007 7:39 AM (GMT -7)   
I'm not saying this is what your problem is but the only I idea I have is that it may be from inflammation in the area. I have lots of rectal problems and this is a regular occurance with me. It almost feels like a suppository is stuck in there.
Hope you get some relief soon. :-)
Ginger
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/20/2007 7:44 AM (GMT -7)   
Thanks Ginger. That sounds about right.
 
I just read your info about you Remicade experience so far. It took R about 6 months to really make me mostly normal. Hang in there!
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 8/20/2007 7:59 AM (GMT -7)   
I'm glad to hear your fissure is gone. I was just wondering what you did to help it go away and how long did it take? I have been battling with 2 of them and I don't know how much more I can take...I am ready to go ahead and schedule my surgery but I am afraid of more complications.
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/20/2007 8:07 AM (GMT -7)   

Decrapster,

 

I tried absolutely everything under the sun except Botox (was told it was temporary) or surgery. I had that thing for TWO years!!! When it started, I was all kidding aside, suicidal. It hurt so bad that I had to walk circles in my yard sometimes. The only thing that has worked is Remicade. It took 6 months to really start working, but the improvement was almost immediate (after second infuiison I felt about 75 percent better).

 

If Remicade is an option, please consider it. I fought it for two years being scared of it but I'm now so glad I did it.


Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 8/20/2007 8:19 AM (GMT -7)   
Thanks Snappy:
They want to start me on remicade but I am a bit skeptical bc I was just diagnosed in June. I was taking Pentasa and was now switched to Lialda. I was on Flagyl but had to stop bc of side effects. I have one fistula and 2 fissures but I don't really have tummy pains. I wanted to see if they would go away on their own but it's getting so bad. I know what you mean about walking around. I literally walked around my house 20 times yesterday afternoon. I just cried and cried bc the pain was so constant and unbearable... at this point I think I am ready to give in and try anything! We wanted to start trying for a baby but I guess those plans will have to be put on hold.
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/20/2007 8:28 AM (GMT -7)   

Oh Decrapster, you souind so much like me. And I'll tell you, my GI told me he uses me as his "worst case scenario" when talking about fissures to other patients! I used to drive to work standing up. Lost 30 pounds trying not to poop!

 

Anyway, Remicade is very, very good at taking care of rectal issues. If I could go back to May 2005 when I was first diagnosed, I'd start on the R right away. It has risks, but so does everything and you know you can't live like you're feeling now. Really, I spent many, many dollars and tried many different things.

Surgery is also a choice, but could be dangerous. I kind of decided that surgery would just "hide" the symptoms for awhile but Remicade would truly make them go away.

 

 


Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 8/20/2007 8:33 AM (GMT -7)   
Thanks for the kind words snappy. I'm hoping remicade will work!
Best to you....
Ginger
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 8/20/2007 8:37 AM (GMT -7)   
Thank you!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 8/20/2007 8:37 AM (GMT -7)   
Thank you!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY!
3 Lialda/day
Had to stop Flagyl because of numbness in my toes!
Seton Drain currently in...

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