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Snowski39
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/22/2007 1:21 PM (GMT -7)   
sad  
 
I have had Crohn's for about 45 years and had surgery for an illeostomy 24 years ago.  I have had few problems and not taken any medication other than B-12 injections, folic acid and recently Pentasa.  I am looking on suggestions for diet and other means of controlling the bleeding that I have fairly often.  I feel fine but do have a low blood count.  Any ideas or suggestions will be greatly appreciated.
 

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/22/2007 1:33 PM (GMT -7)   
Hello and welcome to HW, it is great to hear about the few problems in so many years I can only hope for the same. My bloodowrk that I had 1 month after my ileostomy reversal (which was 2 months ago)showed that I am anemic, I use to be then with diet I was able to fix that (I use to be able to tolerate many veggies before my revesal surgery red meat more than 2 times a week bothers my gut or it did before surgery anyway...trying to still eat a bland diet). Not having your ileum can affect absorption of certain vitamins and minerals iron being one of them B12 another but you are having that supplemented. To increase your red count I would suggest iron suppliments (your DR can test for different types of anemia, not all are fixed by iron...and iron can cause C). Certain foods such as red meat and spinach are rich in iron, spinach has calcium, B6, riboflavens etc in it...if you can tolerate it that is. The color of the blood in the stool can usually inform the dr if the blood is from the upper or lower GI tract. red blood is usually from inflammation in the large intestine, anal fissures, or hemmorhoids, (not sure if they left any colon/rectum in when they did your surgery. If the blood looks like coffee grounds that usually indicated bleeding higher up in the GI tract (most commonly the small intestine) however I am unsure what it would appear like in an ostomy bag since I had no visible bleeding when I had my temp ostomy. I would definitly have your GI do a colonoscopy, SBFT, and/or CTE to check on your disease and if it has progressed and to what severity.

I hope things get back on track for you its good to hear good stories post op as opposed to the horror show I have gone through this year, hopefully when I am fully healed up I will have a nice long remission...at least long enough to have a child or 2 with my husband.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Snowski39
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/22/2007 1:56 PM (GMT -7)   
Dragonfly,
 
Thank you for your quick reply.  I am seeing my GI specialist, again the second time in 24 years and went through all the tests last spring.  I am presently waiting on the results on some bloowork but with only my small intestine left I am looking for ideas on diet, etc. to avoid further cutting.  I have had the luxury of eating and drinking whatever I wanted to up until now but feel that some changes in my diet might help.  I like to eat healthy and exercise.  I eat very little red meat but when I do this seems to make me bleed.  When I've mentioned to other doctors in the past they said diet does not matter but my GI specialist said do what works and again that is why I am looking for other success stories when it comes to controlling bleeding which eventually would lead to scarring. 
 

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/22/2007 4:23 PM (GMT -7)   
I use to go to a different GI (before this yers spiral of my CD and the GI didnt want to change meds after a CTE...1 month later my ileum perforated) and they had 12 GIs there and they would share rooms. One GI actually had a list of the top 20 food items that are common food triggers. I dont have this sheet but corn, pocorn, red meat, tomatoes, nnuts and seeds were on the list the red meat was in the top 5. I dont know if you can tolerate spinach but that is high in calcium and iron...since my reversal I cannot tolerate spinach or raw tomatoes :( I havent ventured out beyond those and potatoes as far as veggies. You may want to look into taking a probiotic and/or eat lots of yogurt (make sure it says live cultures on the frozen yogurt). I have also heard that some probiotics do not need to go in the fridge, I have taken FloraQ samples from my GI but I had been using acidophalus (sp?) that helps with candida (yeast infections can happen pretty much anywhere in or on the body). Maybe start a food diary along with output in your bag, pains you get blood seen etc. Also be mindful that when I had my ostomy (and actually even after it was reversed) some meds go through me that are 12 hour meds and they never broke down. This happens with some of my vitamins and it happened with Oxycontin (with the oxy the writing was still legible on both sides of the pill). The pentasa is breaking down in me though seems like capsules work okay for me.

I dont know if you are lactose intolerant or not; I am not but I do try to stay away fromit when I flare. After getting your lab results back talk to your dr about an elimination diet maybe that way you can figure out what is causing the bleeding. Some people on here do well with the SCD diet others with the makers diet. You may want to start a low residue diet and slowly reintro some of your common foods you eat and if all goes well a week or 2 later add something else (ergo elim diet).

Good Luck
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 

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