After many tests and a surgery for gallbladder removal with no proper diagnosis, they finally sent me to have a small bowel follow through. There it showed Crohns in my illieum.
If you get no answers there you may want to look into some information for possible Celiac Disease.
Bless your heart! I teared up reading that!
That was similar to my last scope at the end of June. How could I possibly be dx'd with Crohn's from four different methods, but not have any sign of it now?!?!!?! But, remission is a tricky thing, especially if it's coupled with something else.
The reason I love my new doc is because he realized that I WASN'T faking it, just like you aren't, and that there was still something very wrong with me. That's when he decided to start treating me for severe IBS-D in addition to Crohn's. I had already done the whole Lomotil, NuLeve, dicyclomine mess...nothing worked. So on to Lotronex...not an easy drug to get, but for me, WORTH IT. I was in denial about having IBS in conjunction with my CD for a long time, and didn't think IBS could cause such severe symtoms. Maybe all that's true, maybe not. What I do know is that I'm starting to feel more human again than I have in over a year and a half since I got sick.
Find a GI who will listen, if Pfanner can't get you in, you may want to see one of the guys at Austin Gastro. I know another of us on here see's another doctor there as well. You might not have luck like I did with the first doc (it's taken me three GI's to find this one!), but keep finding someone who BELIEVES in you and BELIEVES you. We all here know that you are not faking, these symtoms are real. I can't tell you how much a relief it was to know that I had Crohn's! I know that's crazy, but FINALLY there was proof that I was sick, after so many tests showed nothing. And then when I didn't get better on CD meds, but my scopes came back saying I was fine?!?! Oh, I cried and cried. ...and my GI later joked with me about it 'The only person to ever sob when I told her I didn't see any Crohn's!'...but then he said 'I understand. You want there to be something that we can physically see and be able to say, with conviction, THAT'S it! That's what's wrong, and here's the surefire way to fix it! And that's why you cried when we didn't see that.'
He got it. He got me. He promised to have me better by my wedding (in October) and I'm on the way there. Know that you are not alone, and you will get help.
Let me know if there's anything I can help you with!