Anyone put on iron by infusion or injection?

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Aimee =)
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Date Joined Jun 2004
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   Posted 8/22/2007 8:21 PM (GMT -7)   
My GI has decided I need to go ahead and do something more aggressive in getting my hemoglobin up. We are running more labs and then I'll be referred to a hematologist to set things up to receive iron. I'm sure that doc will answer lots of my questions but in the meantime, I'm wondering how this works.
 
Can you share anything about it? I know just about nothing and are a teensy bit anxious about the unknown.
 
Thanks so much!

randynoguts
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Date Joined Jan 2003
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   Posted 8/23/2007 1:57 AM (GMT -7)   
i have done iron infusions many time overthe years.. i have done 1 liter versions of iron dextran, but got a bit of a reaction to it after about the third time. since then i have had Ferrlicet. smaller amounts more often. works great for me... its just a regular IV over about an hour or so. no biggie.
randynoguts 



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Dave D
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Date Joined Aug 2005
Total Posts : 404
   Posted 8/23/2007 6:04 AM (GMT -7)   
I have had 3 or 4 Infed Iron infusions. I did it at a local cancer clinic where they give Chemo. First they give you a small amount and wait an hour to see if you have a bad reaction. Once that has been determined, they will go ahead and give you what I call "rusty water." Depending on the dose, it may be an all day affair so take your lunch and a lot of reading, once I even took my laptop. Unlike a blood transfusion when you get instant benefit, this will take 3 or 4 days before you feel better and get your pep back.
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Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 8/23/2007 6:14 AM (GMT -7)   
So far I have had Infed Iron IV infusions twice

I like Dave did or was done at local cancer clininic
I ahd no problems

Wishing you all the best
Keep us posted plz

LYN
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princesa
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Date Joined Aug 2007
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   Posted 8/23/2007 6:58 AM (GMT -7)   
I also had iron infusions when I was originally diagnosed and was very ill. I was taken back to the area where chemo drugs are administered for the oncology patients. We sat in easy chairs and had food, books and T.V. to keep us occupied. Alot of folks take a nap. They hook you up to an I.V. No pain - other than starting the I.V. - no bad effects... it was actually very relaxing. Seems like my infusions took 2-3 hours. Being around oncology patients and folks who were even sicker than I was kinda put things in perspective for me. The nurses and the hematology/oncology doc were all very caring and upbeat. It was actually kind of enjoyable.
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Sad Mom!
Regular Member


Date Joined Aug 2007
Total Posts : 58
   Posted 8/23/2007 7:26 AM (GMT -7)   
Okay Aimee,
1 thing I want you to know so you don't freak out when you get there, is that hematology (blood) clinics and oncology (cancer) clinics are together. So if you are asked question by the staff or other patient about cancer, do not freak out. I am telling you this so that you know ahead of time and it does not come as a surprise. I hope you feel better soon, good-luck!

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/23/2007 8:21 AM (GMT -7)   
Thank you all for the responses! It sounds a lot like receiving Remicade, really, which I did for a couple of years (the hanging out in an infusion center, bringing stuff to do, etc.)

We have avoided the IV iron for years due to the added cost (this disease is killing me financially) but the labs just aren't looking good even with the Humira making me feel great. So frustrating.

I am actually excited to have a somewhat normal iron level and see how it makes me feel. It's been a long time.

meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 8/23/2007 10:31 AM (GMT -7)   
I have done iron via IV a couple of times before.  Both times I was already in the hospital and on an IV.  I had no problems either time and it really helped.
"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34

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