another update

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brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 8/23/2007 11:08 PM (GMT -7)   
So, for all of you who have been following along and giving me advice along the way.. I thought I'd let you know how my doctor's appointment went today. My parents went with me and we spent about an hour and a half talking with my doctor. Because of the ulcers being in the right colon and the active colitis or whatever there, he wants to be absolutely sure what he's dealing with before putting me on Humira or Remicade. He said the inflammation he saw during the first colonoscopy is almost gone, but there's the new stuff he saw this past Friday that worried him. Especially since I've been having these abdominal pains (the sharp jabbing ones). The Pred he put me on hadn't helped and so he decided that I should stop taking it. Probably a good thing since I can't sleep on it really and I've been bruising like crazy.

The biggest decision I made was to go ahead and do the capsule endoscopy even though the past two patency capsules didn't go through. My doc wants to make sure he knows exactly what I have going on.. especially since he can't see it. He told me how he had a previous patient that had nothing show up on CT enterogaphy's (like me) and yet when he did the capsule there were the strictures. So that's what we're going to go ahead and try and find out. To see what exactly is going on there. My hope is that by some miracle the capsule passes. But I am fully prepared that it might not, and that I might have to have surgery. I know that this would probably mean I would have to withdraw this semester/year from law school. But I really am in so much pain and it's affecting the way I live my life and study and everything. So one more year before really starting law school won't be the end of the world. I just need to get better.

The good news is that I got approved this morning by the disability resource center on campus. They have said it's ok for my profs to know why I'm leaving (so they don't comment on it) and have given me extra time on exams if necessary (since I might be in the bathroom). So now that has to get approved by the law school as well. I have an appointment for next Monday, so I figure I'll tell the lady who I need to speak with about these other possible scenarios. I should be getting the capsule endoscopy scheduled for next Friday. I'll have to miss class.. no way I could explain that to the other students without really telling them. So I'm going to ask my prof tomorrow about that and just let him know.

I feel like I'm making the right decision in this. I hope so. Any words from people who have gone through this before would be greatly appreciated. I'm a bit nervous, but am just glad I'm on a track towards getting some closure.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 2:25 AM (GMT -7)   
Hi Brit Hope things work out good for you never had the capsule done. I understand how you are needing some relief and glad that you have parents that help you when you need it. Keep in touch how things go .What did they do when your other capsules didn't go threw? Does sound like your Dr. is pretty well wanting to find out what is going on .I am glad you have a good attitude towards your health and putting that first in your life. lol gail

brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 8/24/2007 12:56 PM (GMT -7)   
Sorry about that Gail, I should have clarified about the patency capsules that he did before. They are dissolvable. But they are the same size and everything of the actual camera capsule. It's apparently a relatively new thing they can use. It's to give them a better idea of whether or not the real capsule will get stuck. And if the patency one does, then at least it can just dissolve and you're ok. So those two are long gone from me now. I'm still waiting to hear back about when my actual capsule endoscopy is schedule for next Friday. I hope I hear soon. My prof was ok with me needing to miss class, and I'm going to have a friend just send me the notes she takes that day.

I'm nervous but happy to be doing something about it. Plus I finally got some sleep again last night after not having to take the Pred. My doc also said I could stop the Pentasa since it wasn't doing much. So now I'm back onto 9mg of Entocort and Librax if I need it. It feels nice to cut out some of the pills. I'm just really hoping everything works out ok.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 4:15 PM (GMT -7)   
Hi Brit Thank You for clearing up about the capsules not had any of that done .I guess you are ready for surgery if needed and that might have eased your mind. Glad your getting some sleep it sure makes a difference I am still making my way off the pred.at 15mgs now, but moving good.Hope things work out good for you .How big are those capsules? lol gail Ps try not to stress out about your schooling glad you have a friend there that will help you with notes and stuff it makes a big difference when you get the info.Keep in touch will be waiting to hear how you do.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 8/25/2007 5:46 AM (GMT -7)   
I'm so glad you went to see the doctor and he's doing something that will give you answers. I hope it's something that can be cleared up with medications, but if not, it's better to know now and get it over with so you can get on with your life.

Let us know the results of the capsule, and keep working hard at school until you know what's going on, lol.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 

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