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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 8/24/2007 12:16 PM (GMT -7)   
I'm just curious.  Would the people who are or were on 6-MP tell me how much they took and what their weight is?  If you don't want to tell me your weight, that's okay.  I'm just trying to figure out if my doctor gave me too much and if it is possible to go back on it if necessary at a lower dose.  I really don't want to go on Pred and I'm trying to keep all my options open. 
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


NorCalJP
Regular Member


Date Joined Jun 2007
Total Posts : 86
   Posted 8/24/2007 12:24 PM (GMT -7)   
Hi Vicky,

I weigh 110 lbs and I'm taking 75mgs. However, the side effects are so bad my doc sent me in for tests due to suspected bone marrow suppression. Even though my blood values came out okay, he's still going to take me off of it and put me on Humira.
Dx Bipolar disorder, anxiety, insomnia '00
Appendectomy Nov '01
Dx Chron's summer '05
6MP 75mg, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin w/folic acid, Calcium, B12, Vit E

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/24/2007 12:47 PM (GMT -7)   
50mg, 5'11", 210 . . . no side effects. I have seen posts here from people who had leukopenia or other side effects at 75mg and dropped to 50 and the problems resolved.

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/24/2007 4:18 PM (GMT -7)   
5'5" and 160lbs. 100mg of 6mp no side effects.
Jodi

Remicade and 6MP


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/24/2007 4:24 PM (GMT -7)   
Hi Vicky Ask your Dr. what he thinks.I am not sure what exactly the DR. bases his amount on. lol gail

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 8/24/2007 4:40 PM (GMT -7)   
120 lbs, 50 mg per day. No side effects. Been on it for about three years.

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/24/2007 5:54 PM (GMT -7)   
My son is 6'1 and weighs 155 pounds. He is taking 50 mg daily although his doctor says for his weight he should be on 100 mg daily. He tried taking 100 mg daily but his liver enzymes went off the chart so it was cutback to 50 mg daily. They sent off bloodwork to Prometheus and that showed that even at a dose of 50, it was working perfectly.
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


MMac
Regular Member


Date Joined Dec 2006
Total Posts : 244
   Posted 8/24/2007 6:00 PM (GMT -7)   
5'5 - normally 148 but because of the prenisone up to 163 as of yesterday - 150mg and no problems or side effects.

MMAC, Wife & Mother of 3 (14, 13 & 7) - Diagnosed w/CD June05 (terminal ileum)

Asacol (9 daily), Imuran (150mg), Prenisone (15mg), Cipro (1000mg)Lunesta (3mg), Phenergan (when needed) - Remicade as of 7/24


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/24/2007 7:41 PM (GMT -7)   
I'm 5'9 130. I started at 50mg but went to 75mg. 100 was too much on my blood work. Although weight it part of it, I think the blood work is the best way to get a theraputic level though. was on the 50 a long time and 75 about a year. Never any side effects, even at 100. My lab results were always all over the place though.
Currently in remission!


Jusdebbie
Regular Member


Date Joined Jul 2007
Total Posts : 70
   Posted 8/25/2007 3:52 AM (GMT -7)   
I weigh 110 and i have been on 50 mg for just over a month.  No blood work yet.  I was tired at first but now im ok.

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 8/26/2007 7:26 AM (GMT -7)   
Thanks everyone for you replies. At the time I was about 240 and when he upped my dose to 150mg was when I developed all my problems. Within 4 weeks I was in isolation with bone-marrow failure for 11 days. He didn't order the prometheus test until I was in the hospital and it said I was borderline to be able to tolerated.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted 8/26/2007 9:43 AM (GMT -7)   
I weigh 140 and take 150 mg of imuran a day.

gogogirl
Regular Member


Date Joined Mar 2007
Total Posts : 69
   Posted 8/26/2007 6:54 PM (GMT -7)   
My Dr. measured the level of this drug in my body, because everyone metabolizes it differently.I have been on this for a lot of years, and could never really tell if this was helping me or not. But when my doctor increased my levels to where they should be- i started having some liver problems(found in my blood work)
I now take 1 pill a day- 50 mg, at one time i was up to 300+ a day.
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