Crohn's Arthritis

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hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 8/24/2007 5:39 PM (GMT -7)   
Do any of you who have joint pain and/or crohn's arthitis NOT have swelling or an elevate sed or C reactive protein? just wondering if this pain could really be a form of arthritis or Crohn's even though they tell me it isn't.
Awaiting official diagnosis....... maybe Chron's, Lupus, RA nobody know yet.
 
Homeschool mom 2 four boys (make that 3, just graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


Irish_Mom
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Date Joined Apr 2007
Total Posts : 385
   Posted 8/24/2007 5:47 PM (GMT -7)   
I've never heard of Crohn's arthritis to tell you the truth. My husband has psoriatic arthritis and ankylosing spondylitis and is also HLA B27 positive. My son with the Crohn's is also HLA B27 positive and there is a link between all of the above.

Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 8/24/2007 5:54 PM (GMT -7)   
What does HLA B27 pos mean?
Awaiting official diagnosis....... maybe Chron's, Lupus, RA nobody know yet.
 
Homeschool mom 2 four boys (make that 3, just graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 8/24/2007 6:02 PM (GMT -7)   
It is not unsurall at all to joint pain with crohns.It seems to go hand in hand for alot of people with crohns.
Curley
.........
 


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 8/24/2007 6:11 PM (GMT -7)   
There is such a thing as crohns related arthitis.
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I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...


NorCalJP
Regular Member


Date Joined Jun 2007
Total Posts : 86
   Posted 8/24/2007 6:28 PM (GMT -7)   
My knees are killing me. I went to an orthopedic surgeon and had a bunch of tests done and they told me that I was probably pre-arthritic and they said I had cysts in the back of my knees. I know it's related to the CD because the pain is not constant and I hardly ever have swelling and/or redness. I'm hoping once I start the Humira that the knee pain will go away as well.
Dx Bipolar disorder, anxiety, insomnia '00
Appendectomy Nov '01
Dx Chron's summer '05
6MP 75mg, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin w/folic acid, Calcium, B12, Vit E

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/24/2007 9:59 PM (GMT -7)   

hsmom24boys

HLA B27 is a blood test that checks for a certain protein on your white blood cells. The protein itself is called HLA (human leukocyte antigen) B27. Testing positive puts your at risks for certain autoimmune diseases such as ankylosing spondylitis, Reiter syndrome, psoriatic arthritis, and good old IBD. It's kind of a tricky thing because some people with AS or PA can still test negative, while some people that test positive never develope any of the above conditions. My husband was diagnosed with both AS and PA when he was in his early twenties. When we had our sons, doctors suggested that we have both tested when they turned five. Our youngest was negative and the oldest was positive.

MMMNAVY

I don't know if I'd call it Crohn's-related arthritis, but more of something that's tied into the HLA B27 stuff. The arthritis that you're talking about is most likely ankylosing spondylitis and/or psoriatic arthritis. My husband has both but doesn't have Crohn's. My son is HLA B27 positive and has Crohn's and UC but doesn't have the AS or PA as of now. Hopefully he won't get it because it's a pretty nasty and crippling disease process.


Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


Mandolen
Regular Member


Date Joined Aug 2006
Total Posts : 186
   Posted 8/25/2007 7:57 AM (GMT -7)   
I'm right there with you!! My tests came back negative, but I am having some intense pain in my lower back (sacrolitis) and knees. It feels like pockets of air in between the joints! I thought I might just be making it up...:)
Diagnosed with Crohn's 5.2006 by: Capsule Endoscopy, Prometheus Labs IBD-First Step
7.2006-Dx'd with Severe CD by Colonoscopy (Have had 3 scopes in 1 year!)
Gastroparesis, Severe IBS-D
Remicade, Prevacid, Colazol, Lotronex
 
 
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/25/2007 8:27 AM (GMT -7)   
Mandolen,
You might want to think about doing an ANA test, because of the remicade induced lupus feels very similiar to what you are discribing.


I have a high ESR,CRP, SED, and ANA. So mine is more RA induced by the crohns.
Forum Moderator 
I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/25/2007 11:23 AM (GMT -7)   
I just saw my Rheumy yesterday for a follow up after all the tests were done (except the HLA one, thats next) and I have been diagnosed with inflammatory arthritis due to my Crohns. I will start the Methotrexate shots weekly next week. Looking for relief from my joint pain. This med will help not only my joints but my gut too. I think everyone of us should see a Rheumy too.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 8/25/2007 12:18 PM (GMT -7)   
I have joint pains also. Lower back, knees, ankles and hips. My GI doesn't think it's related to Crohn's because I don't have swelling or heat related to them. I started to take cymbalta for disease related stress and one side effect is that my joints don't hurt nearly so bad. I've even been able to start working on the eliptical at the Y which I hadn't been able to do all year.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2041
   Posted 8/25/2007 1:20 PM (GMT -7)   
My arthritis is considered Crohn's arthritis. I've had numerous tests run, including at least 3 recent ANAs, which all were positive. Then I had the subset Lupus and RA tests run, which were all negative. Not suprising to me or my GI that the subsets were negative, but something my GP and Rheumy wanted to check.

Anyway, I rarely have visible swelling and that is usually only evident in my jaw area when it kicks up. I read it as "Crohn's-related arthritis" or just Crohn's arthritis. The most information I've ever read on it has come from CCFA.org.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2041
   Posted 8/25/2007 1:29 PM (GMT -7)   
I just noticed your personal info. I homeschooled my only child for eleven years until she graduated; she's a senior in college this year. How long have you been homeschooling?
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 8/25/2007 6:26 PM (GMT -7)   
Hi

I'm glad you asked this. I have been so puzzled by my own symptoms and didn't know anybody else was in the same boat.

I don't have elevated SED rate or CRP and I have horrible joint pain.

This all started after the birth of my child 2 years ago. The first thing to go was my sternoclavicular joint. This is the only joint that is visibly swollen and it has been exactly the same for over a year. MRI showed nothing, just soft tissue inflammation. "No arthritis", he said. "Well...what is it then?" "No idea". Here's your bill.

Heels hurt in the morning so badly I hobbled. Terrible, terrible shoulder stiffness and my neck went out 5x a month so I couldn't turn my head.

Then...the GI problems started. Ironically, when I scanned my body during this time, I was able to remark? "You know what the odd thing is, I don't feel achy like I did before"...Until now. Now I can barely walk, my hip aches so badly. And the pains shooting down my legs are starting again. No bloodwork turns up anything yet but I go to Oahu in September for a rheumatological evaluation. No Rheumy here on Maui mad

Nanners, I am glad to learn that they are going to start you on something that may make you feel better. I read that you were being evaluated and was looking forward to learning what happened. I really hope the methotrexate helps you.

BTW, hsmom, I am planning on homeschooling my child. Hopefully I will still be able to.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Currently taking Entocort 6 mg/day (tapering down), Asacol, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Gastritis is back - constant, gnawing hunger. Yech.

Post Edited (killerzoey) : 8/25/2007 7:29:07 PM (GMT-6)


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 8/25/2007 6:46 PM (GMT -7)   
I homeschooled my daughter when she was in middle school. It was really tough because I worked full time at the time. She was having a hard time adjusting to it and we were afraid she would drop out. It was a battle every day to get her to go to school before we started our little school house, because of some personal problems she was having. I would assign her work and then we would go over it when I got home from work. She started back to high school last year and is doing terrifically. She is in the top 10% of her class and is taking honor classes this year (sophomore) I'm not sure if it was just the personal attention she got with her mom or what but we now have a wonderful relationship which we didn't have before. I'm really proud of her. It was also the time when I was really sick with CD but didn't know what it was. I just know I would come home and have a hard time functioning. Sometimes I would take a nap and then we would do school work.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 8/28/2007 3:35 AM (GMT -7)   
I went to my Rheumy last Wed. He looked me straight in the eye and said You don't have arthritis and you don't have fibromyalgia. I don't know what is wrong with you and I don't know how to treat it.  You'll have to learn to live with it and take tylenol.  I told him that if tylenol was getting the pain, I wouldn't be there talking to him.  He gave me Ultram and another muscle relaxer.
The pain was terrible over the weekend so I went to my internal med MD yesterday.  He said he didn't have anything new to try and would NOT give me any Lortab,  He suggested I see another Rheumy in Atlanta.
 
Yes I homeschool my 3 youngest boys.  We are in our 7th year of homeschooling with about 10 more to go. My eldest graduated this past year and is still searching for his vocation. He is a big help with the younger ones and is writing a book so I am satisfied with his break from schooling.  I have a 13, 10, 8 and am teaching 2nd grade, 6th grade and high school with a little 8th grade thrown in there.  I also work part time and am a pastor's wife.  Thank you Lord for my life.


Awaiting official diagnosis....... maybe Chron's, Lupus, RA nobody know yet.
 
Homeschool mom 2 four boys (make that 3, just graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 8/28/2007 6:59 AM (GMT -7)   

hsmom24boys,

I know how you feel. My rheumy told me to take tylenol also. I have arthritis in my back plus my hands and possibly some other places. My rheumy refuses to give me anything else. He also said not to take too much tylenol because it could damage my liver. I keep saying the tylenol does not take away the pain.

I recently broke down and cried with my hubby and told him I can't imagine my back and some other joints will hurt for the rest of my life. I am 31 and that seems like such a long time to hurt.

I am also having a EMG nerve test done soon for some numbness in my arms and hands. I have had this for years but it has gotten worse lately. (I am extremely nervous about this test but I am going to go for it)

I also plan to visit a pain clinic once my insurance is settled. I am starting a new job next week and don't want to mess with it right now cool   I honestly don't care if they give me drugs, I would even try some kind of relaxation techniques.... I want some way to cope better.

I hope you get some relief soon!!!  I really wonder if your Dr is incorrect and you may have Fibro afterall?

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also taking Multivitamins, B Vitamis, Biotin, and Extra Folic Acid. (might add more when I do more research)


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2041
   Posted 8/28/2007 7:32 AM (GMT -7)   
I hope you can find another rhematologist. Not all doctors know much about the arthritis that accompanies Crohn's. Did you have any xrays or an MRI done? My rheum. wants an MRI done on me to see if I have damage at the microscopic level, but I'm putting it on hold until after my daughter sees a pulmonologist and we find out what's going on with her. She's been sicker than I have.

Just to have a doctor say something and act like YOUR pain and suffering isn't important is maddening. WE know your pain and suffering is REAL. I live in constant pain, but I get more help from my GP than my specialists. The rheum. did prescribe Ultram (tramadol) but it made me itch and break out and actually caused my joints more pain. So I think I'm allergic to it. My GP then prescribed Talwin, and it's been a life-saver. Apparently, it's not prescribed much because I initially had to call ahead to the pharmacy so they can order it.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 8/28/2007 8:50 AM (GMT -7)   
I now have joint pain from Remicade!
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 8/28/2007 6:48 PM (GMT -7)   
Arthristis from Crohns is called enteropathic arthritis. My Rheummy dx'ed me and I have been taking MTX shots for it ever since. Get it looked at ASAP
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 1/6/2010 9:38 PM (GMT -7)   
 my boy is 13, was diagnosed 4 years ago. prednisone gave instant but temporary re;ief immuran left him sick and arthritic. two years ago remicade was recommended. we took him aff all meds, and now work woth diet( organic, nondairy, no gluten mo sugar, probiotics and enzymes, lots of suppliments) and environment( no carpet, stainless steel cookware. air filters etc. holidays can be rough, but all in all, he is doing better. the only draw back is lack of growth. once the immuran was stopped, the joint pain went away
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