Don'tcha just love how unpredicable this disease is? I've been singing the praises for Remicade since I started on it 8 months ago, it's worked great for me. However, last week I was a week late in getting my infusion due to scheduling conflicts (moving back to school) and I started to get diarrhea again. No big deal, I figured the symptoms would clear up a few days after my infusion like they always have. Well, I got my infusion a week ago... and I haven't had any change in symptoms. It's just like I've never been on the Remicade. I am feeling awful. Lots of diarrhea, pain, nausea, night sweats, feeling totally drained of energy, etc. Not a great way to start off the school year. But the worst thing has been that I've been absolutely STARVING all the time. I cannot stop eating, and I never, ever feel full. This has been going on for about a week. It's insane... even though the food is giving me more pain and diarrhea, I am constantly munching. I'm eating stuff that's ok for my stomach- low residue... but seriously! I'm gaining weight, too, which is the last thing I need.
Strange thing is, I went through something like this when I first started to get sick... constantly eating, never full, feeling like I was absolutely starving all the time, and gaining weight. At that time I was having diarrhea and lack of energy and all that good stuff, but I didn't see a doctor due to lack of insurance (big mistake, I know). It was months after that when I started to have the severe symptoms of rapid weight loss and a horribly painful abscess that finally brought me to the doctor.
The worst part is that I have so little energy that I can't get off my butt and get some exercise. Just walking to and from the bathroom (10+ times a day) is enough to make me feel short of breath. I took two naps today and did little else, besides eat. My next scheduled GI appointment is at the end of September.
What could be going on? Is the Remicade not working anymore, am I going back into a severe flare again? Why am I so hungry all the time, and what can I do about it?! Does anyone else get the munchies with Remicade? I have before, but never this bad!