Yeah I know weird topic but I called my pcp and he had not called back, my mom has his cell # so I called him on that after waiting an hour. At first he didnt want to put me on pred thinking that the last time I was on it was when I had my ostomy and all those issues. I was actually 4 days away from stopping pred when I was admitted into the hospital back in Feb.
The pred I wanted is for my severe joint pain. His office called 5 RA Drs and the soonest appt I could get is Sept 18th. My grandmother passed away on Friday so I have the wake and funeral and I can barely walk. I have used the Dilaudid and oxycontin with no real relief. I have used the lidoderm patches too. I use to be on Remicade but since I changed my GI back in February when all heck broke loose he wants me to see a RA before starting me on remicade or humira. My pcp feels that is the right coice as well. My GI did call in 3 months of Entocort for me telling me to hold off as long as I could but being that it is nonsystemic I dont see how it will help my joints. I am 28 and walking around I feel like I should be much older. It hurts no matter what position my legs are in, the knee and hip are the worst and they are on oppsite legs therefore my limp is severe.
Hopefully the medrol dose pack will at least give me relief for the next couple of days to get me through the wake and funeral, I am an only child as is my mom so its really really hard. She took care of me when I first got Dx she had taken early retirement and it just happened at a good time so I was never without a family member when I was 8 and in the hospital.
My Dr has me calling him tomorrow to give him an update and I think I will set up an appt with him this week since my mom is taking the week off and my husbands cars wheel is seized up and wont move plus a hornets nest is in the door crack. When I go I think I am going to bring paperwork about gettting a handicapped license plate. I wouldnt use it if I feel well but like this and walking for so long I almost cry in pain sometimes I do cry in pain.
I am wearing dressy shoes both days tomorrow I am wearing the higher heels since I will be able to sit and wont be walking around much. Then tuesday Ill be wearing lower heals just wont be able to kneel down. I hope the pred kicks in at least for tuesday.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987