Question for remicade users

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want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 8/27/2007 8:44 AM (GMT -7)   
Does anyone get headaches right before it is time for your next infusion?  Like if you get treated every 8 weeks, do you get headaches in week 7?  Just trying to figure out if this is CD related or not, my head has been pounding for days and my remicade got pushed out a week due to the remicade nurse being out. 
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 8/27/2007 1:51 PM (GMT -7)   
I dont get headaches in week 7, but I do get flares.   Do you have D alot that week? Maybe you're dehydrated.
 
 
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/27/2007 1:59 PM (GMT -7)   
Hi Want No at least I don't remember having any maybe the headaches are from your app. getting bumped. lol gail

want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 8/27/2007 3:08 PM (GMT -7)   
The appoinment getting bumped did give me a headache, lol! I thought about the dehydration factor too because I have had a lot of D. I have been downing gatorade and water all day in hopes that it will help.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 


Faizi
Regular Member


Date Joined Oct 2006
Total Posts : 451
   Posted 8/27/2007 9:15 PM (GMT -7)   
My daughter never got headaches like that. Remicade was a life-saver for her. Unfortunately, she developed antibodies. Now on Humira and Imuran and doing all right. But Remicade -- the first few infusions kicked hell out of Crohn's.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/28/2007 2:53 AM (GMT -7)   
Hi I never get headaches like that. I have been on Remicade for over 2 years. It sounds like you could
be dehydrated.I would only drink water. The average person needs about 8 glasses of water. We need
to doulble that a mount of water.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 8/28/2007 1:04 PM (GMT -7)   
want,

Did the Water/Gatorade help?
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 8/28/2007 6:36 PM (GMT -7)   
No headaches, just flares the last week, letting me know I need another infusion.

want_2_be_well
Regular Member


Date Joined Sep 2006
Total Posts : 181
   Posted 9/7/2007 9:20 PM (GMT -7)   
got the remicade yesterday :) The headaches finally went away but I was chugging water like a mad women, spent even more time in the bathroom due to all the water! Thanks for the input.
want_2_be_well AKA Mel
32 year old Female
Diagnosed with CD 2006, had been ill off and on for over 10 years.
Also have seasonal allergies, milk allergy, and asthma.
CD Meds: Remicade every 8 weeks, Imuran 50 mg, Pentasa
 
 

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