Anyone take urocit k for kidney stones?

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formedstooler
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 8/27/2007 6:42 PM (GMT -7)   
It seems my doc attributes the stones to crohn's.  Unfortunately I get big stones when they try to pass....so much fun...has anyone taken this med before...just get the script today and am sad I have another med to take "indefinately".
 
 
DX AT 39 (2005)
PENTASA 4000 MG
FOLIC ACID
B12
TAPERING OFF PRED (YEA I LOOK LIKE A BALLOON FACE)
 


bk1981
New Member


Date Joined Sep 2007
Total Posts : 1
   Posted 9/4/2007 2:50 AM (GMT -7)   

I was recently dx with CD in 6/07, but have passed between 17 and 20 (i've lost count) calcium oxalate stones in the past 6 years.  Several years ago, I was prescribed Urocit K and took it 3 times a day for 2 years.  It had no effect on my body forming the stones.  Urologists and Nephrologists both told me that I was just going to have to deal with it.  I've done well in the last several years, but now it's somewhat difficult to differentiate the "I'm passing a stone" feeling versus "It could be my crohn's." That has become very frustrating.   Strangely enough my GI has told me the same thing that you were told.  The stones were being caused by the crohn's.  I don't know how often, what type and how big they are for you, but I would at least get a BMP to show electrolyte levels, especially calcium and if elevated, get a parathyroid hormone level.  A 24 hour urine collection is valuable, too. I would hope your doc's have done this already, but I've learned the long, hard way.  Urocit K works by alkanizing the urine and removing the waste before it has time to clump together and form our favorite friend.   Urocit works by changing your electrolyte levels and we are already prone to having that problem from the CD.  You should not take it if you have any peptic ulcers, either.  It may actually make you more succeptible for developing them.  I see you are tapering off your roids, too.  I'm not sure your current dose, but if your adrenals aren't back to their best, this med and adrenal insufficiency is a no-no.  They need to be operating in their prime. Without rambling too much more, basically my advice is to not jump into this overnight.  You are not going to see a difference overnight.  This med is only good at preventing future formations.  If you've had a recent IVP or CT and know you have more stones, there's only one way for them to get out.  Do your research on this med as it pertains to you specifically.  I thought the stones were miserable, but I'll take a stone anyday before another flare up.  Good luck in your research and decision making.  I'm still learning alot about the CD stuff, but I know stones inside and out.  Take care.

 

Brandon

26/m

dx w/ CD 6/07.  IC valve occlusion (I barely escaped a colectomy), chronic renal stones, Migraines, Asthma, Degenerative disc disease, tonsillectomy '04, malignant submandibular lymph node removal '03, LeFort I fracture with facial/maxilla reconstruction '02, septoplasty, PTSD-Katrina (I was an EMT Paramedic (now resigned) in the city. Like many other colleagues, we were helpless, with everything ruined and had to turn our backs on those who needed us, in order to save our own lives). It was something I wish no one would ever have to fear again.  Living it would be impossible.  God Bless all those affected, and somehow we will heal...eventually.

Solu Medrol tapering down, Pentasa, Entocort, Prilosec, Kdur, Celexa, Robinul forte, Reglan, Xanax, Librax, Phenergan, Midrin, Toprol


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/4/2007 6:30 PM (GMT -7)   
Yes, CD causes stones. It seems like inflammation in the small intestines can impair the absorption of certain minerals thus contributing to stone formation.
I am currently on Urocrit, but its only been 6 weeks or so. way to early to tell if there are any results that way.
One thing we CAN do to prevent or slow stone formation is drink lots of lemon/limeade & other Citric acid drinks. I also do this now..

Matthew

wbisme
Veteran Member


Date Joined Jan 2005
Total Posts : 1507
   Posted 9/7/2007 6:56 PM (GMT -7)   
Citric acid is good as a means of (potentially) preventing the most common type of stones. But, it can have no effect or possibly increase the odds of other types of stones. Be sure you know what type of stones you form and the chemical composition of your output before attempting any home therapy (and that only under physician's guidance, etc., etc.)

Urocit-k can do more than prevent stones. Stiff doses of Urocit-k can actually dissolve moderately large uric acid stones in place. However, stiff doses of Urocit-k can also induce CD flares.

Some urologists seem to think their patients who have CD know nothing about the possible effects of Urocit-k. Some become upset or even angry when proven wrong. Some patients of such ignorant and arrogant urologists spend the next year or so after taking a single dose of Urocit-k in an uncontrolled CD flare.

The bottom line: stones are a major pain. Urologists, on the other hand, are a cosmic pain.

Cheers,
Crohn's Disease, Diabetes T2, Chronic Kidney Disease, Chronic Pain, Kidney Stones, Ureteral Strictures, Reactive Arthritis, hyperuricemia, Secondary hyperparathyroidism, Vitamin D malabsorption
Imuran, Prinivil, Zocor, Prandin, Alka Seltzer Gold (for alkalinization), Low-dose Aspirin, Allopurinol, Oxycodone, Calcitriol, Amitriptylene


formedstooler
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 2/27/2008 5:01 PM (GMT -7)   

Hey everyone,

 

Well I took only a few doses of the urocit K and stopped.  It didn't make me feel good.  I have been fine with my decision except now I have to go back to the urologist for my 6 month check up and tell him I am not taking the med he prescribed.. wish me luck...last time I saw him he talked about referring me to a Kidney specialist.

The way I figure it is all I need to say is it upset my digestion and he can't argue.  I will have a KUB Friday also, so I will find out how many stones are left ...last time we check it was only one.....

 

 


DX AT 39 (2005)
PENTASA 4000 MG
FOLIC ACID
B12
 
 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 2/27/2008 6:02 PM (GMT -7)   
I hadn't noticed much in the way of side-effects, myself.
But I haven't refilled the rx yet, either..

Matthew

pattytx
Regular Member


Date Joined Jun 2006
Total Posts : 139
   Posted 2/27/2008 8:47 PM (GMT -7)   
I am glad that I am not the only one enjoying the nasty stuff! Are any of you able to take it in pill form?  The liquid is vile to me (not the "pleasant tasting" it claims to be)- especially when taken 3 times a day.  I have continued to struggle with it, stopped for awhile, had a resection and am trying it again-not fully as I should.  It seems to cause more diarrhea which can't help the stone prevention end of things. I am a patient at a mineral metabolism center at UT Southwestern.  We'll see what else they come up with next to try.  Does anyone do anything else?  My citrate levels are always very low.

gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/27/2008 11:25 PM (GMT -7)   
For some reason I thought the name of the drug read "U Rock It," which is just some seriously poor humor for a med that's supposed to be used for kidney stones....

sorry humor is getting the better of me today.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore

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