Is anyone on Colestipol?

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Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/28/2007 6:26 AM (GMT -7)   
At my most recent appointment with one of my GI's he prescriped Colestipol (4 tabs 1X Day) to try to help with the bile salt D. I took half the dose the first day and was so bloated and uncomfortable that I haven't even tried to take it again. My question - Does your body get used to it and the side effects diminish over time? I could put up with being that uncomfortable for a week or so, but not on a daily basis long term. I would rather deal with the D than the bloating, cramping and just plain misery. I looked 7 months pregnant and I couldn't put any of my pants on!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 8/28/2007 6:52 AM (GMT -7)   
Hi Zanne:

Is this a brand name for cholestyramine in a tablet form? I take cholestyramine for bile salt diarrhea. It comes in a powdered form. When I first started taking this drug I had the same issues. I found that I didn't need any where near the prescribed dose to control my symptoms and, indeed, I believe if I had continued to take the prescribed dose (one gram per day) I would have been unable to continue. Instead I tinkered with the dose and have arrived at a happy compromise with my GI's full support.

I take about one-third of the package (1/3 gram) at a time and not necessarily every day. I never take the medication again until I have had bms. I take it as a preventative only if I :
1) know I will be eating a high fat meal
2) am going somewhere and it will be inconvenient to have to use the washroom.

Otherwise I take it when I have symptoms that I know relate to bile salt diarrhea. (If I see fat in the toilet.)

The compromise is that I try to maintain a relatively low-fat diet. That has really helped in reducing my dependency on cholestyramine. It is a lifesaver when I need it, but I don't like the side effects either. By using as little as possibe (that will vary from individual to individual and meal to meal) and only when needed, I have found a way to "have my cake (just not every day) and not suffer a belly ache"

Remember, cholestyramine's principle use is to lower cholysterol levels. We aren't using it for that and the dosage really can be varied to fit our individual needs.

I have been told, however, that with regular use the bloating etc does dissipate. Sort of like when you start adding fibre to your diet. Apparently initially it causes cramping and bloating and eventually that settles down.

I was in your position 12 years ago after my first resection and gave up on cholestyramine because i was taking it as directed and I decided the cure was worse than the disease. After my second resection two years ago, my symptoms were so much worse I had to try it again. I'm glad I found a compromise that works well for me. I'm only sorry i didn't get more creative 12 years ago. I know you can get used to that DD but it does sap your energy and otherwise mess up your quality of life.

For what it's worth ...
Belleenstein:

30+ years living with Crohn's.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/28/2007 7:48 AM (GMT -7)   
Yes it is the pill form. I have had bile salt issues for almost 20 years and have tinkered with the powdered dose too. But because I hate taking it and hate the side effects I tend to only take it when I have to be on a plane or a long car trip. I too found that about 1/3 of a packet was about all I could tolerate. The doctor seemed to think this would be a better fit. Easier tolerated and taken. The one dose didn't really seem to work out that way. It didn't really work as well as the powder but had all the side effects. I was just kind of hoping that like adding fiber, the side effects might lessen over time and that someone else might be able to give me that knowledge. I'm not like a kid, I can learn from others. I would rather not take it for a week or two only to find out that the side effects don't get better. :-)
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ANNINA
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/7/2011 7:39 AM (GMT -7)   
I started on Colestipol Three weeks ago and have a few bad symtoms bloating and indigestion. I find this web site helpful and am going to try the calcium citrate. I also take fiber but wonder if it really helps?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/7/2011 11:16 AM (GMT -7)   
It can take a while for the fibre to kick in so be patient, best of luck to you all!
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~
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