Please help me!!! Has this happened to anyone before?

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New Member

Date Joined Jun 2007
Total Posts : 12
   Posted 8/28/2007 9:04 AM (GMT -6)   
I have been feeling like I am coming down with the flu lately but my temp has stayed just below 100 for about a week. Yesterday I got out of my car and screamed in pain. My lower stomach on the left hand side and under my bellybutton was on fire. It felt like my intestines were trying to rip apart and through my stomach. I could stand up straight and it hurt even when i layed down. I had to call my GI after hours and he told me to stop my 9mg of entocort. Well now I'm going through withdrawal of the entocort and cant keep out of the bathroom..I have an appointment to see him today but it sounded to me like he didn't care at all. Has any one ever experienced this horrible pain before? I also don't think it was smart of him to cut me off the steroids like that.

Veteran Member

Date Joined Jul 2003
Total Posts : 1205
   Posted 8/28/2007 9:14 AM (GMT -6)   
can they do a CAT scan to check for blockage or abcess

hope ou feel better soon, hugs sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

New Member

Date Joined Jul 2007
Total Posts : 5
   Posted 8/28/2007 9:21 AM (GMT -6)   
I had a similar experience not long ago. I had severe pain that came on suddenly and
then stayed overnight and into the next day. I too, couldn't move or stand straight, or walk.
My doctor saw me and put me in the hospital immediately. A CT scan showed a bad
area in the lower left side. That's where the pain was mostly located too. Then, I had a course
of two antibiotics and some prednisone, first through an IV and then pills when I got home.
Hope your doctor takes this seriously. It could be a blockage or an abscess as noted above.
Good luck.

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 8/28/2007 10:25 AM (GMT -6)   
It's because you are trying to go off of Entocort.  I tried also and was in pain and felt HORRIBLE.  Pretty much as bad as this Remi is making me feel, maybe even more awful going off of Entocort.  I tapered off and once I stopped, I was going through bad withdrawals, I had to start taking at least one per day and that is what I am on now. I so want to stop, but am so afraid of going through that again.  Try taking at least one and then go from there, you will probably feel better soon if you do that.  Not sure how I am going to ever go off of it.
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.

New Member

Date Joined Aug 2007
Total Posts : 18
   Posted 8/28/2007 3:31 PM (GMT -6)   
since all of us crohn's sufferers are used to having stomach discomfort, we often miss the symptoms of other things going wrong. In mid april I started having some stomach discomfort. a very tender belly. a few weeks later, that turned into an excruciating burning, tearing feeling. My belly felt really heavy and the ripping, burning pain was felt mostly during the first 4 or 5 hours of my day. got to the point where I could hardly walk. Had a CAT scan that showed an abscess 4 x 6 cm. went to have it drained and radiologist said the abscess was only small and drained out 8 cc's and said he got it all. I thought I would take a course of antibiotics and would be better. No such luck! the pain was still there and 1 1/2 weeks after getting the abscess drained ( or so I thought) it burst through the side of my belly. I was bandaging myself up 4 and 5 times a day because this stuff kept oozing out of my belly. Had another scan shortly after and with the abscess now busted and drained, they could get a better look at the bowel. Turns out it was worst that originally thought. Had surgery on july 4th. 1 1/2 feet of small bowel removed and almost all of my colon. Had a hard time. Was so sick before surgery so recovery is slow. would love to hear from anyone who had similar experiences.

Regular Member

Date Joined Jun 2007
Total Posts : 340
   Posted 8/28/2007 3:39 PM (GMT -6)   
Dani- are you male? I can't tell from your name. Anyway if you are female, it could be an ovary. If you are male, then I would assume you probably don't have ovaries. lol. Although stranger things have happened!

Jenn- I think he mentioned that the pain happened BEFORE he tried going off the entocort, so the pain can't be from that. The diarrhea obviously is from that though.

Just make sure you let your dr know how serious it is to you. We are all used to dealing with pain on a regular basis, but when severe intense pain happens, usually we have a gut feeling (haha) that something just isn't right.

Good luck and let us know what happens!
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco

New Member

Date Joined Jun 2007
Total Posts : 12
   Posted 8/28/2007 5:16 PM (GMT -6)   
I am a female :)
My doctor says he thinks it was a "muscle spasm"...ive had muscle spasms before..this was NO muscle spasm..he is having me get a blood sample and urine sample. I feel like he isnt taking this seriously. That pain was by far the worst pain I have ever felt!!

Veteran Member

Date Joined Jun 2005
Total Posts : 838
   Posted 8/28/2007 5:38 PM (GMT -6)   
Be careful with what you are eating. If it was a blockage you would not be using the bathroom at all except to urinate. As for the entocort i was on 9mg for a long time and they just took me off of them all at once. Good luck i hope you feel better soon. Barb

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 8/29/2007 4:06 AM (GMT -6)   
Welcome Danie,

I am so sorry that you are having to deal with this. To answer your question yes I have but on the right side not the left.I have had times that I felt like some one had a torch and was burning my intestion(sp)and it het's like well you,any way I was put in the hospital because I had a blockage.Now I am not saying this is your problem and I'm not trying to scare you.I was in the hospital for about a week and the whole time I was there I could not have any food and very limited fluids.Because even fluids would make me throw up.I was allowed ice chips to keep my mouth from being so dry.You did the right thing by calling your GI.Please post when you find out what your GI has to say.

Good Luck and I will say a prayer for you.

New Member

Date Joined Aug 2007
Total Posts : 18
   Posted 8/29/2007 7:20 AM (GMT -6)   
If it was a blockage, your bowel habits would have changed.  (not being able to go) With me, the burning, tearing pain was caused by an abscess.  Other than the pain, nothing else changed.  No crampy pain and trips to the bathroom hadn't increased.  Maybe you should request having a CAT scan done.  We know our bodies better than our doctors and if I learned anything from my experience with this disease, it is that you have to be persistent.  Good luck.

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 8/29/2007 7:45 AM (GMT -6)   
Really severe sudden onset pain in that area could also be due to a kidney stone, which CD patients develop more often than most folks.
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