IMURAN....1st step-Help!

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laura l
Regular Member


Date Joined Oct 2006
Total Posts : 94
   Posted 8/28/2007 8:57 AM (GMT -7)   
Hello...everyone!! i last posted a couple of weeks ago, trying to get some feedback on  IMURAN. well...with the 3 options my doctor gave me, i have decided to go on the imuran  and hope for the very best! today i went for my blood work so once the doctor looks at it (they should rcv the blood by friday) and everything is fine, then i will start it on monday. yep...d day is monday. so here is the scoop, i still stay on pentasa (500 mg 2-4x/day-100mg dicetel-1-3x/day and then......100mg of imuran which works out to taking 2(50mg) of imuran in the morning, same time every day. now....what i am having trouble with is the "fear of the unknown" all of you's were so wonderful with sharing your experiences with me on imuran and i have to say that there was alot more positive than negative but the big BUT.....is...i am so scared! i am scared because of all the side effects that you could get etc. i am allergic to being nauses and i am scared of that too! not to mention all the more possible serious side effects. i have been on pentasa for years....and i know it is time to change the meds for the better of the crohns. i am just worried and scared and i guess it's natural right? because all of you have always been there for me in times of need, i am asking if there is anything that could re-assure me it's going to be ok? i would love to hear all stories for the ones who didnt get to share theirs with me to re-assure me that it is going to be ok come monday when i start the imuran. wahhhhh! have any of you's felt sick when first starting it or were all of you's ok and didnt notice anything? please share and help me to get brave for monday. (i know they monitor me very closely with blood work etc. but its the other possible side effects such as joint pain, dizziness, sick etc. which are freaking me out!!!) thanks for listening and sorry for such a novel.
Laura lee-diagnosed with crohns-1986/1st surgery-1998 small bowel resection,(removed part of illeum/appendix) 8yrs of remission-Oct'06 diagnosed with crohns being back! 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/28/2007 10:31 AM (GMT -7)   
Hi Laura lee,
Well I have been on Imuran for over 2 years and I am doing fine with med. I have no-side effects
from the Imuran. For me I put up with all the blood test. My prayers are with you and hope the
Imuran helps you.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/28/2007 10:44 AM (GMT -7)   
I tried Imuran a few years ago. Most of the initial side effects i.e. nausea and fatigue can be offset by taking it at bedtime instead of the morning. That way you sleep thru any side effects. I had to quit taking the Imuran because it didn't help me at the time and I ended up needing surgery anyway. Most people do fine on it, I wouldn't get yourself all worked up about it. Just remember that it takes a little while to kick in. Good Luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


laura l
Regular Member


Date Joined Oct 2006
Total Posts : 94
   Posted 8/28/2007 11:01 AM (GMT -7)   
Thanks so...much for your repies! i am trying to stay strong and think positive but always a help when you hear others experiences!! monday will be a big day for me and thanks again for your support!!

Laura lee-diagnosed with crohns-1986/1st surgery-1998 small bowel resection,(removed part of illeum/appendix) 8yrs of remission-Oct'06 diagnosed with crohns being back! 

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