life.....I LOVE IT

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Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 8/28/2007 10:43 PM (GMT -6)   
well, today I am not on any meds for Crohns....Not my decision, just has to be for the time...and it has been a struggle, but I am working on it.
I have been on the breast cancer site these days, just dx'd with breast cancer 2 weeks ago.
I have 3 lumps one cancer, 1 not and the 3rd is up for grabs..I will know more after the lumpectomy.
I meet with my plastic surgeon on thurday, I am hoping to have  surgery for this within the next 2 weeks,
As long as there isnt any cancer in the nodes, or anywhere else I am looking at radiation a lumpectomy with reconstruction....lolol...have to admit I am getting excited about the tummy tuck,,lololol ater all those years of
prednisone, I dont know which sags more.lolol
Anyhow.....I am hoping to one day get back on Humira, but for right now nothing, and it isn't pretty.
I had one of those (accidents) in my card the other day..first time in a year that happened, but I am sure the stress and the lack of meds isnt helping.
My GI wants to put me on pred., Buttttttttttttttttttt..I said NO No NO
I just cant go on prednisone have my breast removed, radiation and pred., (has he lost his mind)
lolololol I would be a raving idiot...I just can't do it, so I am using alot of anal mantel, immodium, welchol, and anything else that will block me up.
Anyhow, I would lke to thank ALL of you, I am so fortunate to have me so many people here that have helped me through my worse days....but I too always remeber that my glass my not be full but it sure in the he$$ isn't 1/2 empty.
Have a blessed day> 
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 8/28/2007 11:03 PM (GMT -6)   

I'm new here but wanted to send you a hug. I see from your post and your signature how much you have been through. Best of luck with the surgery. - Jamie
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.

Regular Member

Date Joined Jun 2007
Total Posts : 86
   Posted 8/29/2007 12:02 AM (GMT -6)   
Ditto the hug! I wish you well. :-)
Dx Bipolar disorder, anxiety, insomnia '00
Appendectomy Nov '01
Dx Chron's summer '05
6MP 75mg, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin w/folic acid, Calcium, B12, Vit E

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 8/29/2007 12:18 AM (GMT -6)   
Sorry for your recent DX with the breast wishes for all to be well for you and lots of hugs too.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 8/29/2007 12:31 AM (GMT -6)   
Sending you much love and prayers. You have been through so much and you difficult journey never seems to end.
God send you His Loving Grace and keep you in His Peace throughout all of these trials.

50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 8/29/2007 5:19 AM (GMT -6)   
I'm sorry to hear of your DX of breat cancer.I know that it's not easy for you,I have never had breast cancer but my sister had breast cancer and about two months ago she was given a clean bill of health she is in remission thank god.

My sister took radiation and she did better than even her Doctors thought she would have done.My sister had a parserl(sp)lumpectomy.She is having reconstructive surger in a few months.

I just wanted you to know you are not alone and you will be fine and I know in my heart that you will beat this.If you ever want to talk please let me know.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/29/2007 5:21 AM (GMT -6)   
Hi Just wondering if a low dose of pred. would help without getting too many symnptoms. Sure sounds like you got plenty in your cup hoping that the surgery will be soon waiting sometimes is hard on a person.Best Wishes for a speedy recovery keep in touch we"ll be thinking of gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 8/29/2007 5:27 AM (GMT -6)   
Hi I sending your Hugs and my prayers are with you.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2007 12:18 PM (GMT -6)   
Sending up prayers that all will be well with you. ((((BIG HUGS))))
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 8/29/2007 2:48 PM (GMT -6)   
((((Big Hugs))) to you. I see you have been through a lot by your sig. I hope you get good results from the surgery and nothing in the nodes!!!!



Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also have Arthritis, waiting on a EMG nerve test right now...

Regular Member

Date Joined Jul 2005
Total Posts : 393
   Posted 8/29/2007 7:40 PM (GMT -6)   
oh miracles! My heart literally hurts for you. My mother was diagnosed with stage 3 breast cancer in 2001. I know all the trials and scares and medicines you could possibly go through. My heart goes out to you. If you need someone to talk to let me know.

She tested positive for lymphnodes having it. luckily it didnt spread. She had a full masectomy, reconstruciton, chemo, raditation, and a bone marrow transplant. I will pray you will have a much easier road. I will tell you that she has been in remission next month 5 YEARS!!! IT CAN HAPPEN. believe it as your screenname says! You are a soldier. God bless u!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 8/29/2007 8:03 PM (GMT -6)   
((((Miracles))))Well if it makes you feel any better the chemo will proably give you C. small comfort I know. Plus they give pred with the chemo to combat the inflammation that goes along with it.
Forum Moderator 
I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...

Veteran Member

Date Joined Mar 2006
Total Posts : 2670
   Posted 8/29/2007 8:30 PM (GMT -6)   
(((HUGS))) to you! I can see you are such a strong person. With everything you've gone through, I admire your strength!

I hope your surgery goes smoothly and that they get all that cancer out of there!
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Veteran Member

Date Joined Jul 2003
Total Posts : 1205
   Posted 8/29/2007 8:38 PM (GMT -6)   
You will beat this I know you will I can feel it you have a great spirt and that is all God ask of us leave the rest to him.

God bless you ,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 8/29/2007 8:46 PM (GMT -6)   
Miracles - the saying "life is not fair" certainly applies to you. Maybe you can write a book about all you've been through... Good luck with your surgery and treatments. I'll be cheering for you.
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 8/29/2007 10:02 PM (GMT -6) all have touched me so much.

Ski bum, everyone tells me that lolol, and..... I always wanted to be a comedian.lolol

I think I should take up some type of speaking, I wish that I could help others who are going through stuff like this...And as you can see by how many times i post, I love to talk.

I truly believe that I am entiring a whole new part of life, and I just wish I had others to entire into it to with me (PlAnning to work out more, eat much better, beginning a very optimistic part in my life mentally and pysically)...., & .....I truly believe that there is a reason for everything.

When I was no lonGer able to work, I was so upset, DOC SAID i WAS DEPRESSED, I SAID NO, TICKED OFF, BUT NOT DEPRESSED I said to my husband, what IS the purpose of all of this, and he said "to make me happy" lolol, wellllllllllllllllllllllllllllll, THAT DOESN"T GET IT, not that I don't enjoy making him happy I believe that God has a much bigger purpose for me ...I think maybe it is to let others know that you can truly come through hell....AND BE BETTER BECAUSE YOU HAVE BEEN THERE.

The one thing that was worse then all of these diseaseS put together was watching my only son become a drug addict.....and I dont mean pot,,.....I have been places to get him, that still makes my skin crawl, But today I am proud that he is clean and loving life for almost a year, and since i wouldnt,let him put my name on his body..( seemed a bit wierd, and mom, is just so typical) he had the rosary tattoed, and everytime he looks at that roasry it reminds him of what his mother did for him, and he is grateful.....and I am loving life because of it. hE JUST DOESNT UNERSTAND YET, THAT IT WAS HIM...NOT ME. bUT HE WILL!!!!

Even so, I don't believe GOD's purpose for me was to go through cancer 3 times, live with crohns, seizure out while on the dance floor ( everyone thought i was doing the steve erkle thing lololol)
I believe there is a biggger purpose, and maybe it is to help other people. Maybe one day Oprah will call LOLOLOLOLOLOL...... talk about
" a million pieces"..that guy had nothing on me lololol But I am not in a million pieces, I am whole...and I am strong.....but I got that through people who are just like me, people who suffer with illnesses, diseases, hardship, heartbreak,lonliness I could go on and on...But IT is life....& I do love it....
Don't get me wrong I have my pity days, I cry and ask why, But,
I think about people, like babies who have cancer, I see them all the time, and my troubles seem like nothing, I can complain and B*Tc&H they can't, they just take it and they are so strong...thats what gets me through...
people like all of you, those who live with pain everyday,
and overcome... AND EVEN THOUGH PEOPLE SUFFER there are those who .are so sweet, and thankful, and caring, giving those who fight strong to live.... thats WHAT MAKEs ME LOVE LIFE.

I have to give alot to my mom....she has told me since I was little...U R STRONG< GET UP AND FIGHT< SHE NEVER LET ME FEEL SORRY FOR MYSELF, EVERYIME I HAVE GOTTEN CANCER, SHE SAYS "you have had bigger fights then this, and won!!!


Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

Regular Member

Date Joined Dec 2006
Total Posts : 371
   Posted 8/30/2007 6:34 AM (GMT -6)   
I will be praying for you . I just finished treatment for rectal cancer. It is gone for now, thank god. I had to stop all my meds also during chemo and radiation. It was hard but manageable.

Don't we all look at life different after cancer?
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 8/30/2007 1:05 PM (GMT -6)   
Crohnie 42,
....we sure do. I told my sister in law today who by the way was also dx with breast cancer this month...that if evryone treated everyone else as though they had cancer, it would be a wonderful world...I find myself looking at people in line at the store, and they have cancer,or what is their cross...and I am a much nicer person because of it.....I have to stop bagging ALL the little ladies groceries though. lololol

By the way...went to the plastic surgeon today..I thought I was FINALLY getting that tummy tuck,BUTTTTTT I don't have enough fat there to make the breasts.....lolololololollol that cracks me up!!!!!!!!!! I wish he would have seen me during my prednisone days, when I was pushing 200...I have lost so much weight I have no fat on my bottom either, so I am opting for the silicone. Not pamala anderson's but, he promised me that they will look better after the reconstruction then they do now....So thats SOMETHING to look forward to, and my son is coming home for 3 days next week-end...I havnt seen him since MAY...I am so happy, I have missed him so much
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

New Member

Date Joined Aug 2007
Total Posts : 12
   Posted 8/30/2007 8:06 PM (GMT -6)   
My thoughts and prayers go out to you.....*hug*
I have been diagnosed for 3 years with Fisualizing Crohns. I have not been in remission for 3 years. I am currently taking Imuran and start Remicade soon.
I am 24.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/31/2007 6:34 AM (GMT -6)   
Hi Great your son is coming home our kids really give our hearts a lift .Sounds like you are getting to the finishing touches with reconstuction in mind. In the old days there wasn't any and it must have made things alot tougher for women. You are right about people being kind to each other I meet people at the ambulatory care unit when I get my Rem. and we all have caring towards each other .Makes it easy .Keep that caring attitude with you it helps bring good gail

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 8/31/2007 2:57 PM (GMT -6)   

I firlmy believe that what you give, will always come back to you.

If you are good, good will come...Sometimes it doesnt seem that easy but we all have seen a miracle a time or two.

We just have to keep the faith within ourselves and believe.


Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 9/1/2007 3:03 PM (GMT -6)   
you are all such caring people, I am so lucky to have this place to come to
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.

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