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petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/29/2007 4:08 PM (GMT -7)   
Oxford/United HealthCare denied my request to receive Remicade in my home through a home infusion agency because I am "not homebound and therefore can continue to receive Remicade in my providers office". So now I have 2 choices for my appeal ...1 find someone out there who is an Oxford/United HealthCare customer who is not homebound and receives Remicade from a home infusion agency and as such would set the precedent for my appeal or 2 see what they say if I switch to a provider who is not equipped to provide Remicade infusions in their office.

Anyone out there with suggestions or experience on how to handle this?
Jodi

Remicade and 6MP


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 8/29/2007 4:11 PM (GMT -7)   
Just curious why do you want it in your home?  I go to the doctor's office.

Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/29/2007 4:29 PM (GMT -7)   
I have a new boss as of July 1 and she is giving me a hard time about everything. My co-worker works until 4pm and I went to the restroom after she left the other day. When I came back I was told that I should use the restroom before she leaves because I need to be at my desk until I leave at 5pm. If I need to take time from the office for my crohns treatments I either have to use half a vacation day or get docked half a days pay. Neither option is appealing (sp) and I'm not allowed to make up the time during the rest of the week. My doctors office doesn't make remicade appointments after 2:30pm M-W.
Jodi

Remicade and 6MP


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 8/29/2007 4:39 PM (GMT -7)   
She has not got the right to dictate to you your bathroom habits especially with this disease, No doubt one of the legal experts will be along with some helpful advise.
Life with crohn's is difficult enough without this crap.
GK

petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/29/2007 4:53 PM (GMT -7)   
I'm looking for a new job as soon as I get back from vacation in October. Hopefully the stock market will calm down by then as I work for an investment bank and would like to remain in one. I am also the victim of a double standard as my co-worker who has an 18th month old daughter never has to use vacation time or get docked pay the numerous times that she leaves in the middle the day to take the kid to the doctor. I should also mention that I've been with the company almost 10 years and my junior co-worker has only been there 6 months.
Jodi

Remicade and 6MP


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 8/29/2007 5:12 PM (GMT -7)   
Jodi,
I'm so sorry, you really have to wonder about the mentality a boss who'd rather you sat at your desk and shat yourself.!!! Do you have a Union or anything to can go to about this treatment?

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/29/2007 5:33 PM (GMT -7)   
Hi Jodi, Your boss can not tell you when you can use the bathroom. Thats being unfair.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 8/29/2007 5:35 PM (GMT -7)   
omg!! I feel for you soooo much! I just know if I worked my old job at Bellsouth I would be chained to my desk with such strict rules also!

I pray god gives u a job that is more lenieant (sp) in the meantime...can you gget a doc's note cuz it sounds like to me this is discrimination somewhat to a disabled/partly disabled person

I mean YOU DO have a disease..dont forget that...its not like the common cold

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/29/2007 6:13 PM (GMT -7)   
I have a doctors note on file plus a letter from my old boss detailing the allowances that he made for me due to crohns.
Jodi

Remicade and 6MP


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/29/2007 6:26 PM (GMT -7)   
Jodi I work for an investment firm myself. Can you try to call your HR department and file a complaint? You are covered under the Disabilities Act as well as FMLA. What your boss is doing is illegal. Don't let them get away with it. You have a chronic illness with no cure. Tell the HR folks that this med is keeping you in good health and if you don't get it you will get very ill and will be unable to work at all. You could even fax them the paperwork and letter from your old boss to prove the allowances that were allowed you before. As well as notes from your docs. Good luck sweetie, I will keep you in my prayers.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/29/2007 7:16 PM (GMT -7)   
Gail - I already met with HR and was told that Crohns is not really considered a disability and that while they understand that Randy made allowances for me, that he even met with HR and Liz (new boss) to inform them that he allows me to leave early with no penalty to go for treatments or work from home if I'm not able to ride the subway for 1 1/2 hrs into work, that Randy is gone and they are not honoring these allowances. HR just suggested that I file for FMLA since I maxed out my sick days. My HR dept. is awful. They won't put anything in writing, if you email them a question they call you with the answer. We are allowed 10 sick days and last year I used 25. When I surpassed 10 Randy and I were told that any more than 10 is at managers discretion. Now that Randy's gone I was told 10 max and up to 11 at managers discretion, but none of this is written anywhere.
Jodi

Remicade and 6MP


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/30/2007 3:30 AM (GMT -7)   
Hi Jodi Just wondering why you feel like you would miss half a days work,it would not be difficult after the first three, the IV's aren't that frequent and maybe you could manage. I wouldn't want to have mine done without being able to have proper medical care if necessary.lol gail
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