I had labs run for the first time in 6 months and my hemoglobin has dropped from 10.5 to 9. I've been lower BUT in the last 6 months, I have gone on Humira and have been feeling symptom free. The last time the labs were done, I wasn't even eating my flare was so bad. (We know iron is causing the low hemoglobin).
The doc says that I'm bleeding somewhere, we just don't know where.
It seems odd that I would have bleeding (assumedly from active disease) and feel so good.
I had an iron panel run this week and am going to see a hematologist about iron infusions to see if I can get my iron back up to fairly normal and keep it that way. I haven't had normal iron levels in years, I won't know what to do with all that energy and concentration! Even in remission with Remicade, we never did get the iron up to where it should have been.
Has anyone ever faced something like this? Unexplained iron levels? What did your GI tell you about it? He seems concerned about my hemoglobin being at a 9 but since I have no medical knowledge, I don't know how low that is in comparison to real people. Anyone know?