Matthew the stone king

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Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2007 6:47 AM (GMT -7)   
Matthew when you are have a stone "attack" what is it like?  Does the pain start like a ache and gradually get worse or is all of sudden your in horrendous pain?   Could you explain how it starts etc.
 
Thanks,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2007 12:53 PM (GMT -7)   
bump
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 8/31/2007 1:24 PM (GMT -7)   
Its changed over the years. But at first it started as crampy pain ( the 1st case of classical Renal Colic that I experienced back in '03 I actually mistook for a bad CD flare. Felt just like my LRQ pain did, just a few inches higher) that just got worse & worse, until I got the dry heaves ( which I also used to get a lot of during my early flares from the pain.) Until I noticed the blood in the urine, I would swear it felt like the flare up from H**L. That continued next year, but added the nice sensation of being kicked in the back ever time I peed. By a horse.
Sooner or later though, even back then, it becomes pain in the groin, penis, testes, & often radiating into and down my thigh. Also, most frequently I get urgency to pee, & feelings like a UT infection. And often I *DO* get UTI's during stone episodes. And most lovely of all, bladder spasms.
These days its still the UTI & burning/aching sensations with back & flank aches. Also, when stones are present, for some reason, I get alot of gas in the bowels near the effected kidney.
*****
The surgery went ok, but the Uro failed to retrieve the 4MM stone. Its too high up & not near a ureter. Darn!!! Should've insisted on lithotripsy!

Matthew

Sniper
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Date Joined Feb 2004
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   Posted 8/31/2007 10:13 PM (GMT -7)   
I dont know about what makes the king the king but I just passed my 8th one of the year, fourth in two months. Saw the Urologist today and was told that people with crohns have a propensity to make stones,,,,duhhhhhhhhhhhhh,,,I could not have guessed. Anyway I was told that even being back on Alapurinal is no guaranty of stoping the stones and they are a small price to pay for keeping the crohns under control..Not what I wanted to hear either. Either way,,sorry you wear the crown Matthew,,myself,,I would rather be a stoneless peasant..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Marie-Claire
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Date Joined Mar 2007
Total Posts : 900
   Posted 8/31/2007 10:17 PM (GMT -7)   
Yes, people with crohns disease have a tendency to have kidney stones and gallstones. Malabsorption of certain things, calcium , fat, lactic acid etc etc. I have had both kidney stones and gallstones....they are no fun in the middle of a flare....just feels like God should finish you off quickly and get it over with....but when things get back to normal..we sure are glad He didn't. Earning our wings I guess.

Good luck....many prayers
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 9/1/2007 11:28 AM (GMT -7)   
Hah, see above. Oh, here is the crown if you want it. I'm abdicating!! I insist, someone please take the crown & title from me. Actually, I thought wbisme might be slightly ahead of either of us. What is his current count? So far, this year I've passed two. And then the 4 mm. thing that effectively evaded the scope. I've been warned before that they cannot always be reached and/or found. It should temper my dissapointment a bit. Maybe next week.. Esp. because it was a 4 to 4.5 mm stone that got stuck in my urethra 4 inches from its escape that caused me the worst pain I have ever felt in my life, bar NONE.

Matthew
"Roll away the stone, c,mom, c,mon, roll away the stone..."

gardenlady
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Date Joined May 2003
Total Posts : 3103
   Posted 9/2/2007 12:57 AM (GMT -7)   
The first time I got a kidney infection, it was the weirdest thing. I'd been running around and doing my thing all day -- it was late summer, so it was hot. I have the worst shag carpet, so even wtih teh upright vacuum, I found myself using the hose attachment on my hands and knees trying to get the pine needles out of the carpet. That night, Kerry and I went to the grocery store, and I had this little stitch in my side, only it was on the back of my side. I thought I pulled something while I was vacuuming. I thought, "ah, I'll walk it off," and trucked on through the grocery store. From there it just got worse adn worse until Kerry threatened to throw me over his shoulder and force me to go to the ER. eyes

I think it was a year, maybe two after that, that I got my first kidney stone. I thought it was the same deal again -- doc knocked on my back, I said ouch, got some antibiotics and called it good. But it wouldn't go away. Turned out to be a stone.

The year after that -- the same time of year, even, and this IS that time of year -- I had another one. This time I knew what it was though. Went to the doc, peed in a cup, got some antibiotics (just in case, because they're little infection farms), and some vicodin, and went on with my life.

Both times, believe it or not, I worked all the way through the mess. Luckily I can do a lot of my work from home, but I still went to meetings and such, although it took copious amounts of tylenol.

I found that Gatorade made me feel better pretty consistently. There are a few symptoms I notice when they're kicking up. First, I get the back/side/front, and sometimes into the hip crampy-ness. It actually feels like someone is squeezing your kidney like a sponge. And when I try to pee, I feel like a hamster water-bottle -- you know the kind with the little ball bearing at the end of the tube. When they actually pass, that's not the worst part (not for me, and a couple have been like 3mm, so not tiny). Not pain wise. It feels freaking CREEPY, though. I wander around shuddering for a couple hours. In fact I just twitched even thinking about it.

Funny story -- the first one I passed, I felt it actually "move into place" while I was sitting at a city council meeting. The administration at the time was NOT friendly toward the project I was working on, so there I am, with a kidney stone trying to push its way outta me, and I have to keep a neutral face in front of all these people who would like nothing better than for the work I'm doing to fail. Somehow I still managed to drive to Walgreens to refill my vicodin and drive home before I went to the bathroom.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/2/2007 9:07 AM (GMT -7)   
Hey GardenLady,

I always work through the mess, except after surgical proceedures or invasive tests ( never have tolerated Cystoscopes, give a Colonoscopy any day over this!).
So you are trying to catch up to us veteran Kidneystoners? I don't reccomend it! :-)!

Matthew

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/2/2007 9:10 AM (GMT -7)   
Sara,

Interesting. I get the creeped out/restless feelings often before the onset of an attack. Almost like a migraine halo, forgot to add that above..

Matthew

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/2/2007 9:27 AM (GMT -7)   
Thanks everyone for your responses. And Sniper quit getting jealous cause I called Matthew the stone king. You boys will be boys won't you always competing with each other. Even if its something as painful as a kidney stone. HA! ANYWAYS, the reason I was asking is every once in awhile I get this pain in my upper right SIDE back area. I was having that same pain when I asked this question. I am okay now, and even read up on it a little, seems more common in men, but my daughter and niece have both had them, so I know women can get them too. It hurt enough for me to have to take my Percoset and the first day alot of nausea medicine. But you did answer my question, which is that the process starts off slowly and gets worse with time. Not sure if thats what happened or not with me, but I do know I was hurting pretty bad for a few days. Did read it is more common in the summer because we get dehydrated a little more in the summer months because of the heat. This is definetly a club I don't want to join. Thanks again everyone.

Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 9/2/2007 3:14 PM (GMT -7)   
I know I can't hold court with most of these guys. Not even gonna try.

However...I want to be a little more specific about teh actual passing of teh kidney stones. It my be different for guys, I don't know. For me, it felt like a really hard, quick pinch, and then it was just gone -- I could actually feel it come out and hit the water. Then I took a truly satisfying leak for the first time in what FELT like forever (even though it was really just a few days, a little over a week at most). But when it comes out it is creeeepy.

I actually had one sneak out a few months ago. The last bout, that started in September of 06, I thought maybe it had just broken up small enough that I didn't notice passing them or something. Then a few months later, no symptoms at all, I felt that pinch and heard the plop, and that was the creepiest thing ever, because it was totally unexpected.

Yeah. There's that shiver again.

Gatorade -- I like the blue stuff, and you can actually get a better deal on the powder if you wanna mix it yourself. THe other flavor that isn't too bad is the pink or orange "Rain" variety. The orange one tastes like orange jello. Another thing that I've really liked lately, don't know if it would help, but it does seem to be a decent diuretic, is putting wedges of lime in water. And if your back muscles get all twitchy from all that cramping -- Tiger Balm is the ****. If I come up with anything else, I'll post.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/2/2007 9:51 PM (GMT -7)   
Nanners. The bad think about a stone is how long it takes to get from the kidney to the bladder. If this time is too long and the kidney is too distended it will stop functioning. Once this happens there is no guarantee that it will start up again even after the blockage is clear. I have had this happen. Lucky for me it began to work about two weeks later. I had a good bout with uremic poisoning too. So if you get nauseated beyond what meds will stop or if you run fever, get yourself to the ER. Most are just a pain but some are very much a hazard to your health..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/4/2007 6:37 PM (GMT -7)   
WEll, GardenLady, remember the stone has to travel a few inches further if your a guy. Unfortunately for us guys, since a few inches can be an ETERNITY of pain.
****
Gail,
Please note, that my second stone summer took only 25 minutes to become so painful that a co-worker tried to call the paramedics for me. That is also the one that got stuck just 5 inches from freedom. My mom said she had never heard a human being make a scream like that (shudder).

Matthew

Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 9/4/2007 9:03 PM (GMT -7)   
Sorry Matthew, A few inches further????? I think its further in some of us guys... Oh hush,,I just have a long ureter,,,maybe...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 9/4/2007 10:30 PM (GMT -7)   
I'm SO not even going there....
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/5/2007 11:11 AM (GMT -7)   
Yeah, but I'm talking URETHRAS, *not* URETERS here. To me, the pain of a stone in that area (unless its under 2 mm oh lucky day!) is the worst part of a stone attack. The bladder spasms & other facets of this are oh so much fun. Well, if you are supremely masochistic..

Matthew

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/5/2007 1:41 PM (GMT -7)   
I've had a pain or ache in my left Kidney upon waking a couple of times this week. I drink mostly water throughout the day, and hope I'm not manufacturing stones.
Tess

MikeB
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Date Joined Mar 2006
Total Posts : 1169
   Posted 9/5/2007 1:50 PM (GMT -7)   
My one encuonter with a kidney stone was last year. Hoope it's my last. At the ER, I filled the doctor in on the location and severity of the pain and he asked one question: "Is it so bad that you want to get up and pace around?" I said yes and he said "kidney stone." Apparently that's the surest marker until they can do the CAT scan and check urine for occult blood. If it hurts so bad you can't sit still, think stone.

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/5/2007 2:01 PM (GMT -7)   
I had to get up and go to the bathroom, but I did notice my urine was quite dark and the day before I probably didn't drink as much water as usual, maybe 3 glass fulls less. I aim to have straw coloured or pale Urine each day not easy to tell either when a certain husband decides to put a blue Loo in the Cistern, just to complicate things more. Bless him.
Tess

Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 9/5/2007 7:18 PM (GMT -7)   
Mike,

Yep. There is even a nickname for it, the "Kidneystone Shuffle".
Or is that a type of dance I should excell at after all the practice I've had!

Matthew

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/5/2007 9:42 PM (GMT -7)   
I think its called ,River dance,,Matthew.. They dont have to do checks for blood in my urine , its all I pass until the stone is out. No doubt when I see red,,I know I am in for a longggggg day. Longest I have ever had to fight one was two and a half days though. Guess I am a free whelper..The probe they use when they remove scar tissue is no fun either. It look like its way to big to fit where they are going to put it, but you know what,,us guys are really stretchy..I recall the first time I had that done. They told me as soon as I pee I could go home. No problem right??? well I think I tore the paint off the wall with my fingernails , and then I pulled myself together and managed to walk proudly from the restroom like all was well,, but I was thinking If I never pee again it would be too soon. Lovely memories. Guess you could say the procedure made me a man of ,,larger caliber...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 9/6/2007 11:49 AM (GMT -7)   
nono Sniper ! You're laying it on a bit thick here, you know.... yeah :-)
eyes Okay, i know, your excuse is that you have been stoned once too often.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/6/2007 12:41 PM (GMT -7)   
Snohare where the heck have you been??? So glad to see you back on the board, you were truly missed. Missed yours and Sniper's back and forth humor. Okay Sniper its your turn now.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 9/7/2007 9:06 AM (GMT -7)   
redface I've been hibernating, Nanners. I know, it's been all summer.....well, I overslept. eyes
Actually, when I was awake, I was very busy in the allotment (vegetable garden)..... yeah I've got to say, I've been missing you guys. However crunchy the lettuce, it is still not as good as Sniper's crisp rejoinders. tongue

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/7/2007 12:53 PM (GMT -7)   
Sniper,

Hmm, either I have a lot of visible blood first thing, or I get very little if any. Sometimes only WBCs, but this is for the smaller stones.
Hey, welcome back oh rabbit from the far north :-), you know now I think of it, stones are enough punishment with out these silly jokes (wink). We have missed you greatly! ( I think Sniper took too long to re-load last time)

Matthew
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