OMG! This is a first!

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Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 9/2/2007 2:08 PM (GMT -7)   
Ok... So I didn't want to post this earlier in the day, because I was sure throughout the day it would have happened. 
 
But...
 
For the first time in 7 years (only Diagnosed in april 07 though), without being on prednisone, I didn't have any diarrhea today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
 
Maybe the remicade is finally starting to work!  I get my 3rd infusion on sept 13.
 
WOO HOO! 
 
I keep thinking maybe it's a fluke... But usually I will have diarrhea about 5-10 times within the first few hours of the day, and that time has definitely passed.
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/2/2007 2:18 PM (GMT -7)   
Hi Krysta,
I am glad the Remicade is working for you. I have been on Remicade for over 2 years. Its a wonder drug.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 9/2/2007 2:57 PM (GMT -7)   

NorCalJP
Regular Member


Date Joined Jun 2007
Total Posts : 86
   Posted 9/2/2007 5:48 PM (GMT -7)   
Ooooh! I'm so happy for you!!! Congrats! cool
Dx Bipolar disorder, anxiety, insomnia '00
Appendectomy Nov '01
Dx Chron's summer '05
6MP 75mg, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin w/folic acid, Calcium, B12, Vit E

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov


JohnD
Regular Member


Date Joined Aug 2004
Total Posts : 472
   Posted 9/2/2007 5:56 PM (GMT -7)   
Hey Krysta,
I hope this is a sign of things to come. :)
37, Married w/ four kids.
Had problems (pain, bleeding, nausea)  since age 13.
miss dx'ed for years
Dx'd with Crohn's in Spring of 1991.
Resection that December.
Broke the L1(mid back) in 1999
Spring of 2002 began the LLQ pain.
went on Remicade in early 2004.
Had exploritory surgery December of 2004 to find the cause of LLQ pain.
Pain Doc choaks the LLQ pain to pinched nerves
looking at getting an Electrical spinal-cord stimulator,  very soon.... 
 
 
 
 


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 9/2/2007 8:40 PM (GMT -7)   
The first time i had a solid BM and no diarrhea when I was getting better, it was actually so weird that I kept having to remind myself that this was NORMAL for other folks. It didn't mean that something new was wrong with me...

:)
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/3/2007 7:29 AM (GMT -7)   
Hi Kyrsta Sounds like the Rem. is kicking in .Are your BM's getting solid yet? It sure is wonderful to have a no D day hoping for lots of them for you. lol gail

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/3/2007 7:36 AM (GMT -7)   

 

 

         yeah yeah GREAT!!! LOL, Ain't it funny what you get used to, & then it changes and you feel a sense of unreality.

              I was like that on Pentassa in the early years. Suddenly, I wasn't feeling pain every afternoon or getting the big D. It felt ALIEN almost! tongue

       Sincerely,

     Matthew

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