Newly Diagnosed with Moderate Crohn's

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Regular Member

Date Joined Sep 2007
Total Posts : 219
   Posted 9/2/2007 9:15 PM (GMT -6)   
Hi, I am just newly diagnosed with moderate Crohn's on Pentasa and Endocort. Does anyone know if this can be resolved with just these two drugs, as well as a top doctor that specializes with Crohn's in the Long Island, NYC area?

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 9/2/2007 9:26 PM (GMT -6)   
Hi nikki and welcome you have come to the right place. I havent been on either of the drugs that u are on but im sure someone that is on those particular drugs will be along soon to offer u advice. You will find the people here are very helpful we all understand what u are going through. I have had crohns for 19 years and have good and bad times, glad u found us and keep us posted on how u are going

Regular Member

Date Joined Mar 2007
Total Posts : 194
   Posted 9/2/2007 10:18 PM (GMT -6)   
I was just dx this summer with CD and this month with Lupus. I have to tell you. I did entocort twice, Lialda ( had to get off due to horrible bloating) , colozal, nexium ( now using prevacid ) and am still having problems. I am also on plaquinil and predisone for the lupus. I dont know how people get 2 drugs to do the trick.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/3/2007 8:44 AM (GMT -6)   
Hi nikki,
Welcome to Healing Well, I have not been on either of those drugs. They may work for you. Each of us
are diffrent. Meds are diffrent for all of us.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/3/2007 9:22 AM (GMT -6)   
Hi Nikki So glad your here with us and welcome it is great to not be alone. I am on Remicade ,Imurun ,and Prednisone .My CD was severe .Never took the drugs you are on but lots of people here have . Hope they are making you feel better some drugs seem to take awhile to kick in not sure about the ones you are taking .lol gail

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 9/3/2007 9:47 AM (GMT -6)   
Hi Nikki,
Welcome to Healing Well. You will find great support here. Hope that you start feeling better soon. So sorry that you have been given so many problems to deal with, especially at one time.
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Veteran Member

Date Joined Feb 2007
Total Posts : 1010
   Posted 9/3/2007 5:30 PM (GMT -6)   
Hi Nikki:

I have been on both these medications and yes, for some people, these two meds can do the trick and get the inflammation under control. Here's the thing. Your doctor relies on you to be an accurate reporter of how things are going. It is really important that you begin to monitor your symptoms and get to understand how this disease affects you.

This disease really manifests itself differently from one individual to another so our GIs and GPs really rely on us to become the experts in ourselves. They are the experts in crohn's but we have to be the experts in how it affects us.

You might want to set up a calendar on your computer or -- on your wall -- and make note of when you get symptoms, what they are and how they relate to what 's going on in your life and what you are eating. A food diary can be a really useful tool in the initial stages to help guide you. The more you pay attention and note down what's going on, the better prepared you will be to talk knowledgably with your GI when you find her/him.

Welcome to the forum and good luck on your journey.

30+ years living with Crohn's.

Post Edited (belleenstein) : 9/3/2007 5:02:27 PM (GMT-6)

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