Long term remission....RMAT

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 9/4/2007 9:11 AM (GMT -6)   
Hi everyone, Has anyone out here benifited from antibiotics?
 
I used flagyl 1 year ago for a 8 month remission and was wondering if anyone out the has had the same results. Im concerned the frequent use of antibiotics will cause a bug to become resistant.
 Has anyone tried RMAT treatment? These studies are 7 yerars old....
 

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/4/2007 9:20 AM (GMT -6)   
Flagyl and Cipro always helped me. I've been on Flagyl for over a year at a time. The only issue I know of is that long term use may cause neuropathies. I had tingling in my hands and was taken off immediately.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 349
   Posted 9/4/2007 9:42 AM (GMT -6)   
I have never had anything but bad luck with antibiotics. I take them and then have D for Weeks even after I get off them. They also cause my appetie to completley dissapear. Antibiotics for me=BAD!!
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 165lbs). On HUMIRA, Prednisone, Levsin
myspace.com/finalmacgyver


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 9/4/2007 4:08 PM (GMT -6)   
I've responded to a Flagyl/Leviquin combo on several occasions. But right now I am on Xifaxan, which is also an antibiotic. In fact, antibiotics are the only thing that have worked well enough for me to string together months of remission at a time. Pentasa, Asacol, Entocort--those only made me feel slightly better. The dr. said I could stay on X long term. I hope so, because it's on to the big guns if I can't.

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 9/4/2007 4:28 PM (GMT -6)   
LETS hear more about Xifaxan :-) :-) :-) :-)
 
 I just googled it and it seems like a CD wonder drug! Anyone out there with negitive experiences?
 
 
 
How has Xifaxan worked for you?

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 9/4/2007 6:07 PM (GMT -6)   
It did not help me at all but I don't think it would since I only have perianal crohn's. The DR. should probably not have even given it to me and I'm not sure why he did......
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

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