Has HUMIRA NOT WORKED for anyone??

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Hayleybaby
Regular Member


Date Joined Aug 2007
Total Posts : 76
   Posted 9/5/2007 4:30 PM (GMT -7)   
I took my second dose of Humira on Monday and I am still not noticing a thing!!! The nurse practitioner who helped me with my loading dose said that if Humira is going to work for me then I should notice a difference within 2-3 days. Anyone else heard this? I'm afraid that after almost 3 weeks now that since nothing has changed, this med is not working for me. Is it too soon to throw in the towel? How long should I wait or continue? My doc told me this is my last option. I want this to work, I need this to work. I really do not want a colostomy bag.
30 yr. old dx with CD 10 years ago. Currently on folic acid and azulfadine.  Had ileum removed and resection May 2007.  Just started back to work after being off 13 weeks.  Still feeling lousy.  In the process of trying to get approved to start Humira ASAP!!!!  It scares me immensely!!!!  Just started Humira 8/20/07-loading dose of 4 pens (160mg).
 
Allergic to: Asacol, Pentasa, Imuran, Paxil, Zoloft, Penicilian, Ampicilian
 
And prednisone does not work for me anymore!!!


CroneGal
New Member


Date Joined Aug 2007
Total Posts : 15
   Posted 9/5/2007 4:39 PM (GMT -7)   
Hey! I was on Humira for about 4 mths and unfortunately it did nothing for me :s...I was put on it for nausea and cramping, but it never worked...i ended up needing surgery to remove my terminal ileum...now, post-op: so far, so good for me...I am no longer taking Humira

My fingers are crossed in hopes that it works for u!

Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 9/5/2007 4:41 PM (GMT -7)   
Think positive you cant think negative you are only making yourself feel worse. Will yourself to get better the mind can be powerful use it to your advantage.

get better,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 9/5/2007 7:38 PM (GMT -7)   
BillShakespeare said...
Sugarmarie said...
Think positive you cant think negative you are only making yourself feel worse. Will yourself to get better the mind can be powerful use it to your advantage.

get better,sm


You cannot will yourself to health... eyes


I think MOST people here know what I mean is that she should stay positive about the Humaria give it time not worry herself give it time to work .
DUH eyes eyes eyes eyes eyes
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Poopiehead
New Member


Date Joined Jul 2007
Total Posts : 5
   Posted 9/5/2007 8:22 PM (GMT -7)   
I tried Humira and am on about my 5th month and it's pretty much crap in my opinion. It may help some but it didn't do anything for me. Remicade changed my life and I used if for seven years until I started developing anitibodies and it doesn't work as well but is still better than Humira. Have you tried Remicade? I had to start taking Methotrexate again since the Humira is not working and I feel so much better! It stinks cuz it has some not good side effects and I can't try to get pregnant for some time but it has really helped and I think it's my only option. I refuse prednisone. Anyway, it may work for you but that is my experience. If you can try Remicade I say go for it! I had no problems for many years and I have Crohn's in patches through my whole intestinal tract especially my ileum. Good luck!
Crohn's for 13 years. Curently taking Methotrexate, Humira, Xifaxan, and Colazal with all intestines still intact.  


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/5/2007 8:49 PM (GMT -7)   
My GI told me last month that I had to stop Remicade after almost 3 years because I developed antibodies to it. I have a script for Humira and will be starting it soon.

My GI told me that Humira worked only about 33% of the time in those that had developed antibodies to Remicade. I hope the Humira kicks in soon for you Hayley.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/6/2007 1:45 AM (GMT -7)   
Wow, Ides, those are pretty grim statistics.

Sugarmarie, I know you were standing up for yourself, but there's no need to be rude... We're here to help each other, not to argue.

Kindly,

Ivy.
Co-Moderator Crohn's Forum.


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 9/6/2007 6:36 AM (GMT -7)   
Ivy6,
I was not being rude just helpful.
Kindly,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/6/2007 9:46 AM (GMT -7)   
Ivy I really don't think SM was being rude. She made a valid point that changing your mind set can really help. If you are continually thinking negative then everything is going to be negative. When I am feeling really bad, I try to change my mindset and many times it really helps. She is right the mind is a powerful thing.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Bill9
Regular Member


Date Joined Mar 2003
Total Posts : 54
   Posted 9/6/2007 1:11 PM (GMT -7)   
I was in the beginning trial for humira.I was told in that trial that it only helped 50% of the people.There is still hope for you.In the trial,after the loading shots,and a shot every other week,it was doing nothing for me.They they started a shot every week.I started then getting better every week.Still getting better but it just took a higher dose and a while to get there.Heck,if it was not for the shots,I would not know I had crohn's now.Do not drop it if you do not try every week and give that 6 weeks.
 
Garry
Best of Luck!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/7/2007 7:18 AM (GMT -7)   
I was also told that once a person has built up a tolerance to one TNF-alpha, the others are less likely to work. For me Remicade was great for a year, little over. When I tried HUmira, it seemed to help during the loading dose process, but once I got down to one shot every other week, it just wasn't enough. Do stay positive and give it a chance to work. But, knowing other people's experiences has always helped me to have a realistic approach. Best of luck!

Shari

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/7/2007 10:19 AM (GMT -7)   
I was on it from may to july, and it was wonderful.
I had not felt that good since 1997.

But since being dx'd with breast cancer they pulled me off, I am hoping to get back on it once my treatment for cancer is over.
I miss it and so does my body. It was working, for 3 months, but who knows regarding long term????
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 


DanceTeacherGinger
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 9/7/2007 12:03 PM (GMT -7)   
I'm still in the trial - and it has been a Godsend for me! I had tried it all - even became allergic to Remicade. I had surgery and although it helped some, I was told I'd probably never work again. I've been on Humira for 2 years now and it seems that it took a few weeks for me to start telling the difference. I am one of the fortunate ones in that I am still taking the shot every other week while others had to go to once a week. But considering I can't take anything else (nothing else worked or I am allergic to the meds), Humira is a true blessing. I am now back to teaching dance classes - 16 a week! I swear I couldn't do it without Humira - and a positive outlook. (Getting a divorce helped with that but that's a whole other story!) It took some work for me to get out of being so gloomy but I truly believe that being positive has helped me just as much as the medication. And not to bring up the subject of religion, but for me, going to church and surrounding myself with good, positive people has made a huge difference to me. So give it a little more time - and try to keep the "glass-half-full" mentality. I sure couldn't hurt!

I wish you the best!

Ginger

MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 9/7/2007 12:06 PM (GMT -7)   
Ginger - do you recall how long it took for it to really work well? I have been on it since the end of April and I do feel somewhat better most of the time, there are days where I don't feel well at all. I was wondering if after 6 months you noticed feeling great or was it less than that? MB

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/7/2007 3:46 PM (GMT -7)   
GINGER>>>>>Thats great...thats how I was beginning to finally feel. I was feeling wonderful, I wish I didn't get breast cancer so I could still be taking Humira...it sure did give me a life back!
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 

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