Our local paper had the full cover of the "Living" section on two "new" drugs to help Crohns. Of course we already know about Tsyabri and Cimzia, but I guess it is news in this AP story about a San Diego man and CD in general. What frustrated me was the article made it out that the worst part of having Crohns is that we have to "bathroom map" whenever we go somewhere so we know where the bathroom is because we likely have D and some cramping.
No wonder no one understands the ramifications of CD if finding bathrooms is listed as the worst part of the disease. How about deciding on taking these "new" drugs and other drugs versus the side effects being more of an issue? Why not tell about the awful other problems we can have like joint issues, bone loss. pyoderma, eye issues, fatigue beyond just being tired.
I am in a nasty flare and am more anemic than I have ever been. My friend thought my exhaustion after a very short walk was becuase I was out of shape and we should do this every day. I guess this won't help if my friends read this because they won't understand that internal bleeding is my concern right now not where the next bathroom is. I am not just tired....I am lacking oxygen delivery to muscles and respiratory systems.
Wish I could share the article, but I could not find it in the online version of our paper. Aaaargh frustrated again. Yup not in a receptive mood am I.
Raise your hand if finding a bathroom is the worst part of CD for you
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....