Frustrated...need advice please

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pmac
Regular Member


Date Joined May 2005
Total Posts : 221
   Posted 9/6/2007 3:22 PM (GMT -7)   
Hi everyone,
 
It's been a while for me finding the need to seek out help or advice, cause I really have been feeling pretty decent for several months.  That was until about a month ago.  First it started out with bleeding, while I'm taking my Salofalk (which has never happened before)  about a week after this happened, I started feeling unwell (which has also never happened when I've been bleeding? usually I have no other symptoms)  Pains low right side, and sometimes left but higher up...my hair is falling out, no energy except for a couple days here and there, lots of blood and mucus, not much for appetite...hurts worse when I do eat....just overall unwell.  I did start to take my suppositories again...it's been forever since I've taken those, but I knew that's what the Dr would reccommend doing.  My box was almost empty, no refills, not feeling much better, so I phoned the office to let them know what was going on, eventually was able to leave a message last tuesday (28th) I had to greatly space out the supp. so that I wouldn't run out waiting.  I finally called back again on Tuesday left yet another message, and did hear back Wed. morning...told her my symptoms, and that I should probably get more refills on the bum pills...she would talk to the dr. and call me back that day.  I finally called back this afternoon, left msg...she called back to say that she'll call in refills, and that Dr. still wants to see me on 19th (appt from 6 mths ago) I'm flaring and he can't do tests since I'm on my meds!?  A little frustrated by that since last yr he took me off of them...I started to bleed pretty quickly, and when I went in to see him he said he didn't want to put me through tests, even when it was very obvious that something was going on.  I should mention that the only time he has scoped me was when my bleeding had been controlled with drugs...I wonder why he didn't see a whole lot!!!!  It seems like every time I talk to him he has contradicted what he told me the last time!  Anyway, I was willing to wait and talk about this with him on the 19th...long enough to wait considering how I've been.  Now here's the kicker:  she calls back to tell me that he's booked at the hospital that day now so I won't be able to see him after all, can I come in the next 2 days!?  NO I can't!!!  the only other day off I had was Monday, but of course he's at the hospital that day too!!!  So now I have to call her back tomorrow, to book for the following week...if that'll even work out.  I was so frustrated when I got off the phone I started to cry, probably because I'm sick of feeling like this, and now I feel like they don't give a you know what! 
 
Is it just me feeling crappy, and frustrated, or does this seem a little unreasonable to you?
 
Sorry it's so long, but thanks for letting me gets this out...grrrrr devil
 
Paula

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/7/2007 4:58 AM (GMT -7)   
Hi Paula don't get too down I know it is hard sometimes getting appointments but you"ll get it worked out .At least you will have your perscription and I hope that helps. Any difference yet? lol gail

pmac
Regular Member


Date Joined May 2005
Total Posts : 221
   Posted 9/7/2007 6:57 PM (GMT -7)   
Thanks Gail,
 
I just can't believe how hard it has been to get in touch with someone there, and now after calling early this morning to schedule an appt to make up for the one they had cancelled...big surprise...nobody got back to me!  I left a message at the end of the day telling them that I wasn't very happy...they know I'm not feeling well, cancel on me, and then won't even get back to me to re schedule.  What the heck do you have to do?  Anyway, at least they called in the bum pills :) that way I can take them regularily now...hopefully they will help me feel better? 
 
Oh well, again thanks for letting me rant :-)
 
Paula
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