bathroom times

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/6/2007 4:29 PM (GMT -7)   
Hello everyone,
 
As most of you know I had 3 surgeries this year for my CD.  The first being an emergency resection that casued toxic megacolon when my colon didnt wake up.  Then I had an ostomy, wound infection and mult abscesses...2 total but the one on the right kept coming back. drain was placed abscess never stopped so I had my ostomy reversal at 4 months post op rather than 6 months.  That surgery was longer than expected, reversed ostomy, removed more of both intestines, removed abscess, removed adhesions, and had to scrape my abdominal wall since it was all infected from the abscesses. 
 
I had issues with C prior to my surgeries and my ileum perforating.  Since my Sxs I run to the bathroom lots.  I am hoping to go on questran soon to help with this issue.  My thing is though that I have more episodes before 3pm than after.  I may have only 1 BM if any after dinner until morning.  The past few nights I have woken up every couple of hours having the urge to go and only passing gas.  When the morning hits I finally go...and go more...and more.  I wake up late since I am home and got laid off so I tend not to eat until about 11:30 or noonish.  I have a few BMs before I eat and have a few after.  I just wonder why I have more boughts of D earlier in the day.  After I eat lunch it is only an hour at most before I am in the bathroom so why is it taking so long after dinner?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/6/2007 5:09 PM (GMT -7)   
Dragonfly, I have the same problem. I often wonder if this is more of a problem if you have the illeo-caecal (sp) removed.
Did they do that with any of your surgeries? I go about 8x a day, all usually in the am. Sorry I can't give any answers to why. LOL
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/6/2007 8:01 PM (GMT -7)   
Dragonfly I meant to say the illeo-caecal valve removed. How I put it before didn't make sense, that's how most of my
day has been (smile).
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/7/2007 1:48 AM (GMT -7)   
I believe that is gone they removed the ascending colon, half of my transverse and about 8-12 inches of the terminal ileum on me
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


TechChick
Regular Member


Date Joined Sep 2004
Total Posts : 229
   Posted 9/7/2007 4:29 AM (GMT -7)   
dragonfly,

I that the illeo-cecal valve removed when I had my resection 3 1/2 years ago. I have lots more D since that surgery, sometimes up to 10 per day also the urgency is awful. Actually the surgeon took the transverse colon and the illeo-cecal valve.

I haven't taken the questran yet, although I do have some sitting in my cabinet. I have been playing with some of my scripts and have found that the bentyl has slowed things down some (4-5 a day).

Hopefully things will slow down for you very soon, keep us posted and hugs!!!!
Thanks!!!! (Hugs)
Heather

Computers are magnificent tools for the realization of our dreams, but no machine can replace the human spark of spirit, compassion, love, and understanding.
- Louis Gerstner, CEO, IBM


archtop
New Member


Date Joined Nov 2006
Total Posts : 7
   Posted 9/12/2007 12:21 PM (GMT -7)   
Just got finished with a Toxic Megacolon. My entire colon and part of my small intestines were removed. I wish I had done this 20 years ago.

wanderlust
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 10/14/2007 11:27 AM (GMT -7)   
  I have posted this befor, I have never seen any one else use it, I tried every thing, after having my valve removed, and I have only about a foot of large bowell left, I take Colestid, it is for reducing colestrol levels so my Dr. says it cant hurt you, It comes in a powder, and you mix it with water It works wonderful for me. I take it every morning, and usually have two bowell movement each morning about half hour between  each movement , and Im done for the day, until I found this life was miserable, I was afraid to get over 10 feet from a restroom. I have had CD for over 50 years , had 7 resections and probably 30 40 other surgerys, have every other sympton know to exist, but the last three years have been great.
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