Obtaining copies of tests? Can we do this in Canada>

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Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 9/7/2007 12:47 AM (GMT -7)   
Hey all Canadians.
I was just reading another post where someone suggested obtaining a copy of all tests. '
Can we do the same in Canada? what are our rights when it comes to our charts. I've had the experience of a GI not telling me I had crohns disease until 2 years after he'd done the colonoscopy and other tests. He shared that info with my family DR. ....and they both decided I had enough on my plate so they would tell me later. I don't know how legal that was....I 'm from a teeny-tiny little town , where the doctors have brought most of the town's population into the world. '
But it has made me a bit weary , when a doctor now, tells me everything is fine....Do I have the right to look at my chart?
 
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/7/2007 3:10 AM (GMT -7)   
Hi Mary you should have the right I would think I have had to get medical papers before copies at the Dr's office for pension .Cain't beleave the DR. would let you go 2 years without telling you how did you ever get treatment and look after yourself without knowing what was wrong?lol gail

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 9/7/2007 3:53 AM (GMT -7)   
Marie Claire:

The information in your medical file belongs to you. You have the right to go over that information and your physician/hospital must make it available to you within a reasonable time frame of receiving the request. If you want copies those must be provided too, however there is a cost, usually, for duplicating your files. The cost varies from province to province and from institution to institution.

The only situation where physicians/hospitals have any discretionary power is when, in the doctor's opinion, the contents could impact your health -- ie: in cases of mental instability etc.

As far as withholding information from a patient, this is no longer an acceptable standard of practice and has not been for years and years. You have a right to now what is going on with your health. Did you ask about your condition and the results of the tests or just leave it to your GI to let you know what he thought was important. If you asked and were not told that is grounds for a complaint to the body (college) that regulates the practice of medicine in your province.
Belleenstein:

30+ years living with Crohn's.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 9/7/2007 11:33 PM (GMT -7)   
Thank you for your replies.

Belle, Yes I did ask what was going on and what the test results were. My GP gave me a vague, "well, the GI feels you MAY have crohns disease.....but I wouldn't worry about it too much if I were you. He gave me sulfasalazine and told me it was going to take care of the diarrhea. I was dealing with so much at the time that I just took the medicine and his word for it. Not having a computer and no compendium to refer to I just trusted that this would do the trick. Miraculously , my flare eased so I didn't pursue the matter further having too much else on my plate. My two young daughters were "abused,....in the worst sense of the word" by their father....we were going to court etc etc etc....anyway two years went by and I suffered another flare....went back to the GI who said "oh by the way YOU DO have crohns disease.....explained to me where exactly he had found it two years prior.....he said" I thought you'd be back in my office way before this."
Anyway, my beautiful daughters and I were still in and out of women's shelters,in and out of court, battling restraining orders....all that overwhelming stuff.....the crohns disease just paled compared to what was happening to my girls...they were so traumatized and my hands were full with trying to put them "back together again, and keep them safe" .....long story.
Good news . were are all safe and happy now....it's been a long hard struggle (13 yrs) and my health has taken the brunt of it. It is just in hind sight that I think about how my doctors handled the whole thing. I should have been more "with it" . but....

they don't call me "tired old Mary " for nothing.
Love and prayers....
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 9/8/2007 12:17 PM (GMT -7)   
Marie-Claire:

You have been going through, perhaps, one of the most devastating things that can hit a mother/family. I am so very sorry. Although I haven't lived this experience personally I am very familiar with the cascade of issues that surrounds a disclosure of child sexual abuse. During my career as a journalist I was privileged to be invited into the lives of eight women dealing as adults with the effects child sexual abuse had on their lives. I was so shaken and moved by their stories, and their courage, that I persuaded the publication I was working for to let me do a full investigative series on how families, communities, educators, the justice and legal systems failed these women and what needed to change so that children could feel safe to break the silence.

The series ended up a finalist in the Michener Awards program for Meritorious public service in Journalism. It is the highest honour bestowed on newspapers in Canada and for a very small newspaper in a tiny own in Atlantic Canada, it was a very proud moment, but nothing compared to meeting one of these women in a public place after the series was published. We had agreed to protect these women's identities for privacy and legal reasons so I was surprised that she not only acknowledged me but put her arms around me and gave me a big from-the-heart hug. I'll never forget her words. "You've given me back my dignity. When I read my story through your eyes I felt the shame lift off my shoulders for the first time since i was old enough to know what he was doing was wrong."

So I do understand just a little about what you and your daughters are suffering. And I cannot imagine how you have managed to hold it all together in the face of this punishing disease. You say that things are finally resolving as far as your family's safety is concerned. If you are anything like me, now that the crisis is fading you might find yourself experiencing an increase in symptoms. I am one of those that can hold it together when the pressures on, but then I pay. It used to happen over and over -- when my daughters and husband have faced their health crises, I am like a human machine and never count the cost. I used to approach my career and family obligations the same way. It would have killed me to be undependable. Then when the project is over or the family is recovering and everything should be great, that's when I used to crash.

Took a lot of head work over the last three years to modify my life to protect me from myself.

So I hope you find a way to make sure that you get the care you need too, even if you have to snatch it in bits and pieces.

My thoughts are with you and your precious children. Never forget how fortunate they are to have you
Belleenstein:

30+ years living with Crohn's.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/8/2007 12:33 PM (GMT -7)   
HI Mary
Dang I am sorry for all you and yours have gone thru ......I dont know how you did it either but I can tell you this hun YES you are able to get any /all of your health records just as Bellensteen said they cannot with old them from you ''

My prayers are with you and yours
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