hi everyone.....

who is going to win the super bowl this year?
1
Kansas City Chiefs - 20.0%
0
Kansas City Chiefs - 0.0%
1
Kansas City Chiefs - 20.0%
1
Kansas City Chiefs - 20.0%
1
Kansas City Chiefs - 20.0%
1
Kansas City Chiefs - 20.0%

 
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Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/7/2007 1:03 PM (GMT -7)   
i have been resurrected.....just wanted to say hello to everyone and let you know i am back.....i had to do some self-discovery for a while

anyway, wanted to say i am feeling pretty good, but it can be so frustrating dealing with this, i have been great since my surgery to get a temp ileostomy, however, I am still having fistula related problems....

i am starting to think I should have had a total colectomy instead of messing with the idea of this temporary solution....now i think i might just keep this ostomy forever instead of having it reversed?
I know this isn't the ostomy forum, but have any of you others had a temp ileostomy, and then ended up keeping it instead of getting it reversed?
"All we need is love....love is all we need"


daniellenikole
Regular Member


Date Joined Jul 2006
Total Posts : 77
   Posted 9/7/2007 1:23 PM (GMT -7)   
They finally let you back..; )..
I, myself do not have an ostomy(yet)..but I read that it is kinda common for people just to keep it after a while....my ? to you..is it really that bad?.. I read the ostomy forum time to time and most people on there do not seem to mind..I mean I'm sure they don't like it..but it seems like coming to terms with having it is the worst part..not the daily living life with it..
when are you supposed to be able to have it reversed?..
 
Welcome back!
Danielle
25 years old..Just had my second baby(a son)born Feb. 26th..using 75mgs of Imuran...He is perfect in everyway: ).Been on the BIGGEST Crohns "rollercoaster"..been down to 88lbs (5'7) about 2yrs ago..very sick..Been on Pred, Pentasa, Entocort, Cortifoam enemas, Imuran, and flagyl and cipro for anal fistula. Currently only taking Remicade..and it has been my miracle* drug!
 
*  So far..and I do have my bad days: )
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/7/2007 2:09 PM (GMT -7)   
I think one person on here has done that but not sure who. Since my reversal 9 weeks ago I still have my days where I wish I had the ostomy still, but I dont miss the bag, the abscess drain etc. Darn peritonitis from the abscess I had would not have gotten better without surgery nor would the abscess. My stoma never healed right causing feces to seep under my skin. Infectin wise I am free now yay...not to get my bowels to act normal...somedays I have D up to 8 times other days I am boated and wish I could go...finally go after a while but its uncomfortable
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 9/7/2007 2:33 PM (GMT -7)   
Hi Glad,welcome back!Sorry to hear that you are having fistula problems,I hope you feel better soon.Take care.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/7/2007 4:01 PM (GMT -7)   
The person you need to talk to is Judy89. She has an ostomy and is hanging onto it. Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/7/2007 4:17 PM (GMT -7)   
My ostomy is still considered temporary because I still have my rectum. They keep electing not to remove it because my surgeries are too complicated since I've had so many.

Anyway, to answer your question, yes, my ostomy was supposed to be temporary, 17 years ago. I've had 5 resections since then, and they recently moved it to the right side, and removed my entire colon, so it's now officially an ileostomy. My surgeon asked me if I ever thought about having it reconnected and I had a panic attack, lol. Please don't let me wake up with it reconnected. I have a life now. I can work, play, walk, run, ride, do anything I want to do.

I had a real hard time dealing with it at first, and when I asked my surgeon when I was going to be reconnected, he said it would be senseless as I'd have to keep having it done and reversed. I felt cheated because he told me it was temporary. As time went on, I realized how nice it was not being chained to a bathroom, or embarassed at work, or in the mall. This is much easier to deal with. Accidents still happen, but once you get the hang of it, they're pretty rare.

The decision is yours, you can always opt to not have it reversed. My surgeon is a little worried about still having a rectum, I guess the risk of cancer is higher, but I have it checked and biopsied any time they have to put me under for another test, and no changes after 17 years.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/7/2007 4:45 PM (GMT -7)   
Glad welcome back, we've all been so Poll deprived in your absence.
Tess

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/7/2007 4:48 PM (GMT -7)   
thanks people.....

Danielle....actually, it is not that bad, it is great with the ostomy....

except for not being able to swim in my sexy speedos anymore! (yeah, i used to do it all the time) as if....

Judy....now i remember your story......

thanks for the wisdom...
"All we need is love....love is all we need"


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/7/2007 4:49 PM (GMT -7)   
jennifer.....

good to see you again too.... you know who my favorite member is, stop acting like you hardly know me
"All we need is love....love is all we need"


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/7/2007 5:39 PM (GMT -7)   
Welcome back Glad...  So I see your a St Louis Ram's fan, right?   Go COWBOYS!!!!!
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


browneyedgirl
Regular Member


Date Joined May 2007
Total Posts : 150
   Posted 9/8/2007 8:18 AM (GMT -7)   
Hey glad bag,

We sure have missed your humor around here! No experience with ostomies or any other Crohn's surgeries so far! Thank goodness! But on another, lighter note.....GO, NEW ORLEANS SAINTS, GO! TO THE SUPERBOWL!!!!!!!!!!!
Jennifer/32
CD since 10/2005
Asacol 2 pills 3 times daily
 Imuran 75 mg once daily
Prednisone 40 mgs daily; I am on a short dose this time, thank goodness.
40 mgs for week 1, 30 mgs for week 2, 20 mgs for week 3, then 10 mgs for week 4 (done on 8/22).
 Lomotil as needed for cramps and D
B-12 supplement 1 mg daily
Levoxyl (Thyroid)
New Orleans, La, US


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 9/8/2007 10:01 AM (GMT -7)   
Hi Glad Bag. I don't have an osteomy, but just wanted to welcome you back. Welcome back!!
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/10/2007 12:51 PM (GMT -7)   
Pats, as usual
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 9/10/2007 1:25 PM (GMT -7)   
Welcome back GladBag! Missed ya!
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 9/10/2007 4:38 PM (GMT -7)   
Welcome back I missed your post.
hugs,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


KitKatBaker
Veteran Member


Date Joined Feb 2005
Total Posts : 1146
   Posted 9/10/2007 7:14 PM (GMT -7)   
Jennifer~
Are you sure the Saints are even playing this year???????
 
Go Colts!
Katina
Co-Moderator Crohn's Disease Forum
Co-Moderator Ulcerative Colitis Forum
 
Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil
 
Help support Healingwell!!!
 


browneyedgirl
Regular Member


Date Joined May 2007
Total Posts : 150
   Posted 9/10/2007 7:19 PM (GMT -7)   
KitKatBaker said...
Jennifer~
Are you sure the Saints are even playing this year???????
 
Go Colts!

D@#$ KitKat, that is HARSH! It was only the first "real" game of the season. Give em a break.....
Jennifer/32
CD since 10/2005
Asacol 2 pills 3 times daily
 Imuran 75 mg once daily
Prednisone 40 mgs daily; I am on a short dose this time, thank goodness.
40 mgs for week 1, 30 mgs for week 2, 20 mgs for week 3, then 10 mgs for week 4 (done on 8/22).
 Lomotil as needed for cramps and D
B-12 supplement 1 mg daily
Levoxyl (Thyroid)
New Orleans, La, US

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