Any good Crohns docs in Philly, or New Jersey???

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Deese
New Member


Date Joined Sep 2007
Total Posts : 19
   Posted 9/9/2007 7:37 PM (GMT -7)   
HI all...anyone know of any Chrohns specialists in New Jersey or Philly area??? Any help would be great....Thanks.. My gastro guys are a big group...always getting a different doc with different opinion...and they are only dabbling in Crohns. I want someone who specializes in Crohns...and would be up on the recent drugs and research etc....Thanks in advance .. :-)   Deese

Newlywed3
Regular Member


Date Joined Oct 2005
Total Posts : 129
   Posted 9/10/2007 5:13 AM (GMT -7)   
Philly - Dr. Francis Dufrayne at UPenn.  He is fantastic.  He spends time with me making sure I am getting all my questions answered.  He knows a lot about all of the newest treatments and weighs them as options against the older ones.  I never have to wait too long in the waiting room for an appointment.  The staff is friendly and efficient (and if you go as often as I do, about once a month, they'll get to know you by face/name.)  If you call him between appointments with a question, he personally will call you back within two days.  Also the office is linked to UPenn which is a great hospital.  Oh and if you have an emergency the on-call staff is excellent.

karasmommy
Veteran Member


Date Joined Mar 2005
Total Posts : 589
   Posted 9/10/2007 7:42 AM (GMT -7)   
Where are you exactly?  I go to a GI in Lancaster about a  1 1/2 hour drive west of Philly.  I really like my GI and the other ones that I have met and seen in the practice.
 
It is called RGAL (see www.rgal.com) for information.
Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Flexeril 10mg as needed, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil, Cal/Mag Supplement
Off Immuran as of April 1st and doing well!!
 


prof
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Date Joined Feb 2003
Total Posts : 1195
   Posted 9/10/2007 10:40 AM (GMT -7)   
There is also the group at presbyterian hospital. Dr. Deren is one of the best... good luck


PaulieV
Regular Member


Date Joined Sep 2004
Total Posts : 152
   Posted 9/10/2007 12:06 PM (GMT -7)   
Deese,
I have seen a few of the leading docs in the phila area. As prof said Dr. Deren @ Presby is supposed to be the leading doc in the industry with IBD....as far as my experience with him.....****ing jerk....as he only looks for classicl signs/symptoms of IBD...I wen to see him three years ago and he stated to my mother while I was out of the room "it is all in his head", needless to say since then I have been dx'd with crohns. I suggest Dr. Choudhary (female) at Jefferson U....she is great, and takes the time to look at your case.....Dr. DeMarino is also good there. Also I had great experience with Dr. Tokar at Fox Chase....he is young but is willing to think outside the box....he actually got my insurance to cover an expensive test (double balloon endoscopy, a scope which can go all the way through the intestinal tract)...there are only a handful of doctors who perform this test in the US at this time. If you have anymore questions you are more than willing to contact me through me personal email as I have seen a ton of "experts" about this crazy disease.
Paul

prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 9/10/2007 9:06 PM (GMT -7)   
hEy pAUL.... gald to see you r heere! How r you???? getting the treatment you need??? Hope u r feeling better!!

prof


philly
Regular Member


Date Joined Mar 2005
Total Posts : 31
   Posted 9/13/2007 7:50 PM (GMT -7)   
I use Dr. Lubinski in Abington. He's part of a large group, but trained at Johns Hopkins and seems up on things. He IS part of a large group and the only problem I've had with having to see other docs is when I'm in the hospital.

He has a great personality and is very caring.

Good luck!
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