I'm in the opposite position. I was originally diagnosed with Crohn's, and now they're saying it might be UC instead. Weird, isn't it? You get used to the idea of one disease, and then they decide it's really something else. Hang in there.
Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength
Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Taking low amounts of Pred now & 3600mg of Asacol currently...Can't wait till I can get back on Remicade, my miracle drug!
I started out as IBS....but that doc was just running a test mill...every patient that went in was told IBS and then scheduled for scoping from top to bottom...given ASacol and Prilosec...I think he was just feathering his bed getting ready for retirement...I never got better, actually got worse with him, so i wnet to the folks at USF...there the doc kept calling it UC or non-specific UC...after two years of the same old stuff and still feeling terrible ..I found another doc in Gainesville at Shands...he refused to look at copies of my old scopes until he had done one of his own....he told me that without a doubt it was crohns...he couldn't understand how it was missed or call non-specific...he said it was classic crohns.
After what I have read on this site for the last year or so...I think this type of progressive DX is fairly common.