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Regular Member

Date Joined Aug 2007
Total Posts : 350
   Posted 9/11/2007 9:32 AM (GMT -6)   
How common is it to need vitamin B12. I have never been test nor has my GI ever mentioned anything about it but I read alot of peoples signatures and even posts throughout this site. And a lot mention b12.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 9/11/2007 9:39 AM (GMT -6)   
Seems to be fairly common, especially with disease in the terminal ileum, where B12 is absorbed. Apparently we tend to hit low B12 levels over time, which is basically undeectable until anemia and other symptoms appear. A lot of CD patients seem to be on B12 supplements. It's probably a good idea to have your GI test B12 levels from time to time.

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 9/11/2007 9:44 AM (GMT -6)   
MacG...definitely have it tested. I was getting B12 shots for years and still fell into extremely low levels and very low on iron. Lead to respiratory difficulty, dizziness (although I always am :-) ), tingling extremities and face and general weakness. It is a lot easier to keep things stable if you watch it consistently than if you let it get to a bad level. And yes, the TI does have a major impact...I had mine removed in 1990 so I get little from digestion of foods.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/11/2007 9:47 AM (GMT -6)   
Hi I have been giving myself a B-12 injection once a month. Especillaly since I had surgery.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Mar 2007
Total Posts : 301
   Posted 9/11/2007 10:41 AM (GMT -6)   
Hi MacGyver.None of my docs ever mentioned checking my b12 either.I finally got wise after reading posts on here & requested to have my levels checked because I was having some major symptoms of b12 deficiency.My results fell into the low normal range,but because of the symptoms,my doc advised me to start taking 2000 mg of b12 sublingual dots daily.

After 3 months,my b12 levels have nearly tripled & some of my other symptoms have disappeared completely,and my energy level has increased tremendously.I think that you should definitely talk to your doc if you are having any concerns.Take care.
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 9/11/2007 10:41 AM (GMT -6)   



I just wonder - what kind of level (in numbers) is your B 12 on? Here in Scandinavia the level is measured between 150 - 580 someth. Mine is 214. I red some place that even if the level is near 150 - 200 it could be an idea to get B 12 shots regularly just to get rid of the tiredness, get more iron and feel better.


From Ingrid

Regular Member

Date Joined Aug 2007
Total Posts : 41
   Posted 9/11/2007 1:31 PM (GMT -6)   
I have a B12 deficiency. My dentist actually informed me. The ends of my mouth gets really dry and chapped. I take a B12 supplement.
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
I'm currently on Cipro and Entocort (3mg/3xday). The Entocort has given me lots of issues. Really puffy cheeks, the inability to lose any weight while working out constantly, lots of acne, weird hair growth, and these random stretch marks on my thighs and breasts. I told my Dr. I thought I had Cushings Syndrome, which is an effect of Entocort, but she doesn't believe me.
This site is great for support.

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