Not a Candidate For surgury ........Pyoderma Related

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Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 9/11/2007 7:34 AM (GMT -7)   
 Even though they want to do surgury I have seen 3 docs and gi's and its a no go ......
They are worried the sores that erupt from the PG will come out in the organs .......what the hades do I do now ..........MY Family doc and GI are definitely on the NO go list as they have seen what the sores do on outside
 Fed up and have no clue what lies ahead ....constant D am down to 98 lbs again and not making toilet every time .....Jeesh .....its a WONDERFUL life .....BUT hey I am alive............RIGHT
Thanks for letting me vent all ....I am standing beside myself ....and toilet lol
 
Hope all are having a good day ......gotta laugh or I would be balling face off ....D it all
 
LYN tongue

 


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 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
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Post Edited (Howlyncat) : 9/11/2007 8:42:07 AM (GMT-6)


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 9/11/2007 7:38 AM (GMT -7)   
Gosh, Lyn I don't know what to say. I am so sorry.
Forum Moderator 
I will find a way, or make one.-Philip Sidney
Make sure your suffering has meaning...


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/11/2007 7:39 AM (GMT -7)   
sorry you are having isses with the PG which is holding Sx up. Do they have any meds that can help the PG enough so you can have Sx?What does your doc have you on to help the CD now since you are having issues?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 9/11/2007 7:40 AM (GMT -7)   
Oh Lyn...am holding you up in my thoughts and will support you whenever you need it. Can they consider surgery if you get the skin into a controlled situation?
Please take it slow and easy right now. All those things we tell each other...eat as best you can, get some supplements and live your life without embarrassment.
I am glad you are here and definitely glad you are you even with all of this junk. Keep talking to us and hope you feel better soon.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/11/2007 7:44 AM (GMT -7)   
Hi Lyn,
What about Humira or Remicade. Has your doctor talked to you about either of these 2 drugs.
TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 9/11/2007 7:49 AM (GMT -7)   
Hi Lyn,

I am sorry to hear things still are not going well. I hope you got moved ok. I made it to Colorado, now I need a job. I wish they could fix you up soon.
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/11/2007 7:56 AM (GMT -7)   
I have had this D PG for about 14 yrs and there is nothing to control it
I am the worst case they have seen and I have almost lost limbs with it
I know there are others out there that have this and for me it has progressed to the point of no return .......

I am waiting for a real quick answer and approval for Remicade it was sent in and doc is furious not heard back .........
I am soo hoping I get it asap and maybe ( crossing all digits ) that I get it
I dont honestly know if thats the answer to my prob for now but praying it is

I am on CD meds .....ASACOL....and take Pred ....err and still NO weight gain.......
There has to be something better any suggesstions please..... and Pain meds but so sick of having to get up take pain pills to function ya know ........NO Anti D do anything for D and you would figure with Oxycontin 60 mg q 12 h plus Percocets for BT pain......would at least give me a formed stool to a point but as no luck
Last night I had a twinge in tummy bathroom is like 8 ft away never made it all over the place and then I was on the floor in agony ( this is with pain meds .....) Cait was in shower 3 floors up and never heard me yelling but that sweet angel finally did come down and cleaned her mom up .......Silent tears of embarrassment and pride that I have been at least blessed with her and ALL of you ........
I will keep talking I promise I have held too much in as Peter has told me ..........

Thanks again.......

Thanks to all I appreciate your love and concern I honestly do ......LYN.

** also on MTX ....folic acid ......Diazapam ........


    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  

Post Edited (Howlyncat) : 9/11/2007 9:06:41 AM (GMT-6)

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