Constant FEVERS with Humira...anyone else??? PANCREATITIS from Humira???

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Hayleybaby
Regular Member


Date Joined Aug 2007
Total Posts : 76
   Posted 9/11/2007 8:34 AM (GMT -7)   
Since I've started Humira, I seem to be runnning fevers every couple days. Anywhere from 99.6-103.1  I've been to the ER twice and both times I ended up with a doc that said they did not know that much about Humira and wasn't real sure what to do??? DUH--how in the hell and why in the hell are you a doc???  In fact yesterday the doc asked me-well what would you like me to do? What test would you like me to run? You've got to be kidding me!!!! I told them to call my specialist 4 hours away and he could tell them what to do and of course the dumb--- waits til after 5 to call and by that time my doc is gone for the day. NICE. NOT!!!!!! So I ended up telling him different test to run just based on past visits to the ER and it came back I have mild pancreatitis. Is this normal?? Any experiences would be greatly appreciated since we the patients are obviously smarter than the docs at least 85% of the time. mad
30 yr. old dx with CD 10 years ago. Currently on folic acid and azulfadine.  Had ileum removed and resection May 2007.  Just started back to work after being off 13 weeks.  Still feeling lousy.  In the process of trying to get approved to start Humira ASAP!!!!  It scares me immensely!!!!  Just started Humira 8/20/07-loading dose of 4 pens (160mg).
 
Allergic to: Asacol, Pentasa, Imuran, Paxil, Zoloft, Penicilian, Ampicilian
 
And prednisone does not work for me anymore!!!


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/12/2007 3:55 AM (GMT -7)   
Bump
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 9/12/2007 5:10 AM (GMT -7)   
Hayleybaby said...
Since I've started Humira, I seem to be runnning fevers every couple days. Anywhere from 99.6-103.1  I've been to the ER twice and both times I ended up with a doc that said they did not know that much about Humira and wasn't real sure what to do??? DUH--how in the hell and why in the hell are you a doc???  In fact yesterday the doc asked me-well what would you like me to do? What test would you like me to run? You've got to be kidding me!!!! I told them to call my specialist 4 hours away and he could tell them what to do and of course the dumb--- waits til after 5 to call and by that time my doc is gone for the day. NICE. NOT!!!!!! So I ended up telling him different test to run just based on past visits to the ER and it came back I have mild pancreatitis. Is this normal?? Any experiences would be greatly appreciated since we the patients are obviously smarter than the docs at least 85% of the time. mad

Obviously you need to consult your gastro if you have not already done so....and you might try calling the Humira customer line....they have all sorts of resources that might point you in the right direction.  Certainly they should be able to tell you if your reaction is one thay have seen before.
 
Who knows...it could be directly related to a reaction from the drug...it could be related to your immune system being weakened by the drug....or...or...or...
dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old

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