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Gonzo14
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/11/2007 11:50 AM (GMT -7)   
Hi, I have never been on a forum about Chron's although I have had it for 18 yrs. The only meds that have controlled it is prednisone and the side effects are almost as bad as the disease long term. I am allergic to sulpha based drugs, the last med my specialist tried was pentasa which I ended up in the hospital from the reaction within 24 hrs. Recently they upgraded my pain meds from tylenol 3 to morphine which helped with sleeping ( I have arthritis in my hips and back ) but I am not to sure about long term pain med use. I also take losec for heartburn, which one pill a day works wonders for me. Any information about new chron's medications would be appreciated. Also anyone suffering from back and joint pain as a side effect of chron's, information on how you deal with it would be great, I have tried celebrex and it didn't work.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/11/2007 3:02 PM (GMT -7)   
Welcome to Healing Well, Gonzo! I'm glad that you found us. I think you will discover we have a large community of knowledgable and supportive felllow Crohnies.

I want to address your hip and back pain first. What I have to say will tie into your search for other meds. Have you ever benn evaluated by a rheumatologist? Anyone with Crohn's and joint pain of the caliber requiring narcotics needs to find out what the root cause of the pain is. A rheumatologist is best suited for that because often people with CD have autoimmune joint issues associated with the disease. I have Ankylosing spondylitis which causes debilitating joint pain when it flares. People with Crohn's are more prone to have this or one of the other spondylitis associated diseases. At the bottom I will give you a link so you can read about thses joint conditions.

My joint problems became a much larger problem than my Crohn's gut symptoms. With that in mind and the need to get my joint disease under control, my GI placed me on Remicade and Imuran. Imuran is a immunomodulating drug to combat the overactive nature of the immune system we CDers have. Remicade is a biologic medication. It is an anti-TNF medication. People with CD can produce too much TNF that is a factor in inflammation. Remicade is prescribed and approved for use in both CD and Ankylosing Spondylitis.

There are several medications that are out that you did not list. Some have been developed to treat CD in a specific area of the intestinal tract so might not fit for you. I'll put a link at the bottom where you can read about each of the medications.
Antibiotics such as Cipro and Flaygl
Entocort
Imuran or 6MP (Purinethol), methotrexate, cyclosporine
Remicade
Humira

Spondylitis Association of America - Read about joint issues that can effect those with CD

CCFA's Arthritis Fact Sheet

CCFA's Medication Fact Sheets

Look up meds at MedicineNet

I hope this helps somewhat and doesn't confuse the issue.


Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

Post Edited (Ides) : 9/11/2007 4:17:45 PM (GMT-6)


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 9/11/2007 5:29 PM (GMT -7)   
Welcome!

Ides summed it up and gave you some good info.

I have been on imuran and remicade for almost 3 years now, and it has given me my life back. I could hardly walk before I started these drugs becaue of the joint/body pain.

grandma scooter
New Member


Date Joined Sep 2007
Total Posts : 3
   Posted 9/11/2007 7:25 PM (GMT -7)   
My husband and I are new to this too, finally found the right Dr, and hopefully the right meds (for him).  Keep up to speed with the info and do a lot of research.  It's the only way we have been able to deal with the Crohn's treatments and all the medicines.
Married to Scott who has Crohn's (diagnosed 1988).  I do all the research, go to his Dr appts. and try to keep meds figured out!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/12/2007 5:57 AM (GMT -7)   
Hi Gonzo Just wanted to add my welcome and hope you get to love HW like I do it is a great place and we need all the Cder's we can get to share and it is great to not be alone .lol gail

Maja
New Member


Date Joined Jul 2005
Total Posts : 5
   Posted 9/12/2007 6:53 AM (GMT -7)   
Hi Gonzo Just wanted to add my welcome, I am quite new to this place too.
Maja

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 9/13/2007 11:10 PM (GMT -7)   

just wanted to tell you welcome also!  I'm a newbie too and the people here have been great.  You will find a lot of information here.

take care


Newbie - 35 yrs old Diagnosed: 08/03/07
Meds Asacol 3x day

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