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Regular Member

Date Joined Sep 2007
Total Posts : 32
   Posted 9/11/2007 9:25 PM (GMT -6)   
I am a 44 year old woman, diagnosed yesterday with non-specific colitis.  I have mouth, esophogeal, stomach, colon, rectal, and anus involvement, but apparently the biopsies didn't indicate Crohn's.  The doctor said my symptoms are highly indicative of Crohn's, but she stopped short of calling it that based on the biopsies taken during my colonoscopy.
I have a lot of diverticula, and get frequent diverticulitis infections.  I started this summer with what was thought to be diverticulitis, for which I took Avelox and Flagyl.  I was running a high fever and had severe cramping with constipation.  After 10 days on the meds, I had about three good days, then started with diarrhea about 15-20 times a day, fever over 102, very bad pain and cramping all the time, not just when I had to use the bathroom, and pretty much felt like dying.   I went back to my  regular doctor, who sent me for a CT of my abdomen.  The radiologist favored a dx of Crohn's because of thickening in several areas of the colon and multiple areas of stranding.  I don't really know what that means.  I was put on 15 days of prednisone and refered to a GI.  By the time I saw the GI, about two weeks later, I had lost 20 pounds (which was the only bright side...). 
The colonoscopy showed no involvement in the terminal ileum, but have patchy inflammation in the transverse colon, and many areas of inflammation in the descending colon and rectum.  The CT showed thickening in the cecum as well.
Since June I have been eating plain yogurt with crackers, noodles with bland sauces, and the occasional turkey sandwich on white bread.  I can't tolerate so much as a flake of parsley in my food, no whole grain crackers or bread, I'm using lactose-free
milk, drinking plain water.  I still get d sometimes even eating this, but if I try anything else, I will be sick all day and night.  I ate baked chicken breast a few nights ago and regretted it for over 12 hours.  I can't eat any sugar. 
After the colonoscopy, I started on Asacol, which helped my belly, but gave me severe headaches.  Yesterday the doctor started me on Colosol, nine pills a day.  I hope it will help without causing migraines.
I have many autoimmune type problems, but also have a lot of immune disfunction problems as well.  I get sick with every cold, bronchitis, skin infection, etc. anyone brings near me. 
I know this is long, but very few people I know understand what I go through, and I think many of you will relate.  I have learned a lot from reading the forum the past few weeks.
 Edited to clarify and to correct a spelling error.

Post Edited (sweettea) : 9/12/2007 3:56:36 PM (GMT-6)

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 9/11/2007 9:38 PM (GMT -6)   

Welcome Sweettea!

I'm sure you'd rather be anywhere else but here, but we're glad you stopped in.  Sure sounds like Crohns to me!  The high fever is probably indicative of an infection which they haven't cleared up.  I go through many of the symptoms you mention.  I have CD in the illeum, stomach, descending & ascending colon.  Migrains, gallstones, skin and sinus problems.  Keep reading on this forum.  It's been life sustaining for me this first year of "actual" diagnosis.  Oh can add perimenopausal, ovarian & breast cysts, fatigue, low grade fevers, night sweats and depression to the above list too for me. You'll find the answers you seek for most of your problems if you just keep trying and remember to sort through all the information with a grain of salt.  Everyone is different so just hang in there!



Dx'd Jan'06, 1st Resection 7/06, Predinsone, Remicade, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain.  Lactose Intolerant?
Attitude: When I stand before G-D at the end of my life, I want to be able to say; I used every talent you gave me in a positive way to help others along their way!

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 9/12/2007 1:45 AM (GMT -6)   
Welcome, Sweettea,
Welcome to this family of crohnies, or yet to be diagnosed crohnies. This is a great bunch of people and I am glad you have found. It must be awfully frustrating for you to be so close to a diagnosis but just shy of one. Don't hesitate to let us know how you are doing. ...and come visit just to vent if you need. We all understand each other pretty well, sometimes better than our own family members who may not share these same symptoms.
Love and prayers
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 9/12/2007 3:19 AM (GMT -6)   
Hi there and sorry to learn of your problems and possible Crohn's diagnosis.

I thought it was interesting what you wrote about getting sick with every cold that passes by. Did you know that a drug that increases the immune system has had some success with Crohn's? They have yet to do the very necessary double-blind study, but they did a preliminary trial with 17 people that showed great promise. You might want to look into it As I sit here with a sore throat and sniffles and am the only one in my family who is sick (including a toddler) I have to wonder about the theory that my immune system is on overdrive. There is so much yet to learn about the immune system, apparently.

Good luck to you and I'm sorry you're suffering.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/12/2007 6:08 AM (GMT -6)   
Hi Welcome to Hw glad your here with us and I too did lots of reading that helped. You mentioned you lost a lot of weight and are not eating. I did ensure to help me with nutrients which is important .MY B12 went down and potassium as well as protien as I had lost a lot of weight. I started on the low roughage diet and pred. this got me feeling better and putting on weight I was getting quite weak.Creamed soups are great for when your not so good and I strained mine when I had to. Tuna on white was easy for me too. Low roughage are foods easy to digest so the body has less problems digesting food. I also chewed the food really good. Hoping you meds kick in soon. We"re here for you and it is so nice to have someone else to share our lives with and IBD. lol gail

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 9/12/2007 1:53 PM (GMT -6)   
?????Non bowel involvement & its not CD. Sorry, but that isn't a REAL option for you. I'd watch those docs closely, while learning about these illnesses. You may need a different doc, sorry to say.
Anyway, here is another HealingWell welcome..


Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 9/12/2007 3:13 PM (GMT -6)   
welcome and sorry you have been so ill. Like you, I started all this in my mid-40's and found HW to be a life saver. Just know that all these meds and tests take some time. it is hard to get through it all (and I still am) but be kind to yourself, take anything you need to feel a bit better, be well-informed, and find a GI you trust and like.
keep those posts coming. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and with pain, but doing ok.

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 9/12/2007 4:20 PM (GMT -6)   
Welcome Sweettea.  I have lots of issues as well with Crohns!  Just wondering do you have any dental or periodontal issues? I now have to spend so much money because after being on so many immune suppressants, my teeth are getting bacteria and now they have to go in and really clean my gums. I'm so mad. So much other stuff we have to deal with besides our disease.
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.

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