Peri-anal fistula

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

crohnie_boy
Regular Member


Date Joined Aug 2007
Total Posts : 29
   Posted 9/12/2007 2:34 AM (GMT -7)   
I have  a peri-anal fistula for a few years now.I have bleeding ,pus discharge, and very bad itching from the fistula as well as my anus. I know that the pentasa I am on can cause anal itching. I have tried PREP H and a few other hemmie creams.
What has worked for you ? Advice is appreciated
 Hi I'm crohnie_boy
 33yr old boy . Diagnosed @ age 14 ileocolitis crohn's.
 Taking Pentasa 1500mg twice daily
 Try to keep smiling ,but hard sometimes


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/12/2007 6:20 AM (GMT -7)   
wet wipes help. I also squeeze it to get the puss out - that relieves the tenderness and oozing for a couple of hours. The oozing and "stuff" sitting on the area is what causes the itching.
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Bram
Regular Member


Date Joined Feb 2007
Total Posts : 48
   Posted 9/12/2007 6:22 AM (GMT -7)   

i have used proctosedly  and cortifoam with the itching i had a seton drain put in that helped alot with the infection but the proctosedly helped the most with the irritation of the fissure

 


rhdeckar
Regular Member


Date Joined Jan 2006
Total Posts : 47
   Posted 9/12/2007 6:58 AM (GMT -7)   
I am having outpatient Surgery in a few weeks for an anal fistula. I am having a plug put in that is made of material that will heal the tract and grow into my skin. It's made by Cook Medical in Bloomington, Indiana. Other than that, I don't have much relief in dealing with it other than using gauze between the cheeks to keep it dry.

Rhonda

Started having issues in '92; lived with it until October '05 when I had a constant low grade fever for 3 months. CT scan showed Ulcerative Colitis. Capsule Endoscopy, Colonoscopy and upper GI November '05 gave diagnosis of Crohn's and GERD. I have ulcers from my mouth to my bottom and have had fissures/fistulas. Tried Prednisone, Azasan, Asacol and others with no improvement. Started Remicade infusions February 2006. Doing better but still don't feel 100%.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 9/12/2007 7:02 AM (GMT -7)   
Have you checked with your doc to see if you need antibiotics?? That's my first thought.
After that, soak in warm to hot water often really helps. Also, the RN at my surgeons office gave me a cream that helped keep the area dry during the day---I never got the name of it, but I would ask your doc about it.
Seton was fantastic for me. Think about it as a relatively non invasive option possibly.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/12/2007 7:07 AM (GMT -7)   
I had hemmie surgery and a couple of skin tags removed before learning that I have IBD.   (whoops!)  The incisions haven't healed much, and I have a lot of itching and irritation in the area.  I switched surgeons after my diagnosis, and the new guy suggested Calmoseptine.  It's an over the counter cream, but you'll probably need to ask the pharmacist to order it for you- they don't generally stock it.  I know our situations are different, but this stuff has been a huge help for me, and the label says it's good for fistulas, too.

MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/12/2007 7:33 AM (GMT -7)   
Bram said...

i have used proctosedly  and cortifoam with the itching i had a seton drain put in that helped alot with the infection but the proctosedly helped the most with the irritation of the fissure

 


Bram,  Are those prescription or over the counter?
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/12/2007 7:41 AM (GMT -7)   
rhdeckar said...
I am having outpatient Surgery in a few weeks for an anal fistula. I am having a plug put in that is made of material that will heal the tract and grow into my skin. It's made by Cook Medical in Bloomington, Indiana. Other than that, I don't have much relief in dealing with it other than using gauze between the cheeks to keep it dry.

http://www.cookmedical.com/sur/datasheetFeature.do?id=570
The video here is very good at explaining how plugs work.  I'm wondering though, after this, does the plug get pushed out naturally?  How long does it generally take to heal?   Also, I assume I should make an appt with surgeon for this procedure, right?


32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 

Post Edited (MishBall2) : 9/12/2007 8:55:47 AM (GMT-6)


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/12/2007 7:52 AM (GMT -7)   
After my resection surgery, I had lots of itching. I used a sitz bath and it really relieved it. Lots of wet wipes too.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 9/12/2007 8:58 AM (GMT -7)   
Lots of sita baths and Rosebud salve at Sephora.I use baby wipes too but have to watch the brand.

36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 9/12/2007 11:49 AM (GMT -7)   
I had a peri-anal fistula in april they did a fistulatomy in the end of april. I notices the itching and "puss" up until about a month ago when It finally healed up.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone
myspace.com/finalmacgyver


ckmom
Regular Member


Date Joined Jan 2007
Total Posts : 67
   Posted 9/12/2007 2:23 PM (GMT -7)   
Ginger,
You said
"Lots of sitz baths and Rosebud salve at Sephora.I use baby wipes too but have to watch the brand. "

Who makes the Rosebud salve? Does that really work?

Crohnie- boy,
I use aloe gel around the area, and that seems to help me alot.

ginger71
Veteran Member


Date Joined Nov 2005
Total Posts : 722
   Posted 9/12/2007 3:36 PM (GMT -7)   
ckmom-
 
Smith's Rosebud salve is made by Rosebud perfume co. They have been making it since 1892 and it is used for diaper rash so I tried it on my butt. It is basically like a vaseline with a rosy smell. It feels good and I am always paraniod about the smell of drainage so it's extra nice to have a lighlty scented cream :-)
I also have a tin that I use for my lips and cuticles but it is very clearly marked so there is no confusion! tongue
 
rhdeckar-I had the fistula plug and it failed. Hope it works for you! :-)   Let me know if you have any questions about it.
Ginger
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)


HuskerFan
Regular Member


Date Joined May 2007
Total Posts : 79
   Posted 9/12/2007 6:22 PM (GMT -7)   
I understand what you are going thru...I have a C-ton in for my lovely fistula. I take a bath EVERY morning. I just soak in the tub for 15 mins. This helps with the itching and pain ....I have noticed on the days I dont take a bath...and take a shower...that I am in a much more irritated state (ie: itching, draining is worse and the smell( to me) is worse.)

Ginger....I had the fistula plug done as well...and it failed... I really do hope it works for whoever gets it...And I never thought of putting a cream on my Butt! That is a great idea. I will have to go to Sephora to get it .
Mis-diagnosed for two years--doctors thought I had RA!

Fistua surgeries in Sept 2006,Dec 2006 and Aug 2007
Centon placed in fistula track during last surgery..permanent open wound
Finally diagnosed w/CD & Fistulizing Disease in Jan 2007
Currently taking Remicade since May 2007


can_climber
Regular Member


Date Joined Jan 2006
Total Posts : 43
   Posted 9/12/2007 6:42 PM (GMT -7)   
I found that my fistula used to bother me quite a bit, and would get "backed up" and even quite tender. Now I keep some folded up gauze between my cheeks at all times and that seems to improve drainage immensely.
If you go this route, try to buy non-sterile gauze as it is much cheaper. Also, if you find yourself engaged in active pursuits...tape it in...just be ready for ouchy when you take it off later!

LEH
New Member


Date Joined May 2014
Total Posts : 3
   Posted 5/20/2014 8:39 PM (GMT -7)   
I've had an anal fistula for about a year now, when the cyst finally burst into an abscess last summer and I had my first fistulotomy in August, and had a recurrence of the fistula (which never full healed in the first place, just got worse by December), so had surgery again with a fistulotomy in Jan. It is now 41/2 months post op and still not healed and still having issues. My colorectal surgeon claims it's just "slowly" healing, but initially quoted "up to 2 months" healing and I'm more than double that. about 3 weeks ago I had a strange encounter where a quarter size blister developed on top of the fistula, she wrote my antibiotics and it finally drained a lot and went away, but every 3-4 weeks the surgeon silver nitrates it since it's still open a bit. Gross to admit, but I also have a problem with like bowel leakage for hours after a BM, even with taking a shower to clean the area after. That is my biggest annoyance, considering I am only 25 and also forgot to mention extremely healthy, no other health issues, doc is 100% positive I don't have chron's as well.

texikka
Regular Member


Date Joined May 2014
Total Posts : 70
   Posted 5/29/2014 5:59 AM (GMT -7)   
Anal fistules are pain in the a** literally!!I had 2 of them.One became an abscess.It hurted so much i couldn't move.Before surgery i used gauses between the butt cheeks.Becaused i could still go outside and everytime i walked my butt got wet :( .And had warm baths for 10 mins a day.I squeezd the puss out,because it was hurting.After surgery i was continuing with the baths and using ProctoGlivenol candles.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:47 AM (GMT -7)
There are a total of 2,735,214 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
182 Guest(s), 3 Registered Member(s) are currently online.  Details
tidalmouse, magoo2, NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer