Have you had a capsule endoscopy?

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Ohana
Regular Member


Date Joined Aug 2007
Total Posts : 89
   Posted 9/12/2007 6:56 AM (GMT -7)   
My doc suggested that I could have this done if I want to find out more about what is going on in my small intestine. During the colonoscopy he found some signs of CD in the terminal ilium but I never really have pains on my lower right side. My pains are left side, upper abdomen bloating and lower middle abdomen.
 
Anyway, if you had one - how did it go? Did you have any pain? Did you get sick? Did you have to take a prep? Did you learn any useful information?
 
My doc is not even sure it is Crohn's. The pathology report said "strong indication" of Crohn's. I do have many other Crohn's symtoms like arthritic joints, eye problems, lightheadedness, sores on my head. I've found out, though, that my doc does not really care about my other symptoms. He said, "Those could be from any number of things."
Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)


redrose
Regular Member


Date Joined Feb 2007
Total Posts : 138
   Posted 9/12/2007 7:32 AM (GMT -7)   
I had a capsule endoscopy back in Dec. Easy as pie. Swallow the camera - about as big as a large vitamin pill- strap on the computer pack and go about your day. Mid to late afternoon you take the computer back to the lab. It takes like 2 pics a second and gives a comprehensive look at what is going on in the small intestine. At some point, if you do not see the camera pass, they will probably do an x-ray to make sure the camera has passed. It does get stuck occasionally if you have severe strictures. That happened to me and I landed in the hospital. I ultimately had surgery to remove the camera and about 2 feet of small intestine. Usually though its a piece of cake.
Redrose

Undiagnosed symptoms for many years. Dx w/ Crohn's in 12/06. Sm. Bowel resection (60cm.) 1/07
current meds: Imuran, pred., pentasa, kristalose, probiotics, omega 3, temazipam, oxycodone for continuing pain

Count your blessings - not your problems


Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 9/12/2007 11:31 AM (GMT -7)   
I had it done and was diagnosed with this test.  It saw everything the other tests couldn't.  It was just a really long test, I think 8 hours.  But no biggie.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/12/2007 1:14 PM (GMT -7)   
it is the easiest test ever. the only hard part is spending the day looking like the unibomber, but it made for lots of fun at the college where I teach. good luck. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and imipramine...living with pain, but doing ok.


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 9/12/2007 1:31 PM (GMT -7)   
I am having one done Sept. 25th. I will let you know how it goes.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 9/12/2007 2:19 PM (GMT -7)   
I've had this test done twice. It was pretty easy. Assuming you don't have any strictures, it should be no problem for you. If you have a stricture and the capsule gets stuck, you might need surgery to have it removed (an unlikely possibility but it should be discussed with your doctor).

My doctor required a prep the night before with Fleet phospho-soda, but I've heard some doctors don't require a prep before this test.

Dave D
Regular Member


Date Joined Aug 2005
Total Posts : 404
   Posted 9/12/2007 3:12 PM (GMT -7)   

If you have any history of obstructions, don't do it.

Read my bio.

Dave D


Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment. The upside? Right now I only have to clean one side (lense) of my glasses.
Married with 4 grandkids.


Ohana
Regular Member


Date Joined Aug 2007
Total Posts : 89
   Posted 9/13/2007 11:58 AM (GMT -7)   
Thanks for all your answers. I kind of want to do this but am pretty scared about it getting stuck. Can they tell if you have strictures by viewing a CT scan first? I did have a CT scan (with barium) done about 2 months ago.

Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/13/2007 1:28 PM (GMT -7)   
yes a ct can show stricures. I had a stricure and the test 2 times and it never got stuck
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 9/14/2007 12:25 AM (GMT -7)   
Is it possible for your doctor (or where you'd have it done) do a patency capsule first? That gives you a better indication if it will get stuck or not. I did two patency capsules, which both got stuck, but I still went ahead with it anyways because nothing else could diagnose this other stuff for me right now. The pain I have is too far in for either scope (in the colonoscopy or endoscopy) to find it. I wouldn't just go off the CT scans though. My doc was telling me about a patient who was having pain too and she had CT scans and MRI's that showed up normal. She did the capsule and it showed strictures. I still don't know the results of mine yet.. but I should be getting them soon.

The test wasn't that bad. I definitely didn't go about with a normal day though. The computer monitor thingy that's on the belt is kind of bulky. Plus, just walking through the hospital I got looks like I was wearing a bomb. I did have to do prep for mine, but I think that's unusual. My doc was just worried it was going to get stuck so he wanted to clear the way as much as possible. So that was the only not fun thing for me really, as the prep was still "leaving" me while I was hooked up for the 8 hours. But it's really not bad at all. And then in a few days, if you haven't seen it pass, they have you get an x-ray to see if it's passed. I'm really hopeful that I get some clarity with the results.. since nothing else has really helped so far. So as of right now, I would recommend doing it.

stormnation
New Member


Date Joined Sep 2007
Total Posts : 7
   Posted 9/21/2007 11:58 AM (GMT -7)   

I swallowed the camera. It got stuck on one of my abcesses. I wound up in the hospital for 3 days while they treated me for inflammation. I had to drink Golightly, and the doc had to go up and fish it out. Wait until they develop a dissolvable camera.

I had a MRI of my small intestines a year later, much better procedure, bowel prep wasn't bad, took about an hour and a half.

 

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