I've heard of it...some patients with CD are prone to gettng fistulas...a cluster of genes were discovered that impact the behaviour and severity of CD in each patient, likely the reason why the disease is so individualistic....
here's a link I found when I googled non-fistulizing crohn's...
I've had crohns for 16 yrs straight (no full remisssion ever) and luckily have never developed fistulas.
Thanks for all the replies. I really learned a lot about this and now have done some further investigating.
What I learned: I need to get a copy of all my test records and examine them myself. Apparently the doctor doesn't care to share all information with me. How can I make educated decisions about what meds I want to take without knowledge? He basically told me he didn't care what I tried and that I should make that decision. He gave me several options but didn't bother to go over pros and cons of any of them and just gave me a handout to read. He is turning out to be a turd of a doctor (which considering his speciality doesn't surprise me!)
I need to write up a big list of questions and send them to my doctor. He gives very vague answers and makes me feel I am wasting his time. My ability to search for a new doctor is slim to none since I have to stick with this medical facility and he is the only full-time GI. It takes 6+ months to get in to see him so I doubt I'll have luck getting into the part time guy.
He did say that right now I have non-fistualizing CD, and insinuated that it could change in the future. But, he did not tell me if I have Inflammatory CD or Stricturing CD. Based on my symptoms that seem to be moderate at this time and the fact that they didn't say anything to me after my CT scan, I would guess it is inflammatory. But wouldn't it be nice to know. Isn't it possible that the drug of choice would differ depending on what kind you have?
I guess I have just begun the journey of living with CD AND the journey of dealing with the docs!