i'm sorry to hear about your daughter's health. lucky for you there are forums like this that can offer you some help and advice. i was diagnosed with crohn's when i was 11, i'm 30 now. needless to say, it has been a very long and difficult journey. when i was a child i complained of diarrhea, abdominal pain, blood in the stool and fatigue. after several trips to my pediatrician and the emergency room, i finally got the correct diagnosis and an excellent gi. the next few years were full of bad flares and many hospital stays.
be sensitive to your daughters needs during this time. talk to her A LOT about her health and how she's feeling. teach her to be responsible for taking her meds. let her speak for herself during doctor visits. and be sure that when she's feeling up to it that she stays involved in the activities she enjoys and continues to socialize with her friends.
best of luck to you both.