Tapering off Entocort while on Remicade

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Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 9/12/2007 11:26 AM (GMT -7)   
Has anyone tapered off Entocort EC while on Remicade? I am trying to do that now.  I tried tapering off and stopping Entocort a few months ago, with no remi, and I got really bad withdrawals. I was down to one per day and yesterday I didn't take any.  I have some joint painand insomnia, but so far, it's not that bad.  Has anyone else gone through this?  I seem to be really sensitive to any med changes.  Thanks.
Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 9/12/2007 7:36 PM (GMT -7)   
I have been trying to reduce my dose from 2 to 1 and having a hard time. I feel awful all over when I do. I also don't feel that remicade has helped me at all though either. I am due for my 4th dose next week and my GI is talking about doubling the dose. But he also spoke with the rheumy and the hematologist and wants to talk to me tomorrow about my meds. So I don't know what's up. Hopefully the remicade has kicked in for you, and that is why you can taper more easily now.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 9/12/2007 7:39 PM (GMT -7)   
I didn't taper off of Entocort, but I did taper off 60mg of Prednisone after I started Remicade. I haven't been on Pred since then, thank goodness. Remicade was the only medication that allowed me to taper down without having problems.
Crohn's Disease for a year and counting
Imuran: 150mg
Remicade: Had a delayed reaction, waiting for Humira approval
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/13/2007 2:20 AM (GMT -7)   
Hi Jennifer, I hope things go good for you. The Remicade should help. I have never been on Entocort.
I am also doing Remicade and Imuran great combo.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/13/2007 4:54 AM (GMT -7)   
Hi Jenn Sounds to me like your not doing too bad so far hoping things go good for you.I am coming off pred with the Rem. this time I have to get off it because my glucose is up some so I am determined to put up with some symnptoms of withdrawal. So far it isn't too bad but missing my sugar.I guess that sure will help me to get off it. lol gail

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 9/13/2007 8:54 AM (GMT -7)   
Well it's day 3 now going off and last night I had nausea all night, but other than that, I feel ok! A tiny bit of joint pain, but I am sure Remi is contributing to that as well. I'll keep you posted with any other symptoms. I really hope I can stay off of it. I will lose like 5-7 pounds and it gave me these pimply like bumps on my arms, say good bye bumps! They are already gone!

Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.

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