SSI or disability

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/13/2007 7:18 AM (GMT -7)   
Just curious who on here has ever filed, been denied, won, etc?
 
I filed over 2yrs ago and was denied and didnt know you could appeal or take it further. Im thinking of filing again since they are telling me my right side of my colon is atrophied and based on all my new diagnoses.
 
I know its extrememly hard to get so I was curious how everyone else had made out.

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2007 7:25 AM (GMT -7)   
I have never tried, but I have heard that almost everyone gets denied the first time and sometimes even a second time. I have also heard that you really should always have a lawyer, it really helps to get thru the system quicker. Good luck to you.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/13/2007 7:51 AM (GMT -7)   
Hi Songstress,
 
I've heard all the horror stories too about trying to apply for SSI/disability. I was very ill due to my CD, arthritis & Fibromyalgia. My arthritis and fibro left me pretty messed up. I was in physical therapy for a long time.
 
My GI encouraged me to stop working if I ever wanted to get a handle on my illness, and I finally listened to him and learned the hard way 2 years later.
 
Anyway, I didn't mess around. I found a good lawyer that specializes in SSI/disability and also has knowledge of CD, arthritis & fibromyalgia cases. You can find this out when you are interviewing them.
 
Key is to have all your doctors aware of what you are applying for and having their support. MDs, GI, Rheum,ect. SSI will be sending  all of them plenty of paperwork to fill out and asking for copies of most of your medical records. You will have to fill out a lot of paperwork too.
 
I applied doing all of this and was approved 6-7 months later. Oh and if you are approved, you will be compensated back from the day you first applied.
 
Hope this info helps.
~Sukay~
 
Crohns Disease-Remicade since 1999, Methotrexate
Fibromyalgia & Arthritis
Bipolar & Panic/Anxiety-Trileptal, Xanax, Trazadone, Wellbutrin


supportmom
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 9/13/2007 8:50 AM (GMT -7)   
Our Dr. said it should be very easy, one of the few disease that they don't hesitate to disable you, have you talked to your Dr. about this assistance?

Best of luck to you

Cindy

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/13/2007 9:11 AM (GMT -7)   
no I havent talked to him..but I guess I should I dont want him saying I can work when I cannot

thank you all for your replies

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/13/2007 7:14 PM (GMT -7)   

Songstress hi,

I am on disability and it took me two years to get mine.I would like to point out something so you don't get a shock.When you apply for your disability and you get denied and if you don't appeal with in 60 days grace peroid goes by and then you apply again.you will loose that portion of your back pay.I know it happen to me.When you file by all means please do ask the case worker that will be over your case.

I lost about about seven months back pay because I was told that when when you let the grace peroid exspire (sp)you will loose that portion of the back money.So when you file and you get turned down don't wast any time replying again and that way you will not have to worry about it.

When I applyed for my disability I did it over the phone.I called SS and told them what I needed and I was giving a case worker and she took all of my info,she also sent me alot of paper work as well.

The number one that I will tell any one when filing for disability is that when you get your paper work and fill it out make copy's of every thing.The reason you will be asked the same questions again at some point.When you fill all of this paper work it's hard to remember.

Like the others have said you need to talk to your Doctors and have a talk with them and see if they will back you up.all of your Doctors have to be on the same page.

I am going to set an example and pointers.....I do know some that have crohns and got there diasability the first time around,so I no what I am fix to say is easier said than done but try not to get frustrated (sp).

When I was turned down I felt like alot of other's so I appealed turned down again and that is when I called Sentor Trent Lott and they took my name phone and said the he would have him call and two hours latter Sentor LOtt called me back.I explained my situastion and I was told that he would be glade to help and he did.

Sentor Lott asked me to send him the name of all Docotrs and since I was at the time in a wheelchair and I had severe Edema(fluid) there for I could not work.So the third time I was awarded my disability.I had hired a Lawyer but about the time he started to work on my case I got my letter that I was appoved.

There is alot more info I can give you if you would like you can e-mail and I will try to answer your questions for you.Please let us know from time to  time on what is going on with your disability.I hope that this will help you.

Oh I all most for got to tell you this.I would keep a jurnal and every time I eat and it botherd me then I would the name off the food down and then deatail I would put what side effects that I was having.I also did this with my meds and this will show SS that you are sick.

They want to know how offten do you go to the bathroom and if you throw up how many times in a day as well.They will want to hear from you on how this disease effect's you.They will ask questions what limitaions you have since being sick.They will want to know how this disease is effects you daily.They will want in detail on what you were able to do before you got sick and they will want to know how it has changed.

They will ask if you have to have help with getting dressed and so on.This has gotten long so I will close for now.

 

 

 

 


Curley
.........
 


prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 9/13/2007 8:51 PM (GMT -7)   
It took me almost 2 years but got SSD! You almost always get denied the first time around. The most important part here is that you have your GI on your side. I did get an attorney.. specializing in SSD... helped alot. I got denied a second time ( very usual in my state!) Went before a SSD judge... It was 15 minutes of torture for me.. more emotional but attorney was really knowledgeable in SSD and helped me thru. Also.. contacting any state senators helps... feel free to email fo help!!!! Prof


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/14/2007 12:18 PM (GMT -7)   
I wanted to bump this back up.
Curley
.........
 


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 9/14/2007 4:31 PM (GMT -7)   
I applied, and got denied. Thinking it was 1992, maybe 93.
Appealed, denied again.

Got with attorney, went before admin law judge, approved, thinking 1993, because medicare was 1995.

SSA also put me through some more college. :-)
(vocational rehab.)

Had a review with SSDI in 2000, completed paperwork, lost review.
Filed Appeal, lost it too. Benefits continued throughout the entire process though.

With no attorney I went before an admin law judge.
I explained the situation, the judge found in my favor. (Medication side affects played a big role in this)

I don't know if it is normal to get denied the first time, I know that it very well used to be procedure.
But if you get everything perfected on your first application, then you can get approved on the first try.

Or if you meet the list of impairments, expect a quick approval, see ssa.gov
If you don't meet the list of impairments, don't let it scare, or discourage you, those are STRICT.
Still; any progess in this area is good.

Take Care
CD dx @ 13 (1987)
Prednisone 15mg every other day
Imuran 150mg day
Colazal 750mg 1 tablet 3x day
Pain Meds
Vitamins


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/14/2007 4:35 PM (GMT -7)   
thank you everyone!!

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


edwina77
New Member


Date Joined Sep 2007
Total Posts : 15
   Posted 9/20/2007 12:16 AM (GMT -7)   
I think everyone's experiance with SSI is different. From the day I applied to the date of recieving my first check was 3 months. I was approved on the first time. Just make you sure answer all questions in great detail. Good luck.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/20/2007 10:52 AM (GMT -7)   
i was approved pretty easily too...

for me, i think it was the fistulas that i had/have. The state/fed doctor looked at my rear once and said, "Wow, there is a lot going on down there"

therefore, it was not hard for him to believe my application, wherein i stated that "sitting and/or standing for any length of time caused extreme discomfort.

good luck, and make sure you do not understate your symptoms!

On another note, one thing interesting about my time on SSD was that when I went back to work, they kept paying me.

I am not talking about the usual "return to work" period. I started back to work in April one year. The nine months went by and they kept paying me, so i called and reminded them I was back at work, the person at SSD said they knew and were "reviewing my file"

the review process took quite a while. One person at SSD said I should save the checks (they were being directly deposited, so imagine how hard that would be) another person said, as long as i had informed them I was working, the checks were mine as long as they kept coming.

i wasn't able to save much of them....finally about a year after the "9 month return to work period" was over, the checks stopped, because I had called again and said, "Please stop sending me these checks, i don't think I am entitled to them"

i later received a letter from SSD stating I owed them approx $9500 in overpayments. I was freaked out....i applied for a "reconsideration" since from my end, I had informed them as required that I was working and that I was getting the payments when I thought I should not be.

Imagine the joy I experienced when, a few weeks later, i received a letter stating:

"We wrote to you earlier to tell you about a $9,275 overpayment. Since we were able to stop your January 2006 payment of $1122, you no longer owe us any money."

Period. That's it. I have the letter saved in a fireproof box in case they ever come back to me.

i guess it was my turn to get lucky!
"All we need is love....love is all we need"

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 5:03 PM (GMT -7)
There are a total of 2,732,300 posts in 301,007 threads.
View Active Threads


Who's Online
This forum has 151169 registered members. Please welcome our newest member, Zags.
301 Guest(s), 14 Registered Member(s) are currently online.  Details
Chask, notsosicklygirl, Pirouette, Girlie, Todd1963, LG13, ChickNorris, TomG1988, Fairwind, Mustard Seed, SueCAll, Malone26, trumpet123, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer