decreasing entocort

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/13/2007 9:21 AM (GMT -7)   
Hi all,
 
i spoke to my GI yesterday since I saw the RA doc and he wants to try humira for my CD realted arthritis.  I also asked him about those vaccines that the hospital wants me to get since I am on entocort I wanted his opinion.  He said yes to hep B and the tetanus/dyptheria/whooping vaccines.  He said thay are all dead vaccines so they are okay for me to get.
 
I also informed him my gut/D has not changed since starting the entocort (they are testing me for c diff next just to rule it out since I was on so many ABs with my 3 Sxs this yr).  He said I should start to cut down then and I started the 6mg today as opposed to the 9.  He may have said how long on the 6 before cutting to 3 bbut I forget.
 
How long does one typically stay on 6 mg before tapering to 3....I have only been on it about 2 weeks this time
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/13/2007 9:41 AM (GMT -7)   
I was taking entocort for 6 week and when I decreased it it was every two weeks....9 mg then after 2 week go down to 6mg and then after 2 week to 3 mg etc. that's what my GI said.Now I increased it again because of the pain
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2007 9:42 AM (GMT -7)   
I don't have an answer on the Entocort reduction, you might want to call your GI and ask for more clarification on the taper process. But did want to ask, are you taking any Probiotics? Those have helped my diarrhea more than anything. They help to put the good bacteria back into your system. They also help fight C-Diff in case thats what you have.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/13/2007 11:14 AM (GMT -7)   
Yes i have them however I havent taken them since my surgeries, they are in the fridge and I am planning on taking them again. I just have a hard time remembering them since they are not in my "pill bucket" in my room. I need to put them right next to my water bottle in the fridge that I use at night to fill up a smaller bottle
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2007 11:21 AM (GMT -7)   
Try them I think you will be pleasantly surprised. It really helped slow my D down alot.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/13/2007 12:07 PM (GMT -7)   
I came across them today actually while I was cleaning out my fridge. I am making homemade meatballs and homemade sauce for dinner. These are the only type of meatballs I will eat, I have tried others at restaurants, frozen etc in the past and they all cause stomach issues with me...it must be some ingredient in them. I use puree and paste for the tomato product therefore there are no seeds or skin in them. I like my sauce thick so I add less water and more paste to it then when I initially learned the recipe. If anyone wants the recipe let me know...the sauce and meatballs freeze well too so I make about 30 meatballs (3 pounds of ground beef...you could probably use ground turkey too just never tried it). mmmmmmmm just thinking about it makes me hungry...takes 3 hours to make which isnt too bad, going to start making it soon
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/13/2007 1:09 PM (GMT -7)   
I would like to have the receipe ....I love meatballs
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/13/2007 1:22 PM (GMT -7)   
click on my email icon under my id and email me since your email is unavailable and I will send it to you :)
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 9/13/2007 3:37 PM (GMT -7)   
My GI recommended dropping 3 mg every week. So I was off it in 2 weeks.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.

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