Enteroclysis and Entocort

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

timmysang
Regular Member


Date Joined Sep 2007
Total Posts : 75
   Posted 9/13/2007 9:58 AM (GMT -7)   
I just got back from my doctor this morning and he is scheduling a Enteroclysis test for me for a stricture that I have. Has anyone ever had this test done on the small intestines? I just wanted to find out a little bit about what to expect.
 
Also, I just finished taking prednisone and he started me on Entocort. I never took med before and just wanted to get some information on this too.
 
Thanks,

Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 9/13/2007 4:57 PM (GMT -7)   
I have been on prednisone off and on over the years during major flares in the hospital and such and for 2 1/2 years when I was first diagnosed but nver Entocort. I have had the Enteroclysis test done once prior to having surgery. I have had strictures in my small intestines too. The surgeon thought they would be able to possibly see them better than from the Small Bowel Follow through x-ray test. It wasnt that pleasant of a test because they have to insert a narrow tube throught your nose and put the contrast for the test through the tube which runs down into your intestines. I have narrow nasal passages in my nose so it was difficult to insert them. I had this test done a few years later and took Valium 1 hr before the test. Before they started the test they try to spray something up your nostrils to numb your nose and then just insert away. They tell you to relax which was hard for me to do. I dont know if you have had Nasogastric tubes inserted in the hospital before for partial obstructions or after surgery but when I have been awake it doesnt feel good. I ask for valium before they insert any tubes in my nose now. Good luck with your tests and all.
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 9/13/2007 6:11 PM (GMT -7)   
They can do a CT enteroclysis now without gastric endoscopy.

Ask whether the institution does CT enteroclysis using metamucil drink as the agent that pushes the contrast medium through the bowel. I had this new test done earlier this year and it was a (relative) breeze. No prior prep. took about two and a half hours at the hospital. First i was given the contrast medium -- a very small amount compared to what you have to take for a SBFT. then i drink a glass of very watery metamucil every 20 minutes for an hour. Then an x-ray to see where the contrast had travelled then. Waited another 30 minutes then had the CT scan. Before they do the scan they give you something through the IV to stop the bowel's peristalis (SP) temporarily to improve the images along with the dye. That's it. 10 minutes later it's all done. And they got great images compared to the dozens of SBFTs I've had in the last 10 years, none of which could identify a serious stricture that eventually occluded.

Good luck on the exam and I hope you don't need to have a tube down your nose. They really are old news now.
Belleenstein:

30+ years living with Crohn's.


Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 9/13/2007 8:51 PM (GMT -7)   
I am glad to hear they don't use the tube anymore. I last had the test done in 2000 at the Mayo in Scottsdale so it has been awhile.
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix


nazeha
Regular Member


Date Joined Aug 2007
Total Posts : 41
   Posted 9/14/2007 12:42 PM (GMT -7)   
When I was first diagnosed, my doctor put me on Entocort. I was on it for about 6 months or so and just now got off it. I got bad side effects...bad acne, moon face, a little weight gain (not too much), excess white junk all over my mouth, and stretch marks everywhere! It was really annoying having everyone come up to me and ask me if I just got my wisdom teeth pulled out for six freaking months!
I heard it doesn't normally have many side effects for most people. So good luck!
<3m.
Maya
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
I'm currently on Cipro and Entocort (3mg/3xday). The Entocort has given me lots of issues. Really puffy cheeks, the inability to lose any weight while working out constantly, lots of acne, weird hair growth, and these random stretch marks on my thighs and breasts. I told my Dr. I thought I had Cushings Syndrome, which is an effect of Entocort, but she doesn't believe me.
This site is great for support.
<3
 


timmysang
Regular Member


Date Joined Sep 2007
Total Posts : 75
   Posted 9/14/2007 10:24 PM (GMT -7)   
I am not too sure if the institution does CT enteroclysis or if it is the test where they insert the tube through the nose.  The test is scheduled for Tuesday morning so I have time on Monday to call the hospital to verify what type of exam it is. I am now hoping that it is the CT type that you mention. That seems like it would be much easier to take.
 
My doctor tells me that this will give a better indication of what type of stricture that I have. Either it is just an inflamation where the meds might take care of it or if it is actually scared which and that would need to be surgically removed.
 
I have had several instances in the past few months where I know that it was something that I ate that cause the blockage. I ended up not being able to pass anything and ended up throwing up afterwards. The doctor treated that with the prednisone, flagyl, pentasa and levaquin. It just happened again several weeks ago so he put me on the same medication. In addition to the Entocort.  I actually have a gut feeling that I will have to have the surgery because the first round of medication should have taken care of it if it were just an inflamation and not a scared type of stricture.
 
Thanks,

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 9/15/2007 5:56 AM (GMT -7)   
I just had a SBFT last week. I'm wondering why my GI didn't order CT enteroclysis instead. It sounds like the better test. My GI generally gives me the options available and I try to make an informed decision. It looks like he left out at least one option....
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 9/15/2007 10:03 AM (GMT -7)   
Hi Ski Bum: Not every institution is doing this new form of eteroclysis yet -- I was the first to have it done in the province where I live -- and the old way (which was described above) is so objectionable that the test has fallen out of favor and is usually only recommended as a last resort. The test was a last resort for me because I after having surgery to remove an occluded section of bowel that had never shown up on numerous SBFTs, I refused to have another performed. This is why they offered to test this procedure on me. It worked really well!
Belleenstein:

30+ years living with Crohn's.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 9/15/2007 3:40 PM (GMT -7)   
Thanks for the info Belleenstein. Your explanation makes sense. My doctor knows I wouldn't go for a test involving an NG tube if I didn't have to.
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.


timmysang
Regular Member


Date Joined Sep 2007
Total Posts : 75
   Posted 9/19/2007 7:03 PM (GMT -7)   
I had the enteroclysis done yesterday. I was driving myself crazy beforehand thinking about this test. Worrying about having the NG tube inserted and having to be somewhat alert during the procedure because I would have to move different way when they were doing the xrays.

I wanted to let you know that even though it's not a pleasant thing to have done, it was not as bad as I had been anticipating. They gave me some mild sedation and numbed my throat and I have to say I didn't really feel anything. I was actually watching the monitor and while they were taking xrays of my small intestine.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 8:34 AM (GMT -7)
There are a total of 2,732,057 posts in 300,984 threads.
View Active Threads


Who's Online
This forum has 151152 registered members. Please welcome our newest member, JesperTrottier.
284 Guest(s), 10 Registered Member(s) are currently online.  Details
sararectenwald1, Chellety, ntzguy, Fairwind, colitisteen98, Mustard Seed, JamesE, trumpet123, multifacetedme, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer