I don't usually tell everybody I meet about my condition, maybe because I like to "fake" that I'm normal. But then again who is normal? People around us suffer from so many diseases, high blood pressure, diabetes, heart problems etc. It just happens that my disease is more rare here in Greece, and almost nobody has heard of it.
The only ones that know is my family of course, my friends, my boss and my co-workers. And let me tell you, their support is huge, I don't know how I could make it through the day if they didn't know what was wrong, and I love them all for giving me their love and understanding.