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Can I get your opinion, please?
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I Gotta Go
Date Joined Sep 2007
Total Posts : 44
Posted 9/13/2007 4:29 PM (GMT -7)
Based on your experience and and understanding of IBD, please tell me if what I've been dealing with for the last 15 years is IBD or perhaps IBS. Here's an outline of my story:
-- In Feb. 1992 (I was 33 then) I get real sick. Symptoms include massive watery diarrhea (with no blood -- that I can tell), stomach pain, major fatigue, and eventually nausea which leads to throwing up. This goes on for about
-- I take every over the counter medication I can find at that time to stop the diarrhea and nothing works. I try fasting for several days and I eventually try the BRAT diet. Nothing settles things down for me so I go to a regular family doctor.
-- Doctor puts me on Lomotil (sp?) which also does not phase me. I'm as sick as a dog and seem to be getting worse. It's now been two weeks.
-- Finally the same family doctor (not a specialist) performs a Sidmoidoscopy and declares that she sees quite a few signs (red sores/inflamation in my colon) of what she calls IBD and diagnosis me as such. She also performs a stool test and the lab does find blood in my stools which surprises me.
-- Finally, the doctor prescribes a course of Prednesone (sp?). After about
3 days things really start to settle down and I am finally feeling some relief and start eating normally again (I've lost about
10-15 pounds or more). In fact it works so well I get constipated and have to take a laxative to clear my bowels. When that happens I have for the first time in about
4 weeks formed and somewhat solid eliminations. The Predizone did it.
-- Now that things are under control, the family doctor prescribes Sulfasalazine (sp?) as a maintenance drug. I take that for over a year during which time I am still having multiple BMs per day (around 3-5 but with no blood at all) that are somewhat loose but mostly formed and solid but full of mucus -- lots and lots of mucus. That goes on for about
a year, but I'm not sick like I was in the beginning. In fact I feeling pretty good except for the crazy BMs that I'm having at the time.
-- Finally, I go to a GI specialist because of the multiple BMs and mucus I am still having. He performs a full Colonoscopy and finds absolutely nothing. He says I'm clean as a whistle and declares that I have IBS instead of IBD. He suggests that I take a fiber supplement each day. I ask him about
my family doctor's diagnosis of IBD and he just shrugs and says he doesn't know how to explain that. He tells me to stop taking the Sulfasalazine. Says I'm just wasting my money on that.
-- So I start taking a lot of fiber and it does really seem to help to a point where I am pretty much back to normal and I find that I don't even need to take the fiber supplement anymore. It's now been 18-24 months since my initial attack and I'm curred!!
-- That was 13 years ago. Since then I have had many, MANY "minor" flare ups but nothing that Immodium AD does not fix for me.
-- Now, today, I am going on my third week of loose watery BMs with no blood but with a fair amount of mucus in them. I was having around 4 BMs per day and now I'm having 2-3 watery BMs per day. I am not feeling any pain nor do I have the awful, fatigue/punk feeling that I experienced 15 years ago, but nothing is taming the watery diarrhea -- even Immodium AD is doing nothing for me.
My current family doctor (not the other family doctor from 15 years ago) is having me submit a stool sample for testing and I'll find out about
that in a few days. Also, I do have an appt. with a GI specialist the first of Oct. My current family doctor did do a CT scan of my pelvis and bowels and that came up "normal."
So, that's my story. What do you think I have? IBD, IBS, or is it something else?
Thanks for your support and advice.
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Date Joined Apr 2005
Total Posts : 3763
Posted 9/13/2007 4:48 PM (GMT -7)
Have any of the current doctors run regular old blood work? That would give a good indication of any inflamation. And would be a good place to start. I would also be asking for a colonoscopy. NOT my favorite thing to do, but biopsies would give you a more difinitive answer. Also they could send your blood sample to prometheous to test. Also a good indication of what is really going on. Are you running a fever, or have you been in the past. Not a typical IBS symptom.
In the begining, I self diagnosed, only to be told I didn't have CD. So when the S*&T hit the fan 10 years later, CD never even crossed my mind because I'd already been told I didn't have that. So good for you, that you are looking back at CD and trying to figure things out. If I had done that, I could have saved myself months of suffering, 20lbs of weight loss, and maybe a surgery.
These aren't really answers to your questions, but maybe a place to start. I hope you can find some relief soon.
CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....
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Date Joined May 2007
Total Posts : 121
Posted 9/13/2007 4:53 PM (GMT -7)
I'm pretty new at all this myself but there is a test called Prometheus test that can diffentiate between IBS, Crohn's and Ulcertive Colitis. Might be worth asking for.
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.
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